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I Admire You All, but I cannot do this. Feel trapped.

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  • ImMaggieMae
    ImMaggieMae Member Posts: 1,015
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    Novice, caring for someone with this disease is unimaginably difficult, even when you love the person deeply and are committed to caring for them and making the rest of their life as good as you possibly can. Caring for someone you no longer love or even like and were planning on leaving anyway before this all happened sounds absurd. Contact a good attorney and find out what your legal obligations are and get that taken care of. Also talk to his family and explain that you are sending him to them for his care. 

    No labels or judgements are needed. People leave or divorce each other every day for all sorts of reasons. You can’t handle this. Do what you need to do to see that he is taken care of and then leave. If you felt a commitment to each other you would have married. 

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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    I’m a bit shocked at the judgement placed on Novice.  Maybe I’m naive to think I’ve not been judged when I’ve shared, vented, exclaimed, responded and the like.  I thought expressing ourselves in our moment was safe here.  Disagreeing even debate is good and often helpful but projecting a label onto someone else fighting for their life, not so much.  Haven't we all fought  for our lives in this journey at one time or another? 

    Novice, I hope you do come back but I wouldn’t blame you if you didn’t, especially now.  

  • Dio
    Dio Member Posts: 682
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    Dana, since you are new to this forum, please take some time to read posts here to acclimate yourself to this forum. There are many helpful tips and info, but more importantly we are here to support each other on this dreadful journey, not to judge. Each of us is on our own unique journey in unique situations, traversing the treacherous path as caregivers--some easier while some are utterly unbearable. Expressing your opinion is one thing. Being judgmental is another.

    Novice, I wish you the best outcome. Don't let others' opinions cloud your own sense of right or wrong. Your situation and feelings are your own. Troubled relationships prior to a partner getting sick definitely puts another wrench into the whole caregiving dilemma. I'm sure many of us have pondered "what if I had divorced him/her when I had the chance?" This doesn't make us bad people. It's just a fact of life. My motto is: When a decision is made, it is the best decision given the circumstances at the time it's made. So don't beat yourself up. As others have offered, it may be best to talk to your partner's family and let them know how you feel honestly. Who knows? The decision may be easier than you think. And definitely seek legal counsel.

  • Joydean
    Joydean Member Posts: 1,498
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    Novice I hope you are still reading because I want to add my two cents worth. I had only been on this forum for a very short time and I posted a vent! Those that responded were very nice and supportive. However there was one that posted a judgmental post not about me but about my husband. I was completely shocked, hurt is putting it mildly. I decided I would not come back on this forum again. I needed help but not at that price. A very wonderful person let me know not everyone was like that. I decided maybe the person judging me was having a really bad day and in my heart I asked God to forgive the person and bless him. I believe God did! 

    You and you alone can make your decision. As many have said this is a very very hard road when you have spent many years of love together. I can’t imagine how hard this must be when there is no love . Honestly I don’t think I could do it day in day out for all these years if I didn’t still care about my husband. 

  • Ed1937
    Ed1937 Member Posts: 5,084
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    Joydean wrote:

    I decided maybe the person judging me was having a really bad day

    I've been trying to find a proper response to the problem. It could be that Dana has been having an extraordinarily hard time lately, and it just came out. Stress exploded. He mentioned that this is a place for support of caregivers, and that seemed to imply that Novice was not a caregiver, so not entitled to support. That is not who we are here. Was all of this due to Dana's stress?

    People here post about almost anything, including jokes, sex, family relationships, cooking recipes, problems that have nothing to do with dementia. It is a place for people to post whatever they want, and feel supported without judgement. It is a place that people might come to find some sliver of normalcy while leading a very demanding life.

    So in the end, I can understand why Dana might post something like he did. That's unfortunate, but I hope both Dana and Novice stay on the forum, while having learned something from this thread. They both need help, and that's what we're here for.

    Joydean, thanks for the comment.


  • ImMaggieMae
    ImMaggieMae Member Posts: 1,015
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    Just Bill said, “I still have very strong feelings for her and even though she is sick I am glad she is still alive. She is still in there despite being sick. There is a lot of positive moments left in her.“  Your statement brought tears to my eyes. I feel the same about my husband. Thank you for posting that.
  • danapuppy
    danapuppy Member Posts: 21
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    "Bless you Almighty God, creator of everything. Your glory is unimaginable. Thank You for Your grace and salvation, thank You for Your love, thank You for Your faithfulness. God, please bring your healing power to NOVICE, God empower the Holy Spirit to bring comfort and peace to her. Give her the knowledge, wisdom, and understanding that will enable her to walk out Your plan for her. Amen."
    Thank you JOYDEAN for reminding me that God is our hope.

    I compose this final post on this thread from me to NOVICE. I apologize to you that my comments caused you offence. I read previous posts on the thread and could not understand that others were recommending, "Run, don't walk" and "Consult an Elder Law Attorney." Validating some portion of your concerns. I am not a mental health professional, but I live with depression and recognize how it presents itself (sleeplessness, hopelessness, sense of feeling trapped, confusion, crying, and other symptoms in your post). I believe everyone faced with this disease and caring for someone fights it every day. But others that were posting were not suggesting that you might need the help of a mental health professional for yourself. 

    In the words of Jordan Peterson, clean up your own room before you try to improve the world. A metaphor, that one must first take care of their own issues and surroundings before moving on to bigger challenges in life. That was the foundation of my comment that, seeking validation from strangers to ease your conscious because you were unable to endure the unpleasant thing. Using cowardly to describe that act, in fewer words, was not intended to label you. QUILTING, twisted the post in an apparent attempt to villainize and chastise me. I don't care what others think, I wear the armor of God, and their weapons are powerless against me.

    As my wife's caregiver, I can tell you it is an extremely difficult task (physically and emotionally). It is not for everyone. And it may not be for you, so be it. I don't know you and neither do the other strangers posting in this thread. In my opinion, making that life changing decision without resolving or getting help for your depression, based upon the advice of total strangers, would likely be a bad one.

    NOVICE, I pray for your healing. I pray for many others dealing with Alzheimer's, too.

    The picture used in my profile was taken by my wife on the back of our motorcycle, touring on the Blue Ridge. That was before she was diagnosed with Alzheimer's. It is a wonderful memory for me of our life before Alzheimer's. For me the light at the other end of the tunnel represents my faith in Jesus Christ as the light for the world. Jesus tells us in scripture that there will be trials, tribulations, tragedy, and broken hearts in this fallen world. Out time in this world is but a vapor. But faith in Him will be an eternity in the Kingdom of God. I believe when my wife and I roll up to Jesus on the mercy seat he will say, I KNOW you, welcome to heaven.

    Some of the posts demonstrate the hypocrisy of some authors. First, GHPHOTOG I wouldn't knowingly advocate for the devil. You don't know me. And you're suggesting that your opinion is somehow righteous, is inappropriate. M&M everyone is judging here, you judged me and inferred that my opinion is misguided and should be ignored.

    Finally, DIO, this one really made me shake my head. Your suggestion that I should read other posts, before I post comments, to get the tenor of how I should express my opinion, is preposterous. I spent a month reading within the forum before I posted the first time. I will not succumb to some ideological indoctrination on how I should express my opinion. I will be clear. I love my God, I love my wife and family, I love the United States of America. I get my guidance on how I should conduct myself from the Word of God. I fail time and time again to get it right, thankfully my God knows I am imperfect, and He is gracious. So, if any of you have issues with my opinions you are free to skip over them. I promise I will not be offended.

    To quote another post, "Don't let others' opinion cloud your own sense of right or wrong." Words all of us should live by.

  • Ed1937
    Ed1937 Member Posts: 5,084
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    I'm really sorry the way this thread has gone, most of the way through. I'd like to suggest we just let it die now. No upside to keeping it going, Thanks for considering it.
  • Gig Harbor
    Gig Harbor Member Posts: 564
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    Bye Dana
  • Cherjer
    Cherjer Member Posts: 227
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    My sister just lost her DH in a skiing accident...we all thought my DH would be the one to go first with his AD at stage 6. I am through feeling sorry for myself (which  never really did). AD is terrible but so many people are suffering like my sister.
  • Denise1847
    Denise1847 Member Posts: 836
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    Dear Novice,

    For whatever it is worth, I believe a caregiver goes through is very much a process of grief - denial, anger/resentment, bargaining etc.  We cycle through these over and over, but we do learn alot in the process.   For example, when my DH was first diagnosed, I was very angry at him because I believed he caused it due to his refusal to wear a CPAP for sleep apnea.    I really had to get past this notion and came to realize that he would certainly have chosen to wear the CPAP had he known he could prevent the disease (which I don't believe is the primary cause of the disease).  The point here is that it is natural to get angry at the situation and then project that anger on the person.  It will be helpful to you to try to separate the anger at the situation from the person.   It may also be helpful for you to acknowledge the sense of hopelessness, disappointment and loss of what you thought the future would be and what you are facing.   Perhaps a skilled counselor can really help you to sort out the emotions from the tangibles and get to a more comfortable place.   Right now, it sounds like you are reeling from the diagnosis and scared.   I get it and totally understand your wanting to run as fast as you can.  When you have had bad situations before, ask yourself how you have handled it.   We tend to use the same strategies which worked before, which may not be the most useful solution now.  For awhile, I was mostly focused on how the disease was altering my life, not seeing the awful situation my DH was in.   Through prayer and time, I have overcome the hyper-focus on my disappointments and try to take each day as it comes and make the best of it.  Not sure I have helped but hope you see that your feelings are "normal" and we are not saints.

  • Lopo
    Lopo Member Posts: 1
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    Partner, this is my first comment, and it is for you. If you are not married, and he is broke, really broke, no assets, the magic word is Medicaid. I have had to stand back and watch my niece and nephew in their early 60’s put their mother, my big sister who is 8 years older than me, in a nursing home after their dad died (and he had been taking care of her). I have had to keep my mouth shut, and over a year later, she seems more healthy that she was when she was in the clutches of a long-term marriage and anxious and was wasting away. 

    And now here I am, feeling more than a little bit like you are. I was 36 and DH 41, and quadriplegic from a diving accident as a teenager when we met and married. Forty years. One side of him is “dear,” but he is Asperger’s, which I guess now is high-functioning autistic. And charming. And educated. And that Asperger’s aspect was most prominent when money was involved. I knew that if he thought I had mishandled money, or tried to take what was his, he would kick me when I was down. Forty years, quadriplegic, but creative in handling it and I have not been his caregiver, but the one that has made sure he has one, is paid, and all problems were solved. I didn’t recognize the Asperger’s stuff for what it was, and realize it would be a lifelong pattern, and now, at  81, dementia. Holy crap. He is at our house in Mexico with his caregiver of 30 years, who is not in great health, but oh, well. The assumption is that I would spend most of my time with him, but he doesn’t (and never has) have a clear idea of time, what month it is, etc.

    I am publicly worried, but privately cannot believe my good luck to be home alone, have a very good excuse to be here, which is to be near Moffitt Cancer Center where they are watching me, scanning me, etc, to make sure if the weirdest, rarest, most aggressive cancer (Merkel cell carcinoma) rears its head again, they are waiting with the knife because there’s no chemo for this cancer. (I also have Crohn’s Disease.)

     He now can’t remember all this, still likes to think he robbed the cradle (I am 76), which would be convenient. It’s time for you to hit the road, Girl, and you have my permission to come up with an illness (don’t make it to bad, if you believe it karma, ), and become unwell. Make it good. Fake falling off a ladder and hurting your back, be laid up and ask him to bring you breakfast in bed, but if you stay, I’m telling you the next 20 years will make you wish it was only a bad back or cancer! Go!  

  • Norm 22
    Norm 22 Member Posts: 23
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    We are all reluctant caregivers.  But if you don't like your ostensible LO the very difficult becomes virtually impossible.  Guilt is an unavoidable part of the position and not everyone can or should be a caregiver.   Novice probably needs to help as she can and live her life. "Good" or "fair" answers to the problems caused by dementia are not realistic, and usually just don't exist.
  • Buggsroo
    Buggsroo Member Posts: 573
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    Novice,

    I read the other entries and now feel I am ready to add mine. Thank you for your honesty and your forthright answer. Sometimes in dealing with dementia and those who work with it, I want to scream at the hushed tones, the oozing caring replies and the placating that goes on. Then there is this forum that lays it out from the caregiver’s perspective. A real refreshing take on a crappy turn of events.

    I loved my husband but I don’t now. He isn’t the person I married. I live with a quite feral individual that grunts, leaves feces in the sink and urinates on the floor. I find I am trying very hard to just get through the days as best I can. I look back on the days when we laughed so hard we would cry, his wicked sense of humour that so meshed with mine. But that person is gone. Now I care for him and try to get through the days as best I can. He stinks, grunts and repeats my name over and over again. Angry, you bet your bippy I am furious, enraged that this effing disease stole my husband before his time. 

    So I say to you in caring and understanding, if you can’t do it, you can’t. If you want to end your marriage, so be it. That is your right. None of us here signed up for this. Possibly what keeps us going are our good memories of what it was, but if you don’t have that, there really isn’t much to keep you in this marriage. However, your honesty has helped me say what I need to say so thank you. See an elder care lawyer, get your affairs in order and leave your partner in good hands and then remake your life. 

    Honestly I get through the day putting one foot in front of the other. As Bill said, the cavalry is not on the way. Believe me, I know this. I am dealing with behaviour specialists trying to get my husband ready to place. Sometimes I stare at the wall wondering how the #$@ I got through this long. At 66, I still want my life back and am not willing to throw myself on my husband’s funeral pyre or commit suttee. So I wish you the best and thank you for your frankness.

  • CStrope
    CStrope Member Posts: 487
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    Dana -- you are correct in saying "A coward is defined as, a person who lacks the courage to do or endure dangerous or unpleasant things. "

    Maybe I am a coward, and I'm okay with that.  Since starting this journey with my husband, I have had numerous people constantly tell me how strong I am.  I want to scream!  I am not strong, and I do not want to be strong.  I did not choose this and I don't know if I can survive this.

  • Novice AD Partner-Ca
    Novice AD Partner-Ca Member Posts: 19
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    Hi Danapuppy and everybody else -  I haven't been back to this forum since I posted my stressed-out post, so I'm only just seeing this discussion now.

    And I am astonished that it was only nine days ago that I posted it! I honestly thought it was a month ago. Time has been very weird for me lately.

    I was actually in a fair bit of psychological distress when I posted that rant, as a result of the recent diagnosis, and I appreciate the kindness and gentleness of so many of you. Wow. Danapuppy had a different take, a bit more judgemental, but that's OK. I have been getting angry with some other people that I normally wouldn't because I'm stressed. Maybe that's the case with Danapuppy too. Also, sometimes when you are carrying a big burden yourself it might be a little bit annoying to see others not pick up that same burden when it presents itself, I'm only guessing. 

    I did give the impression that I was unhappy with my partner and I just want to straighten out that it was not that I did not love him, or that we had not had a good life together, but I think I knew something was very very wrong, deep in my heart, that he was becoming a different person, and it was scaring the wits out of me. That's why I wanted to leave. Life seemed to be just "wrong" somehow. And then with the diagnosis, it was a grief reaction. "Whaaaaa, this is not meant to happen!!!!" 

    So anyway, I posted that vent, then settled a bit. We had a neuropsyche assessment, which showed that his cognitive deficits are really advanced. I felt soft sadness, and sympathy, for my dear friend, with whom I have shared more than half my already very long life. I got some counselling. I did not decide to walk away, even though those gut feelings of panic - that so many of you recognised - were strong, and I do not regret expressing them here. It is healthy to express feelings with others who have the same outer circumstances, and from the responses, it's clear many people have these thoughts and feelings. If people don't express them here, in places like this, the impression in these forums is that everyone is good and saintly (which is the impression I had) and that there is something wrong with you for having these feelings, and that is not the whole truth.

    I tried to listen to my heart. I do love my partner and I know he loves me. We are getting married in a month's time. I now understand that although he loves me, this disease probably began in his 20s or 30s. When I look back over our life together, the things that have strengthened and developed and are now called "symptoms of Alzheimer's Disease" were there, but I attributed them to other things. He was always lacking in initiative, struggled to make decisions, was terribly foggy-minded, would be completely out of his depth with anything that required initiative, planning, action, energy ... but he has always been kind, gentle, accepting. He has never criticised me, or been angry at me. Never raised his voice at me. I am being absolutely honest here. That is rare. I am tearing up as I write this. Very rare. So we are getting married because I want him to have that same security that I have felt because of his unconditional love, to know that I will stay with him, that I appreciate all the love and gentleness and acceptance he has given me over all these years. That I am not running away from him when he needs me.

    I will keep myself fit, strong and healthy if I can. I will take all the help I can get so that I can develop my own life and interests to keep my sanity and prepare for my life alone when I can no longer do the caring role.  It's essential that I keep planning travel and adventures, and I plan up a bit of a wall against guilt so that I don't completely live my life for him, that would not be respecting myself. I have to understand, as I am not able to, that I am dealing with someone who has a brain injury, who cannot think straight, and not take things personally. If he gets physically hard to manage, he will have to go into care. 

    Also, sorry if I gave the impression that "his family" is not supportive, they are. They often express helplessness that they can't do more to help. I don't know what to ask them to do. It's all very very new to me.

    The advice from everyone is greatly appreciated. I am buoyed by all you people showing the best of humanity, and sharing the fact that it is not easy for you all the time only makes me have more admiration. There were so many wise and helpful words in this thread that I will read and reread. I am very grateful to everyone who commented, even though of course some of the comments were hard to read.  I will be proud if I can join your ranks. It is a tough tough journey and really I honestly have very little clue at this point what is in store. Some of the comments about partner's behaviour really freaked me out! I hope I can have a good sense of humour to help me and my, er, ahem "fiancé" (soon to be husband!) along this trail - one that nobody in their right mind would choose, that's for sure. But I think I can grow through this. I think maybe it can make me a better person.

    Thanks again everyone. I'll see if I manage the April 3 transition and see you all on the other side. 

  • Joydean
    Joydean Member Posts: 1,498
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    Novice everyone is welcome on this forum! This road we all on is a very hard and full of potholes and it will only end in one way. But we can learn so much from each other and about ourselves. Hang in there and you are not alone on this road. Congratulations on your upcoming wedding!
  • Ed1937
    Ed1937 Member Posts: 5,084
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    Novice AD Partner-Ca wrote:
    I will be proud if I can join your ranks.

    I have news for you. You are already part of this rather large family we have here. If you haven't seen this link, you might want to bookmark it for current and future reading. It will give you a good idea of what this is all about. https://www.alzconnected.org/uploadedFiles/understanding-the-dementia-experience.pdf  Of course, ask any questions you might have, or post about whatever is on your mind. We'll get you through the rough spots.


  • dayn2nite2
    dayn2nite2 Member Posts: 1,132
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    danapuppy wrote:

    By the way I am new here too. Maybe I'm in the wrong place. I expected a place where other individuals shared ideas that have helped care for and deal with the issues encountered caring for someone with Alzhiemer's. Poor Novice appears to have many more issues than the conundrum of caring for someone suffering from Alzhiemer's. It seems to me she might seek care from a mental health professional for herself before confronting the issue of being a caregiver. Advice that I did not note anyone suggest. 

    A coward is defined as, a person who lacks the courage to do or endure dangerous or unpleasant things. Which is how Novice described herself. 


    And I would describe you similarly, since you are sitting behind a keyboard casting judgment.  Just wow.  And yes, you are in the wrong place with the kind of energy you're giving out.

  • Lgw
    Lgw Member Posts: 115
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    Novice, My heart goes out to you.  This is a terrible and unpredictable disease.  I thought I was handling things in November.  Then he suddenly could no longer walk. That took care of the toilet smelling all the time from the accidents but then came the diapers.  I no longer see the look in his eyes.  They are blank.  I understand wanting to leave.  Do what you need to do for yourself.  I yearn to have my own life back.  Being brave is doing what you need to do for yourself.
  • Iris L.
    Iris L. Member Posts: 4,306
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    Novice AD Partner-Ca wrote:

    So we are getting married because I want him to have that same security that I have felt because of his unconditional love, to know that I will stay with him, that I appreciate all the love and gentleness and acceptance he has given me over all these years. That I am not running away from him when he needs me.

    Keep in mind and prepare yourself that his sense of security may and probably will change over time.  Being legally married will not give him a sense of security.   PWDs who have been married for 40, 50 years or more may not recognize their spouses or even the concept of marriage. 

    The benefit of these boards is that members can address EVERYTHING,  even sensitive topics and opinions that may seem hurtful or judgemental, but are things that a person needs to think about.  Often these types of posts can motivate a person to get to the next level.  We all need this, including me.  Your family and your friends, even your doctors and other professionals may not bring up anything sensitive.  Members often post that their doctors are reluctant to diagnose dementia, even when the PWD is clearly very compromised and the family is in chaos.                                                                                               

    A diagnosis of dementia is one of the very most challenging diagnoses that people have to face.  Everyone will need help.  Keep posting and post everything you want to post.  You will get honest responses.  Nowhere else will you get such honest responses.

    Iris

  • Gig Harbor
    Gig Harbor Member Posts: 564
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    Please see an elder care attorney before you get married to see how it will affect you financially if you have to put your LO into care. It might be better for you to keep your finances separate.
  • Novice AD Partner-Ca
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    Thank you Iris, that's very kind and helpful reflections. 

    I think the symbolic act of "getting married" is giving my partner security at this very tumultuous initial time where he has had his whole world turned upside down, to know that I am not running away from this and am not rejecting him. I think it would give him terrible pain and distress if I did that, and I could not live with myself afterwards.

    I think it is helping him now, even if it doesn't mean much to him in the future. He is still functioning pretty well, and I plan to make the most of these early days of the disease and treasure him and enjoy our life together as much as possible. I am not going into this with rose coloured glasses thinking this is as bad as it will get. Many other people get through this, and we will too I guess. 

    Anyway, I didn't choose this, it chose me. I've had a pretty easy time in life so far, now is the hard bit I guess. There are worse things in the world, that is for sure and certain. Every time I turn on the news I'm aware of that.

  • Novice AD Partner-Ca
    Novice AD Partner-Ca Member Posts: 19
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    Ed1937 wrote:
    Novice AD Partner-Ca wrote:
    I will be proud if I can join your ranks.

    I have news for you. You are already part of this rather large family we have here. If you haven't seen this link, you might want to bookmark it for current and future reading. It will give you a good idea of what this is all about. https://www.alzconnected.org/uploadedFiles/understanding-the-dementia-experience.pdf  Of course, ask any questions you might have, or post about whatever is on your mind. We'll get you through the rough spots.


     Made my heart feel warmed. Thank you Ed1937. Thank you I hope you know how these forums are so valuable. I have not found anywhere else where people can share like this, about this disease and living with it in your life.

  • Novice AD Partner-Ca
    Novice AD Partner-Ca Member Posts: 19
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    The linked article was very helpful. I have taken a copy to read and reread. Thank you.
  • Crushed
    Crushed Member Posts: 1,444
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    I've been on this road a long time. 13+ years My wife was brilliant loving warm and caring. A physician famous in her field and a great mother. She had been having trouble for a year and failed the clock drawing test in 2010. I was her sole caretaker as she declined. In 2017 I could not keep her safe she went into memory care and has been there ever since. by 2018 she had no idea who I was.

    I make sure she gets the best of care. She is in a wheelchair a and has to be hand fed. She is 71. We were married in 1975. I met her when she was 18 in 1970. In a very real sense she is my life. More than one woman has told me I am the most married guy they ever met.

    Today I have only memories , all wonderful. When I asked my dedicated feminist to marry me in 1972 she was frank "what I need is a wife, do you want the job?" I asked "but will I be sexually exploited?" She said "of course" so I said SURE.

    I no longer do day to day caretaking but I watch her like a hawk

    Its the best I can do for the woman who shared my life

  • Novice AD Partner-Ca
    Novice AD Partner-Ca Member Posts: 19
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    Thank you Crushed. Reading your story made me feel quiet and awed, a little shocked, very sad. Your wife was 57 - 58 when she started having troubles? Same age as my husband. I have so many questions I would like to ask but I don't really know how this forum works, whether you will see my response or not. I cannot imagine your life, how it has been ,especially for the past five years. I never imagined this illness could drag on like that, that the person would be alive for so long after that point at which they no longer know their own husband. Thank you for sharing, these personal stories are certainly an eye-opening education for me, which I need. I keep feeling nauseous and very afraid and sad, and running off and trying to ignore the whole thing, so I can only bear little "nibbles" of information at a time. Thank you again.

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  • Novice AD Partner-Ca
    Novice AD Partner-Ca Member Posts: 19
    10 Comments 5 Care Reactions First Anniversary
    Member

    Thanks, we are keeping on as I say with little nibbles of information and action at a time. POA is done. There really are not much in the way of finances to deal with, thank goodness. Future care is a bit thorny. I think I need help from his family a bit more to talk and think through that with him, he does not want to think about it or accept that that is his fate. I guess it's a kind of denial. He has insight, is aware of his own cognitive deficits, but just cannot imagine that it will lead into full blown dementia.

    But I have some counselling booked in from a dementia organization and they will help us to understand what is needed. thanks again for you advice.

  • Ed1937
    Ed1937 Member Posts: 5,084
    Sixth Anniversary 2500 Comments 500 Likes 250 Care Reactions
    Member

    Novice, the link I gave you is no longer working. Here is a new link. https://www.smashwords.com/extreader/read/210580/1/understanding-the-dementia-experience#hlangandcommun  

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more