Death watch

I have been thinking of you often, wondering how it is progressing and how you are holding up. You have been a rock for many of the people here, and I hope you are feeling some strength and support too.

M1- I am relatively new here but want to add my voice to the many loving others on this site who are so clearly sitting with you in spirit as you so lovingly sit with your partner. Wishing you and your partner peace in this moment!💕

@M1 Just checking in with you. Are you getting any rest? I noticed the timestamp on your post on my thread . 1:28am. Sounds like you aren’t sleeping well.

So, so sorry that you and your DW seem to be in a "stalemate" with the dying process. Yes, you still have her with you, but I know it must be tearing your heart into pieces to have to watch this. Simply hoping that something goes your way soon. Take care.

M1 I have often found support from this site but the most positive thing to come from it was a response to my first post. It was from a woman who lived in my same town so we agreed to meet for coffee. That was 7 years ago and we talk on the phone at least three times a week. We have been there for each other thru death, cancer, family divorces, births plus all the associated dementia issues. I wish there was a way for a phone tree to be established so people would have the opportunity to actually talk to each other. My thought is you can never have too many friends and even hearing another voice for 15 minutes does wonders to boost your spirits. Thoughts?

@M1 I totally relate to the not sleeping. If you noticed, I posted my comment to you at 4:46am. I wake up multiple times a night and at least half of them mean I’m awake a half hour or more. The result at the end of the day? It’s 8:24pm. I'm in bed, checking out things on my phone, preparing to read my kindle too. Probably won’t try to sleep for a couple hours. I will wake up around 7AM. Spouse is in bed too. Asleep already. He gets up around 4am.

As you tell others, just do what you can. Some days that means you get something done. Other days, it means the TV or the Kindle are the our friend for the day.

M1, I, too, am usually up very early in the morning but I don't seem to get as much done as you do. If I get one thing crossed off my list in a day it's a win. Hang in. I know this is hard. Sending hugs.

Brenda

I'm an introvert too (and need my down time) but I would love to find some phone-friends close by in Central Texas. If interested in a phone-friend (either man or woman), please send me an email thru this site!

Thinking of you and a soft hug being sent your way.

J.

P.S.:

Years earlier, when this site was still fairly young, open contact was put into play, BUT; it presented unforeseen problem issues with people who were not on the positive side of the ledger in different ways. Very disappointing; we gave up and went back to our usual online messaging and things returned to safer and saner. As said, very disappointing. Always someone or a few lurking, looking to take advantage or to become a very negative influence - sometimes seems like that sort comes out of the woodwork.

I find this site priceless and it helped me keep my head above water when I was in the throes of my experience of my LO with dementia.

J.

This part is hard, @M1 . I am so sorry for both of you. Every single aspect of your partner's progression has been traumatic.

With my dad, I only became seriously concerned that death might be imminently possible about 4 days before he died. This spared family the situation in which you find yourself. With my aunt, it was more as you describe which suspended the lives and routines of those family members on the ground (mom and I were several states away caring for dad at the time) supervising her care for her for weeks. It was a painful and protracted period of emotional "on-call".

HB