Down Syndrome with early onset dementia

Hi! My daughter, born with DS is 31 years old and started showing signs of dementia long before I realized what was happening. I had planned for so many different problems, but not once did I think this would be it. As I watch her decline, it breaks my heart and all I can do is try to keep life as normal as possible. My Mom passed in 2017 after living with me for 5 years, succumbing to lewy body dementia, and part of me feels like I just don't know how to go through this all again. Soo, anyone else out there with a similar situation? Wishing peace and comfort to all on these forums.
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Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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