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My grandma repeats the same question 10+ times in a single day, even if I answered 1 min ago

lindseyl
lindseyl Member Posts: 18
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Does the Alzheimer's patient at your home repeat theirselves a lot as well? This is driving me crazy... I'm fully aware that she's not intentional and it's not her fault, but it's just exhausting to answer the same question over and over, especially because to answer it I have to explain a bunch of stuff... I even recorded a video of myself answering that question to the camera, and each time she asks I'd just play the video to her. I know it's not nice to her, but this really helps keep my mood flat. And all of that was just me taking care of her for one day. I can't imagine how my dad gets ahold of himself taking care of her for years since she first had Alzheimer's.

This memory loss is so painful for both the patient and the caregiver (who are almost always their loved ones!). I'm trying to build an AI that hopefully can make life easier for both. Anyone interested in telling me more about the situation at your home? So I can design the product better and hopefully launch it soon? I'm thinking of something like this that I describe in this slides: https://tome.app/almondai/almond-landing-page-cljn533bs1hcjll3dz2qkezu4

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  • solerdr
    solerdr Member Posts: 45
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    Sage advice from graham.

    I know it is hard to have patience, this coming from a man will very little patience; however, like graham said I owed a lot to my father. Yes she is not your mother, rather your grandmother; however, without her you would not be alive.

    My dad asked the same question multiple times a day, and he even apologized for maybe asking me the same question; however, I just told him it was okay and he can ask me as many questions or the same questions all we he wants. Each time he asked the same question I remembered a time he was patient with me.

    Perhaps remember ALL of the good things your grandmother did for you.

    You do what you think is best for you and your mental health as well for you know yourself better than we do. If recording a video message works for you and helps keep you calm and not agitated, you do it. You know you are not doing it to be mean, cruel, nor dismissive; rather, you are doing it for your grandmother and for YOUR mental health.

    Additionally, is it absolutely necessary to go into a lot of detail when your grandmother asks the question? She will forget what you tell her and oft times too much information is taxing on their brain. Perhaps figure out a shorter, simplier answer, or make up one that is funny for both of you (therapeutic lying), which is okay.

    You are doing your best as we all did and are with this terrible disease.

    May God's light guide your day and His spirit bring you peace.

    Damion

  • alz99
    alz99 Member Posts: 13
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    My mom has showed signs gradually of dementia/alz for a few years. We were able to get her to see a doctor and were in the last steps and she would not go back in. She now has constant paranoia and all of her anger is geared at her spouse/my dad. He's good to her but she flips out acting crazy and then bursts out towards all of us. She needs to be on medicine to help her mood and we can't get her to go back in. She says she is doing just fine. I have told her over and over I love her and she needs to get to the doctor. You cared for me a child now it's my turn. Are there any suggestions on how to get someone to get the help they need?
  • lindseyl
    lindseyl Member Posts: 18
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    That is so inspiring and I feel so glad for you and your mom! You are right, we were all once curious children and they had so much patience for us.

    My grandma tries hard to hide the fact that she forgets something if she realizes it. I wonder if it's because we are not supportive enough around her. How did you manage to turn the memory thing into a joke safely? Did she give you any signs that made you feel like she gradually loosened up, or did you say something to make her feel it's not a big deal?

  • lindseyl
    lindseyl Member Posts: 18
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    Thank you for the support Damion! And thank you for understanding my side, it means a lot. What do you mean by therapeutic lying? Is it to make up funny answers? What if my grandma actually desires the answer? Could you help me understand your approach (maybe with an example you have used before)?

  • lindseyl
    lindseyl Member Posts: 18
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    My grandma does the same thing. She'd make up some memory about my aunt stealing stuff from her and accuse her of it. I've read on websites that delusion is one of the symptoms. I wonder if delusion can occur less if she feels safer and more supported, or if it's purely a DNA thing or the stage of the disease.

    Does your mother get angry for what happened at the moment, or for things that happened a while ago?

  • James_D
    James_D Member Posts: 1
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    Therapeutic Lying is lying in support of the dementia patient’s reality. For instance, my Mom, who is in a permanent long-term memory care residence, might let me know that she will need someone to pick her up and bring her home on Saturday. Instead of responding with the truth, “Mom, You live here, you don’t need someone to pick you up on Saturday” (which she will likely think is untrue) I can respond with a therapeutic lie, “Oh, ok, sure, I’ll be available to pick you up.” (Which, although untrue, brings Mom visible relief because in her reality she must get a ride for her return “home” on Saturday). In Mom’s case this conversation along with the therapeutic lie is forgotten in the next second as I redirect the conversation to other topics
  • alz99
    alz99 Member Posts: 13
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    My mom is still driving and lives with my dad and she is overall functioning very well on some levels. It's moreless she can no longer follow directions on a recipe and has lost all desire in almost everything. She use to keep her house very clean. Everything is overwhelming for her. Things she had an interest in she no longer does. She will repeat questions as to where someone is who was never there in the first place. She is functioning in the way that she worries about where my dad is at all times. She had paranoia before but know she follows him around and talks about him excessively.

    You asked if she gets angry in the moment or things in the past - both. It does seem to be more in the past. Although there are some things in the moment as well. She has a lot of unnecessary anger towards her spouse/my dad. She also cut off all communication with her two sisters.

  • solerdr
    solerdr Member Posts: 45
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    Lindsey,

    You are more than welcome. James_D explained therapeutic lying very well.

    Instead of arguing or telling the truth/reality to my father I would lie for his sake.

    Dad: "Where's your mom?"

    Me: "Oh she is at an appointment and will be by later." Neither of these were true.

    Dad: "Can I go with you?"

    Me: "I am just going to the restroom dad and I will be right back." Again, not true: however, these therapeutic lies would put my father at ease...at least for the moment for as James_D said, he would forget the conversation in a matter of minutes and he would forget that I had even visited. Thus, these lies are for the benefit of our loved ones.

    The hardest part occurs within ourselves that we are "lying" to our loved ones; however, therapeutic lying is an act of love. You want to put your loved one at ease.

    Hope this helps Lindsey.

    Damion

  • dancsfo
    dancsfo Member Posts: 301
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    edited July 2023

    @lindseyl, I agree with the responses written here, and want to add one thing. When I used to lose patience, I would answer is a bored or impatient way. I understand that your LO may notice that, and feel like you don't care about them as much as you used to or as interested in them. From their point of view, even if they asked "what day of this week is this?" for the umpteenth time, they may think it's the first time they asked today.

    I sometime wonder if they do remember they asked the question that day, but forgot the answer. Or forgot that they asked the question at all. I think it doesn't really matter a whole lot.

    Another thing is that a form of dismissive response may seep into your interactions with other people. Maybe I answered with a sigh, or didn't look at them when I answered. Maybe I started to do that with other people, and that's not good with that relationship.

    With regards to recording the question, I agree that it's not nice, and may help with your mood, from your grandma's point of view, it may be jarring or unsettling. I asked myself - what if someone showed me a picture of myself (let's say) sleepwalking and doing something really strange? I don't want someone doing that to me!

    I realize that when you explain or answer a question to a child, one does that since it will help the person learn or grow. Unfortunately, that does not always happen with a LO with this condition, so I have to be accepting of the situation.

  • lindseyl
    lindseyl Member Posts: 18
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    Hi James, thanks for explaining the concept. In your example, how would you usually tell when she actually will forget about the "therapeutic lying" answer and when she may stick with the answer? I'm worried that if my grandma actually can remember my answer and realize I lied to her, she will be hurt.

  • lindseyl
    lindseyl Member Posts: 18
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    That sounds like my grandma so much. She is physically very strong, great energy and no issue with muscle or bone at all. But she becomes super anxious about where my dad is all the time and calls him multiple times a day.

    May I ask why your mom cuts off communication with her sisters? Is it something that will happen with Alzheimer's in general?

  • lindseyl
    lindseyl Member Posts: 18
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    Thank you for sharing. I do realize that when I chose to record a video of my answer and play it to my grandma, I was trying to let her know that she was repeating the same question. Maybe subconsciously I wanted to blame her, or justify my not-nice dismissive response? Either way now that I rethink, this is not fair to her, sigh.

    How do you keep patient when answering the same question over and over? Any tip to make this easy for you and still respectful and caring to your LO?

  • dancsfo
    dancsfo Member Posts: 301
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    edited July 2023

    @lindseyl It's very difficult. It's so easy to say "be patient", but it can wear thin. Some hints:

    1. Realize that your LO just doesn't remember. It's not like your LO is lazy and did not try to remember. So each time it is brand new in their view. That can help rationalize for you. There's a chance that your LO does remember asking the question before, but has forgotten the answer. So they may be hesitantly asking, knowing well that you may be annoyed. You want to be supportive.
    2. Consider that it is similar to a child asking "Are we there yet?" repeatedly in a road trip. Most people don't get angry at that, right? But that case may be a bit different, since for a child, it may be a game or maybe even an attempt to annoy a parent, but your LO is not playing a game, and it is a sincere question. In either case, the person answering usually just goes with the flow and answers.
    3. You can try to answer differently each time. That's more for your benefit to try to add variety to your answers. It can be a variation of "Therapeutic Fibbing (lying)" mentioned be others in this post. Of course, the answer ought to be reasonable, but you can add some variety to reduce your own stress. https://www.aarp.org/caregiving/health/info-2023/therapeutic-fibbing-dementia-communication.html


    There are some other posts here on the same topic. One person said that if your LO declines further so no longer even asks the same question, one may long for the time when you did have to deal with that. A sad situation, but it can happen.

    If you answer in a dismissive way, then from your LO's point of view, it looks like you don't care. So that may hurt them.

    I realize it is painful for you, but I want to put myself in the LO's shoes too. If there is no way to remedy the situation, then the next best thing is to provide peace & comfort for your LO and yourself (and the caretakers)

    It's hard to know what is in their minds. Sometimes, they may realize they do not want to be a burden to you, and I want to show that I do enjoy answering and helping out.


    edit: replaced a link to rightathome.com which no longer works with a link to an AARP article on therapeutic fibbing.

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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    I hope this doesn’t make you cringe: what about answering the question in song. Trying to lighten things up for you to find a smile and maybe a laugh for both of you.

    Also, I agree, there may come a time that you so wish you could hear your LO say anything again, even the annoying things.

    Very sorry for your situation, it’s all very hard.

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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  • lindseyl
    lindseyl Member Posts: 18
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    Thank you for sharing the link on Therapeutic Fibbing. It explained the concept and how to use it very clearly, and looks promising. I think I was on the wrong path, trying to respond to my grandma like I would before she got ill, and my intention was to respect her, but it looks like it may not always be the best for her mood.

    I can’t even think about the day when she can’t recognize me anymore and can’t talk anymore. It feels so far away, and I have no idea how I’d handle that. :(

  • lindseyl
    lindseyl Member Posts: 18
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    Believe it or not, my dad once in a while tries to make jokes and create hilarious answers when responding to my grandma. But he exhausts himself pretty quickly since the questions repeat all too often.

    Did you try something similar with your LO? How did you make it work for both of you? I’d love to learn!

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
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    My brother cracked little funnies all the time to mom’s “word salad”. Gotta find laughter when we can.

    My mom and I had lots of laughs prior to this dumb journey we had to endure. She knew I was her person throughout even without being able to say my name. She also knew I am a goof. I’m a self proclaimed “dork” and “weirdo” and I own it. after all…“gotta own your weird”. I’m not sure she appreciated me saying that everyone is weird but whatev. My mom wasn’t an angry patient or too anxious for the most part. That makes a difference in this mess and of course it’s all relative. We’d laugh at ourselves when I’d say something like “somehow the two of us will get through this”. Or “not sure how we’ll make it but we will”. Or “between the two of us, we’ll get it done”. She could appreciate that kind of humor for a long time. Oh how I miss her smile and laugh, which she gifted me until her last week here.

    I can’t say she looped out loud as severely as your Gma does. I know she had repeat concerns daily. Her aphasia stopped her from talking sometimes until late into the disease when she talked non stop, even so, I couldn’t understand her words. I tried to answer or converse the best I could. That was one of my constant challenges in the 2.5 years after I became her primary caregiver. (Along with being activities director). It’s hard to compare this specific situation to yours. I did a lot of validating her feelings, worries and fears. I assured her I had her back and would take care of her. I made too many mistakes too. I apologized a lot. She tried to tell on me a lot… phew for aphasia…ROFL! JK!

    I presume this phase will mellow for you all. I’m sorry for this place in life for all of you. Wish I could be more help.

  • dancsfo
    dancsfo Member Posts: 301
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  • Ci2Ci
    Ci2Ci Member Posts: 111
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    I made a FAQ sheet(s) and laminated it. Tied it to a table beside the chair she spends the most time in. I would constantly remind my mother (build muscle memory) it was there as a reference for her if she got one of those memory blips. I'd suggest that she look up her question and read the answer first; more, if she wanted. Then ask me any follow-up questions.

    This gave her back some control, some independence. While she might forget things, she knew how to find the answer easily. I'd stress that even the best reference librarian has to look things up sometimes. It worked pretty darn well to reorient her.

  • Nancy B21
    Nancy B21 Member Posts: 14
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    It is so sad and so hard. Sometimes you just have to check out and think of other things and just give the verbal prompts. I miss my mom and know that if she could see how she does this, she would be so sad and embarrassed. It truly robs the patient's of their dignity. Having a hard day today.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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