I Am On My Own Now
I continue to go to this site numerous times a day - the empathy and experience of the participants here is the best support I have found. I am in a place now where a lot of you have found yourself in - I'm alone in this horrible ambiguous grief cycle called Alzheimer's.
Bill posted "The Calvary is not Coming" and I read this over and over. He posted this below:
After reading this, take a deep breath, and say “I am on my own, and I am doing the best that I can.” I really hope this makes you feel better. This is a horrible situation to be in, and sometimes realizing that you are on your own is just what you need to hear.
I think I have reached the point of realizing I am on my own......and it hurts to the core.
The kids want to know how Papa is doing. You tell them and they don't want to hear it. I'm exhausted from hearing "You have to focus on the good days". Who among us caretakers don't focus and live for the good days. I also hear "Papa looks like he's doing fine". My response to that wants to be walk in my shoes each day. After 3+ years of this, I am ready to just be on my own and not bother any of the kids with how Papa really is. They really don't want to know.
This discussion forum is probably the lifeline for a great number of us. Thank you for being here and understanding what it's "REALLY" like to live our nightmares.
Prayers to all of us.
Comments
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I'm sorry you are hurting.
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LJCHR, the realization you are on your own is hard . We understand and are here for each other . The grief is real and I am sending (((hugs))).
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This forum is a lifeline, for sure. Keep posting & put yourself first.
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Being on our own is such a mixed bag. On one hand, it allows you to give yourself permission to do what needs to be done without worrying for other opinions. On the other hand, there is no one who can lift the other side of the board you're carrying. I try to focus on the first part. Bill's post lit a fire under me that forced me to get my $#!+ together. I was really floundering before that.
But it's lonely as hell. And really hard some days. Take care of yourself. Keep posting. We're right there with you.
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Tks for posting, so appropos for how I’ve been feeling. Yes I guess we are alone. No one truly knows what it’s like unless you are walking the walk 24/7. I’m still fortunate in that DH takes care of his daily needs. Memory conversation not so good. This forum has definitely been a godsend!
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Amen , up to 2:00am last night . just couldn't sleep . Worrying about her and whats next . Am i going to be able to get though it. She at late stage 5 .
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Thank you for your concern. I appreciate the response.
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Hugs appreciated. Thank goodness we have the support of each other.
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Thank you. I appreciate your support.
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Agree it is lonely as hell. Thank goodness we have the support of each other. Thanks for our response.
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This forum is a godsend. And no one does know unless you walk it. Thank you for your response.
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I was up part of the night, too. The worrying about "what's next" is something I can't get past either.
I thought the hardest thing I would have to endure was when my first husband died suddenly of a heart attack at the age of 58 (I was a 56 year old widow). But, I'm changing my thoughts on that. This surpasses the hardest thing I've ever done.
We will get through this - we just put one foot in front of the other. My DH is early stage 5 and the years since diagnosis has flown by.....and they haven't flown by.
Keep posting. I have been in this group a little over a year now and it is the best support we have.
Thanks for your response.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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