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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.

After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden.

Most people find themselves thrust into this nightmare completely unprepared and ill-equipped, just as we were. Helping others through this means the world to me and I would be eternally grateful if you read it and/or shared it in any capacity possible.

Thank you so much,

Darren Keith

CLICK ON LINK BELOW TO READ:

https://medium.com/.../living-with-alzheimers-efccf45e410b

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Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,234
    1000 Comments 100 Care Reactions Third Anniversary 100 Likes
    Member

    I like that essay. So true…

    One thing that a lot of our LO's have is the anosognosia. In their world, it's all good. Meanwhile, the rest of us are left to deal with the fallout.

    one example: MIL has an idea of what year it is - around 1970 something… She's fine with that. It has been rather cold this December of 2024 - she says it is a rather cold springtime. We have to make her wear her winter coat to the doc instead of just a sweater.

    So - I do agree with you. 'this' robs our LO of so. very. much! But it is us who can help them keep their dignity. and we grieve, because we miss who they were.

  • AlzWife2023
    AlzWife2023 Member Posts: 338
    100 Likes 100 Care Reactions 100 Comments 25 Insightfuls Reactions
    Member

    Thanks for writing this and sharing it. I read it and it made me see certain things more clearly & it made me feel less alone! Good work!

  • dancsfo
    dancsfo Member Posts: 301
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    Member

    Darren,

    You wrote a good essay. Reading this early on is so important, so I will encourage others to read it as early as possible, before they start to experience the problems first hand.

  • forbarbara
    forbarbara Member Posts: 192
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    Member

    it took me a week or more to get up the courage to read your essay. My PWD’s death was too raw - it hasn’t even been a month.
    Your essay is such a strong validation of what we experience as caregivers. It captures the love along with the loss. Thank you for putting words to such powerful emotions.

  • fmb
    fmb Member Posts: 486
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    Member

    Like forbarbara, I had to wait to read your essay. I wept when I read it.

    My father died from Alzheimer's in 2019. We had been estranged for years. I did not get the opportunity to reconcile with him, something I will always regret. My mother is now in a memory care facility 1,000 miles away with Stage 6 Alzheimer's. She no longer knows I exist. She is in hospice care. My husband is in late Stage 7 Alzheimer's with other co-morbidities, in hospice care and living in an assisted living facility. He was not diagnosed until after a stroke in June 2023. By then he was already in Stage 6. I was his sole caregiver without an emotional support network of my own. Like your mother, the diagnosis was a devastating shock. My physical health suffered greatly, and I came dangerously close to a psychiatric breakdown. I still struggle at times as I watch the essence of this wonderful man disappear like vapor, leaving only the husk of the physical body behind to linger (for how much longer?) until God calls him home. When I think I have grieved as much as I possibly can, I realize that the grief of finally losing him physically will be even greater.

    Your essay should be required reading for healthcare providers everywhere and for the loved ones of the newly diagnosed. I wish I had known all that you wrote 15 years ago.

    Thank you for sharing your journey.

  • LBC83
    LBC83 Member Posts: 14
    10 Comments
    Member

    Like the other commentors, I much appreciated your great essay. Not exactly the cheeriest story to read as we near Christmas, but sometimes the truth is hard to read. Both my parents had dementia, and my experiences were very similar to yours. In particular, the part about recognizing that you have essentially lost your parents long before they actually die from the disease. Knowing my family history, when I noticed my own small memory issues, I elected to get tested. Long story short, I was diagnosed with MCI. I'm taking Leqembi to slow the progression, but we all know how this story is going to end. Today, I was trying to do some long-term financial planning, budgeting for the high monthly fees for memory care units I will eventually require. Not exactly the happiest topic for this Christmas season, but I'm trying to be a responsible person with early AD.

    One minor nit regarding your essay: I get an error when I click on the link towards the end of your essay to the website thesimpledollar.com, stating that the domain name is for sale. Maybe the following is another option: https://www.alz.org/help-support/caregiving/financial-legal-planning/paying-for-care

  • DarrenKeith
    DarrenKeith Member Posts: 15
    Second Anniversary 5 Care Reactions 5 Likes First Comment
    Member

    Thank you so much. I'm sorry for what you've been through.

  • DarrenKeith
    DarrenKeith Member Posts: 15
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    Member

    Thank you so much. I am so glad to hear that my essay helped you…that means a lot. Sending all my best…

  • DarrenKeith
    DarrenKeith Member Posts: 15
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    Thank you. I really appreciate that, and I agree…the earlier someone reads it, the better. Don't hesitate to share the essay with anyone you think it might help…

  • DarrenKeith
    DarrenKeith Member Posts: 15
    Second Anniversary 5 Care Reactions 5 Likes First Comment
    Member

    Thank you so much. And I am so sorry. Sending all my best…

  • DarrenKeith
    DarrenKeith Member Posts: 15
    Second Anniversary 5 Care Reactions 5 Likes First Comment
    Member

    Thank you so much. And I am so sorry about your situation and experiences. Most people have absolutely no idea how profoundly traumatic this is, but we do. Sending all my best…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more