FTD - FrontoTemporal Dementia Staging Tool (by Dr. Tam Cummings)

ButterflyWings · February 20

Just ran across this staging tool and thought it may be helpful for some dealing with FTD.

Jeanne C. · February 20

Thanks BW. May I ask where? I'd like to see some of the notes supporting it (like, do the x's mean only for or not for?). This is the first tool I've seen specifically for ftd, so very interesting and helpful!

Jeanne C. · February 20

PS. I'm adding to the new caregivers group and the FTC group

ButterflyWings · February 21

https://alzconnected.org/discussion/comment/198993#Comment_198993

Here is the link to her website where I downloaded the tool. I also looked through it before posting, but could not figure it out! Hopefully some of the videos that you can access by Googling Tam Cummings FTD can help. Sorry if I added to your confusion by posting the tool without any explanation. (I don't know anything about this dementia type).

https://www.tamcummings.com/tools

Jeanne C. · February 21

https://alzconnected.org/discussion/comment/199023#Comment_199023

Seriously, it's great and appreciated. It's been a struggle trying to find tools specifically for FTD. So much of the resources available need to be adapted from alzheimer's.

michiganpat · February 21

It looks like it could be useful if only I could figure it out.

ButterflyWings · February 21

😂 I know... maybe we should write to the good Dr. I will review a couple of her videos to see if they maybe explain the grid.

Here is some other information in the meantime:

...there are generally seven stages of FTD that patients and their families can look out for.

Stage 1: Early Symptoms. ...
Stage 2: Language Impairment. ...
Stage 3: Executive Function Impairment. ...
Stage 4: Movement Disorders. ...
Stage 5: Severe Behavioral Changes. ...
Stage 6: Severe Language Impairment. ...
Stage 7: End-Stage FTD.

https://www.ahcg.co.uk/7-stages-of-frontotemporal-dementia/

AND

https://pubmed.ncbi.nlm.nih.gov/20479357/

Jeanne C. · February 21

maybe we should write to the good Dr

I sent an email through her site to see if we can get some clarification.

Jeanne C. · February 21

So Dr. Cummings just called (!!!) and explained that the x's indicate that the behavior is most associated with the type of dementia in that column. She pointed out that as dementia progresses, they become more similar to one another.

jenniferledet · April 11

https://alzconnected.org/discussion/68231/ftd-frontotemporal-dementia-staging-tool-by-dr-tam-cummings

Thank you, very helpful

FTD - FrontoTemporal Dementia Staging Tool (by Dr. Tam Cummings)

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