Walking on eggshells
Dh has young onset and I feel like I'm losing my mind. Feels like I'm constantly walking on eggshells so that I don't say or do the wrong thing. And like I'm constantly running interference between him and two oldest kids. He has very little patience with them and says that they're constantly giving him attitude or talking to them wrong but honestly they're not doing anything that not age appropriate (mid to late teens). It honestly feels like the only person he wants to be around is the youngest (elementary age) kid. Tonight for example he said something kind of rude to me and said it was just a joke and when I said something neutral back he became extremely irritated and mad at me. I just don't know what's going on. I mean he's still working and independent but it seems like there's a shift in personality with me at least or am I the problem?
Comments
-
Talk with your doctor about the shift in personality. Not sure what meds he may already be on, but they should be evaluated and you may benefit from something additional. This is not you or the kids, it is him, but I'm sure he doesn't realize or acknowledge. My DH has FTD Bv early onset and we have a 17-year-old son so I have been in a similar position - although for us, it is more what he says talking to others that is hard for my son to see/hear/be around. Everyone says, "it's the disease talking" - that may be the case, but getting verbally beaten down by the disease is not fun or sustainable. I have, on occasion, had some success in talking with him about how we all need to help each other - and then I gently remind him of that when it starts to turn again. And, make sure your kids are in the loop (to the best of their understanding) as to what is happening to Dad. My son still wants to correct Dad all of the time so he'll "learn." I have to remind him that this isn't going to get better, just let it go, redirect and move on. On the upside, this disease has many, many phases and forms and I have found that my DH has progressed through some of the ones that were intolerable. Hopefully, some of this will also pass with time. My heart goes out to you and your three kids who have to grow up with this disease in their lives. Hugs to you!
2 -
"Everyone says, "it's the disease talking" - that may be the case, but getting verbally beaten down by the disease is not fun or sustainable." I am really feeling this today. MY DH does not have EO—just regular Alz but he's a much older dad —our youngest is 23—& he's been feeling the effects of his father's indifference since childhood I think, long before the diagnosis. He was the first to say outloud that his dad "has no social skills." He still wants to correct dad, too, and he gets mad/sad/frustated—but then he realizes there's no point.
Since I am caregiver I've learned to give up hope basically and just roll with it, but it can't be good for my health —especially mental, emotional, and intellectual. I keep wanting to go back to work or do another degree and neither is feesable with caregiving, but I realized yesterday that my desire to work/study is my will to live and my need to keep learning & growing exerting themselves.
Being home all the time and being a caregiver to an Alz patient can be deadening mentally. I feel beaten down too. Not sure how to sustain this level of caregiving for (possibly) years or even decades to come. It's a real B****!
7 -
Yes, it is! And good help is hard to find.
1 -
I also struggle with "it's just the disease talking'. My DH (I think I have to change that to PWD) has always been mean, demeaning, stingy and rude…now he is that on steroids. I have always thought that if he kept treating me the way that he does that at some point I wouldn't love him anymore…I stopped liking him years ago. Well, I think I'm at that point now. I just can't take being called an 'A'hole' with finger pointing and a horrible look on his face anymore. As we all do, I do everything for him, and he appreciates nothing…he is getting worse everyday and I am getting more burned out. Basically I hate getting up to face another day and just look forward to it being over…no life at all. I feel stuck, and like there is no way out of this situation…just have to go with it until the end, I guess.
5 -
@Bailey's Mom if my DH / PWD treated me that way, I would look at placement. Look into it. See an elder lawyer.
1 -
I did see an elder lawyer recently and some suggestions were helpful…we have no children or heirs, so most of the usual go to strategies…like irrevocable trusts …don't make sense. We have separate money and the lawyer is going to draw up new DPOA's and a will for me… PWD won't make one…if he did, I would have to draft it online as he would never pay a lawyer to do it. Florida is a 'Spousal Refusal' state so will use that if and when he needs a medicaid paid nursing facility. If he continues to be as nasty and verbally abusive as he is I will look into placement in a MC/AL although he has anosognosia and will fight it. He would probably leave and try to buy a 'big sailboat to live on and cruise up and down the east coast of FL' (I won't do this with him so am preventing from enjoying his last years!). Of course, he isn't capable of handling such a scenario so it would be short lived. I feel very selfish since most of the people on this forum seem to be much more loving and giving than I am! I think I am just angry and sad for having to give up all of the things that I'm interested in and basically not having a life for my last few years.
4 -
Sounds like you’ve got things under control. I think you’re perfectly justified. It’s a complete sacrifice even for a partner who has always been living/generous. And done were but turned nasty or unmanageable due to the illness. Have you considered guardianship?
0 -
He would never consider guardianship…doesn't think anything is wrong with him…I am the problem. I think I will have to choose between giving up on life or divorce. Not much time left, so I don't think I have the energy to fight him over a divorce.
0 -
I think the court can grant guardianship for exactly that reason: he’s can’t make rational decisions.
Good luck to you whatever you choose, but don’t give up!!!
1 -
I am experiencing the same with my DH. He connects best these days with our youngest grandchild who is 8. I found it interesting that your DH is also connecting best with the youngest. They sometimes seem to be on the same wavelength. My DH undergoing a big personality change from being the kindest person I knew to one of the most critical. I ignore it when I can but that isn’t always possible.
I wish I had an answer for you. I thank you for posting this and will eagerly read all the replies.
0 -
if you haven’t already please read the book “The 36 Hour Day” and have the kids read it and discuss. It takes practice. I had to start looking at my DH as my patient and me his nurse. It too my emotions out of the picture. People with Alzheimer’s have anxiety. They are losing control. Their world is falling apart and you are their anchor so they take it out on you. You can’t reason with someone whose reasoner is broken. He should retire on disability or he may be fired. Many in early stages compensate and cover up their cognitive loss. We know how you feel. It is the disease. My daughter asked me during the time my husband was being tested was it dementia or him being his usual a-hole self. I answered maybe both? Hugs.
4
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 487 Living With Alzheimer's or Dementia
- 243 I Am Living With Alzheimer's or Other Dementia
- 244 I Am Living With Younger Onset Alzheimer's
- 14.5K Supporting Someone Living with Dementia
- 5.3K I Am a Caregiver (General Topics)
- 7K Caring For a Spouse or Partner
- 2K Caring for a Parent
- 165 Caring Long Distance
- 110 Supporting Those Who Have Lost Someone
- 11 Discusiones en Español
- 2 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer de Inicio Más Joven
- 9 Prestación de Cuidado
- 2 Soy Cuidador (Temas Generales)
- 6 Cuidar de un Padre
- 22 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 6 Account Assistance
- 16 Help