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How long does it take for a loved one to adjust to memory care

It has been 5 weeks since my DH was placed in memory care. Every time I go, he says things like, "when can I go home, I want to be with you, I want you to take care of me." I hate this. I say things like, "the doctor says you need to be here to feel better." It breaks my heart so much I don't want to go. I go home depressed. I keep hoping he will acclimate more, even forget who I am would be fine. It makes me feel so guilty but I know I can't bring him home.

Comments

  • CampCarol
    CampCarol Member Posts: 100
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    I’m so sorry this is happening to you! This is my biggest fear and why I haven’t yet placed DH (although I think the time is getting closer). Have you spoken to the staff at MC? How is he when you’re not there? Maybe you need to space your visits out a bit more for now?

  • easy23
    easy23 Member Posts: 219
    Fourth Anniversary 100 Comments 25 Care Reactions 25 Likes
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    My DH has been in MC for 2 1/2 months and still talks about going home. I don't get too upset because he talked about going home even when he WAS home. I tell him that the house is being renovated so he has to stay where he is. The longer he's in MC the less he asks.

    I think it's a good idea to ask the director at MC to see how he's doing when you're not there. He may be ok. Give it some time. Try to keep busy so you don't think about it too much.

  • Denise1847
    Denise1847 Member Posts: 863
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    Thank you. I will talk to the staff and the nursing director.

  • Denise1847
    Denise1847 Member Posts: 863
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    Thank you. This is the worst disease tearing people up day by day with no end in sight.

  • SDianeL
    SDianeL Member Posts: 1,038
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    my husband asked to come home every visit for awhile. Just keep repeating the fib. He won’t remember it next time you visit. He is probably doing OK when you’re not there. I also cried on the way home every time I visited. It’s the guilt you’re feeling. Hugs.

  • Denise1847
    Denise1847 Member Posts: 863
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    Thank you. I am amazed at just how our mind can be logical and know that the placement is the only option for both of us. Yet, the heart/emotions cause so much pain and guilt. It is a total mind warp. I am hanging in there. God bless you.

  • Dio
    Dio Member Posts: 721
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    Most residents who have some lucidity will want to go home, although some may have a different definition of what/where "home" is. One resident in my DH's facility practically packs his bag daily and waits by the front door demanding to go home. Blessed are all the staff who wait alongside him until he settled down. It's been almost a year for this resident. My DH settled in rather quickly. It's probably due to all the prepping I managed to instill in him that I was setting up his long-term care in case something should happen to me, to comfort him in knowing that he would not become homeless. In my first visit, he cried and asked if I was there to take him home. I broke down and was tormented. Now, a year and a half later, he's quite settled in and seems to accept that this is his place of residence, although not necessarily his home.

  • Denise1847
    Denise1847 Member Posts: 863
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    Thank you Dio. This has been torturous. I struggle every day with guilt and sadness. This disease just keeps twisting every ounce of joy and peace out of us as it moves from one phase to another.

  • lenbury
    lenbury Member Posts: 23
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    I ended up bringing my wife home after 12 days in memory care. I think the placement was premature since I was desperate. I was hoping my wife would make friends but most of the residents were non-social. I spent 4 hours there each day and realized that her quality of life would be much better at home (with help from health care aids). When I spoke with the director and nurse about my decision, the nurse said she has seen it take 6 months for the adjustment to be complete. I made the right decision then and I am more aware of what to loom for if memory care becomes inevitable in the future.

  • JoanneQ
    JoanneQ Member Posts: 1
    First Comment
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    My husband has been in memory care, 10 months and 10 days today. Still incredibly difficult for me. I visit every day for about five hours because he wants me there. He still knows who I am but doesn't remember anything about the life we shared.

    The only things he knows is that he loves me. I’m beautiful and he would like me there 24 hours a day.


    I’m lucky he’s so sweet and loving but it’s also painful. I cry every day.


    I think he is adjusted better than I have.

    I’m profoundly sad about what this disease is doing to him.


    part of me thinks I should be adjusted to this new reality. It helps to read others comments about how difficult this is.

    It’s the kind of thing you can only really understand when you go through it.

  • Carmen M
    Carmen M Member Posts: 39
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    Thank you all for these posts. I needed to hear, read all that was said. I am thinking about placing my LO in memory care next year. My emotions are just scattered all over the place and my heart aches just thinking about it. I came to the realization that it would be beneficial for my LO to be in a MC place even though I would be lonely, lost, crying everyday.

    Bless us all through these challenges

  • aquistad
    aquistad Member Posts: 3
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    There may be a few different things that may help. Maybe request a care conference with the management team/nurses at the MC. They may be able to suggest ways to redirect him since he is so high functioning or have him connect with other residents that are at the same level cognitively as him. I work in a MC and we have had residents that have adjusted well on day 1 and others that it has taken a couple months so it can vary. We have recommended to our families they not visit the first week because it helps their LO get used to our community, associates and routine. Sometimes that works and sometimes it doesn't. Definitely start by talking to the team there!

  • Denise1847
    Denise1847 Member Posts: 863
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    Thank you. I talked to the care team and they suggested I take him out for a meal or a dessert every once in awhile. It worked the first time. He was delighted. The second time, he asked about going home. I cried all the way home that day.

  • Denise1847
    Denise1847 Member Posts: 863
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    Thank you. Most of the residents are more advanced than he is. They do take him to another cottage where the residents are more lucid. I have also signed him up for a daycare program that the more lucid residents attend. I am hopeful it gives him more stimulation. I cannot imagine bringing him home now. When he wants to go to the bathroom in his MC room, he doesn't know where the bathroom is and proceeds to walk out of the room. He seems to listen to the staff much better than to me. I feel he is safer in MC as I could see him trying to walk up our stairs and falling as he really believes he can do things that he cannot.

  • Denise1847
    Denise1847 Member Posts: 863
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    Last Christmas I had a premonition that it would be our last Christmas together. My DH kept saying about a month before he got COVID and then eventually had to go into MC that he was sad because he didn't want us to be separated, and he knew that was going to happen. It may just be coincidence, but I find these phenomena strange. The holidays are going to be the worst. I will go through the motions this year, but my heart is not in it. I just want to get through them without more trauma.

    I recently moved him into a bigger room, and it triggered another round of questions about why he was moved into a bigger room and not home. Hence, another ride home crying all the way.

    All I know is that caregivers who survive this long journey have to become the strongest, most patient and caring persons because we have been through this ordeal. I wear my emotions on my sleeve seeing the pain and suffering of others and I could never see it before.

  • ST_niece
    ST_niece Member Posts: 16
    Second Anniversary 10 Comments
    Member

    I brought my aunt to live with me after 3 years of her being in two care homes. She never understood why she was there and was frustrated that they wouldn’t let her out. Though the care homes were nice, she missed having independence,

    I lived far away and would visit her in her care home and stay overnight for several days. The extended stays gave me more insight into her experience. (I recommend that everyone stay 24 hrs or more in a MC if they can.) It was a challenging 6 years having her with me, but I’m glad I did it.

  • Mint
    Mint Member Posts: 2,808
    Eighth Anniversary 2500 Comments 250 Likes 100 Care Reactions
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    My mom has been in assisted living a little over a month now . My mom is much more cooperative with the staff there than she was with me. She is happy there for which Im thankful. I miss my mom, i have cried a few times. Reality is though that my mom and I both are doing better this way. She gets a lot of attention, is entertained by sitting and watching everything coming and going. I know longer have to worry about a lot of the challenges I had trying to care for her and me at the same time. Each one of us is in our own unique situation and wish the best for each one.

  • __Dolly__
    __Dolly__ Member Posts: 28
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    Member

    I am in the same boat: my DH and I vowed to let him stay at home until the end. I’ve worked in MC and AL and I know that regardless how beautiful the facility is, it’s still not the same as being at home.

    We live in a condominium building and the 24/7 doorman security has given me comfort that we can stay here.

    Hugs to you and your wife.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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