My husband is only 56 and probably in stage 4. I understand that it's important that I research options for memory care now (or soon), because things can decline abruptly with early-onset AD. I got a list of "care managers" from the Alzheimer's Association hotline folks but they were careful to tell me that they "don't endorse" anybody on the list. The list is lots of just individual's names and I guess I worry that this is an area where there could be potential scammy behavior…?
I have no idea why I think that. Maybe I'm being paranoid. Bottom line is that I'm confused about how in the world to find the best possible place for somebody who is still young AND that will accept Medicaid, since we don't have the means to pay out-of-pocket for MC. Seems like sort of a unicorn situation I'm in.
Does anyone out there have experience/advice about using a care manager? Are they expensive? How do I find an actual referral for one that is good?
I heard about a local memory care facility that seems incredible. It has a shared campus with a montessori school, so that part of the programming is cross-generational with children and elders regularly interacting. They do not accept Medicaid (perhaps not surprising?)…
Feeling lost. I will so appreciate your input.
Molly