He’s free

You were such an inspiration to me as you took care of your beloved husband through some very difficult situations. He is at peace now, and I hope you find your peaceful place as well. Blessings and hugs!

You are not alone. We share right now with you the pain of navigating the path to the next stage of your life. How very blessed you are to have an immense love for each other. He will live in your heart until you meet again. God Bless.

I have so admired the grace and humor with which you cared for your DH. Now that he is at peace, I hope those qualities will still help you and those around you. May you find rest and peace, my friend.

I’m sorry for your loss and the pain of this journey. I can sense the relief in your message that he is free and healed and in good company. He was lucky to have you.

Wishing some peace for you.

Oh, Buggs. So very sorry for your loss! You took such loving care of your DH through so many difficult moments. I am glad that he is free, and hope that with time, the good memories will return, and you will once again feel him walking beside you.

Dear Buggs,

I am so very sorry to hear of the loss of your husband and best friend. You have gone through so much over the past several years but also left us laughing over the exploits of your husband. I could not imagine how you kept a sense of humor. Darn...so many losses and so hard. I hope you keep in touch as you deal with this change in your life. You were an amazing wife and caregiver.

Buggsroo, I'm so very sorry. This is such a horrible disease, and you really went through so much. May you find peace and good memories in the days and weeks to come.

CStrope, I haven't been on here in a long time, but you and I communicated briefly. My DH passed October 18th. Is your husband still with you? I came back to the forum to try to get some relief from my grief. He was the love of my life; together 40 years and married almost 39. I had to place him about 6 months before he passed. He was so ravaged, mind and body. Luckily, I was able to be laying by his side when he passed, with our children with us. On hospice only 24 hours. I'm back at work and spend my nights going through all our memories and cherishing every photo, greeting card, wedding video, all his things, etc. While I am happy he is now with Jesus and his mind and body are healed and whole, I am beyond sad I can no longer give him my love on this earth; I had so much more I wanted to give him. And I will miss (and have been missing) the great love he always gave me. Blessing to you. Let me hear from you.

Yes I still have my DH home and I am still working full time from home. I can tell the stress is really starting to affect my health, so I will probably need to start thinking about placement in the coming months. They updated his diagnosis from EOA to FTD, and it makes so much sense. There are so many differences between the two. He has absolutely no ability to understand anything or accomplish even the easiest of tasks, but he still has this awareness of what is going on in life. That is my biggest fear, is that he is going to completely understand what is happening when he needs to be moved to a facility. He is still very healthy and eats whatever I put in front of him. We struggle greatly with changing clothes, showering, shaving, etc.... He still manages to do the majority of his own bathroom duties, but does tend to urinate in unusual places about once a week. Winter will be here soon, and I will feel even more isolated than I currently do. Thanks for reaching out.

I'm so sorry! Luckily my DH did pretty well at home with part time caregivers while I worked away until he started refusing to let them in or would be ugly to them; and then he started doing dangerous stuff (going outside at 1:00 am and opening up garage, wandered off one Saturday when I was sick with Covid for the first time, and was gone 5 hours before police found him!) That was earlier this year and the kids and I decided he needed to be safe 24/7. He had started to lose weight before placement and doctor said he was Severe Stage in March. Placement was hard at first due to the wrong facility/staff the first time, but then we got it right and I do not think he was really aware. He never asked to be taken home or questioned why/where he was at. The staff were wonderful to him, but he declined rapidly in his last 2 months at the facility. Severe weight loss (he weighed about 100 when he passed). When he was hospitalized, they discovered he had pneumonia, had aspirated, was dehydrated and had critical low blood pressure. He had been sleeping a lot and was pretty lethargic at the facility in the last months. It was a blessing he was hospitalized because we got him stable; all the kids came and we were able to be with him before hospice started; he passed 24 hours after hospice started. I am certain if he had not been transported by EMS he would have passed alone that night, and I don't think I could have lived with that. I will keep you in my prayers.