Have any questions about how to use the community? Check out the Help Discussion.

Down Syndrome with early onset dementia

Hi! My daughter, born with DS is 31 years old and started showing signs of dementia long before I realized what was happening. I had planned for so many different problems, but not once did I think this would be it. As I watch her decline, it breaks my heart and all I can do is try to keep life as normal as possible. My Mom passed in 2017 after living with me for 5 years, succumbing to lewy body dementia, and part of me feels like I just don't know how to go through this all again. Soo, anyone else out there with a similar situation? Wishing peace and comfort to all on these forums.
Tagged:

Comments

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more