Tried to explain to DW what’s going on!
I had talk with DW about what’s going on and reasons for her memory loss , confusion and depression, thought went well when brought up 2 weeks later she looked at me like I had two heads. So so much for explaining this illness.
Comments
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Hi Charley,
I think you asked about this about a month ago and most of the replies recommended that you do not try to explain, because the disease makes it so your wife will not remember most of what you tell her, or hold on to new information.
Explaining to her that she has the disease isn't helpful. She has gaps in her memory and probably can't recall most of what she's said or done during the day.
Everyone here understands wanting to have their loved one understand why we need to help them, but usually by the time we get to that point they just don't have the ability to recognize the challenges they're running into each day. It becomes easier to work around their limitations than to try to make them recall something that they can't--the disease has damaged their brain so that there is no memory and they now lack the ability to understand new information well.
These videos might help you:
Stage 3: https://www.youtube.com/watch?v=TIkTO4d8YyI
Stage 4: https://www.youtube.com/watch?v=coiZbpyvTNg
Teepa-10 early: https://www.youtube.com/watch?v=pqmqC-702Yg
5 losses: https://www.youtube.com/watch?v=awBm4S9NwJ0
Anosognosia https://www.youtube.com/watch?v=5nw3YUDQJuY
Careblazers-How To Convince Someone With Dementia They Need Help: https://www.youtube.com/watch?v=ncKhXQtnyfI
Careblazers-5 mistakes to avoid: https://www.youtube.com/watch?v=rO50pVUOlbE
Teepa-multiple videos: https://www.youtube.com/playlist?list=PL2E2lPBsUeBjA1Utglo8q6yANAijEf8cX
Moderate stage: https://www.youtube.com/watch?v=6cZTgG6kDjs
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I always just use the words ‘ memory issues often come with old age’. Or I just leap to asking ‘what has you confused or depressed … using whatever words they used’. If they express concern about something, I explain it as part of aging for many people. I never use the words Alzheimer’s or dementia. They won’t remember and they will only get upset when they hear it.
I don’t even use the official words when I discuss my mom’s situation with my step-dad. He denies that his mom and brother had dementia, so he’s certainly not going to accept his wife has it. I do tell him that mom’s ’memory doctor’ said she will get worse if she lives long enough. I never ever discuss the fact that he’s now been diagnosed with it - he’s stubborn and paranoid.
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I agree with the points above. It may help if you remind yourself (and it's hard to accept sometimes) that your DW can't remember.
Perhaps say to yourself (not aloud!) "She doesn't remember things from 5 minutes ago", or whatever is appropriate, and it may make things a little less confounding for you, as a caregiver. That may make things a little bit easier for you, if you no longer try to convince your DW about these topics. So in my case, I worked to train myself, rather than trying to change or educate the PWD.
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My mom was a RN in her career. She actually got her diagnosis herself. Of course she knew what was happening in the early stage. I think it was early stage 5 when she was questioning what was going on. My brother and I were still tag teaming and traveling every other month to her home. I asked her if she knew what Alzheimer’s was, she said “no”. That was the last time it was ever brought up with her. When she subsequently questioned why she had a hard time etc… the response was something like “yeh we can all have trouble at times.” “Don’t worry, we’ve got your back”. “I’m sorry, it’s ok”. Those kind of conversations helped.
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It is very hard to understand what to do. We tried at one point to explain it to my mom. She took it ok until she read a few home medical book articles on Alzheimer's and then fell into depression. We don't talk to her about it any more and the 'books' disappeared.....Here are a few articles about some of her, and our journey....best of luck to everyone....
http://simplebender.com/2023/10/10/joyinalzheimers-episode-1-harsh-reality/
Merry Christmas.....hang in there
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Ty. Thought I’d give a shot, that’s all we have hope!
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My husband has issues with recognizing people. I tell him as we get older some parts of our brain don’t work like they used to. It’s just the way it is. He accepts it. He is 76.
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Your blog articles chronicling your family's journey are incredibly poignant, insightful, and even amusing. I see so many similarities to my journey with my 92-yo husband. Thank you for posting them here. I'll be following your blog.
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I will say one thing the word dementia/ Alzheimer not term I’ll use as now in movies tv and commercials they mention it , makes me uncomfortable not sure about DW.
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My mom would sometimes say her memory 'attic' was full and so she had trouble remembering new things. We would go with 'foggy memory' if it ever came up.
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my mom and I are on an absolute island Oasis. it is me and her against the world... I have read and studied, thought and rethought... one poster said the cavalry is not coming, no truer words could be said here. she don't know what she don't know (doctor's case managers words for some time) I live a mile away, spent night before and today with her. I have always been very close with folks, lost dad 10 years ago on the 21st to pancreatic, I will go down with my moms ship but today was a real tough one. had a palliative expert from her doctors office out week and a half ago, I knew the answer but was surprised how fast and strong she expressed how concerned mom could not live solo, again knew the answer but its just me... today mom and I were 'talking' and she didn't even remember the nice lady coming out but said she was looking for a paycheck saying such things...enough 'words', dad was a master communicator, I love words. words don't work, I get it...PAIN CITY, I love my MOM2
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She probably doesn't remember the conversation. When my husband gets confused or forgets things. I just slowly try to help him remember what he was going to say. Sometimes it works sometimes it doesn't work. If he gets confused I just simply try and lessen his anxiety. With calm reassuring tone of voice. That usually helps. He is in the ES of dementia and his progression is happening slowly. Obviously I realize that can change very quickly.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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