How to handle leaving DH at MC
My DH has severe Alzheimer's and LBD and I anticipate moving him to MC in the near future. My question is—specifically—what to say to him, how to handle the day of the move. A few day ago, I saw a discussion on this site where the author attached a written description of how he handled it but of course I can't find the discussion now. I would appreciate any concrete suggestions of how to and how not to handle the moving day. TIA.
Comments
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I was completely tied in knots over what to say and how my DH would react. On the morning of the move, I calmly told my DH that we were going to be going to a residential place where the doctor wanted him to stay for a while to get more help with his memory problems. He responded, "interesting." Our two kids picked us up and we made small talk on the drive. After we met the staff and they introduced him to other residents, we left and said quick good byes. I had been imagining a very angry scene complete with him screaming at me and saying I had abandoned him. None of that came to pass. He has been in MC for two months and has made a successful transition. Though his Alzheimer's journey has included lots of agitation and angry outbursts, he has been mostly peaceful and redirectable when he's confused or getting irritated since he's been in memory care. I wish you well in your transition. It is heart-wrenching.
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Thank you; your approach is one I hadn't thought of and makes sense. And, boy, do I understand your comment about "tied in knots." I'm tied in knots about whether to move him, when to move him, is it too soon, is it too late, and what to say/do on the day of. I'm the sort of person who likes to have a plan and this disease makes that difficult.
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I made up a story that I needed knee surgery and she would have to stay in a facility until I recovered. The drop off day and day #2 went ok. On day #3, she became convinced that I had died and the staff were covering it up. The MC staff asked that I come to show her that I was still alive. When I got there it became apparent to me that I just needed to tell her the truth and apologize for lying. She was really mad at me for about a week but is now (33 days) starting to settle in. She has basically forgotten all about the story I made up.
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the memory care facility will assist if you ask them. The nurse at the facility said do not tell him. She said tell him we were going to lunch. My daughter went with us. She said she knew the nurse. The nurse was waiting in the dining room at a table. My daughter and I each made excuses to leave the table and left without saying goodbye. The nurse told him I had to go in the hospital. I did have to have chemo for cancer but we didn’t tell him that. She advised not to visit for 2 weeks so he could settle in. When I visited the first time he asked when he could go home. I said when the doctor said so. He accepted that.
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Also if anyone can point me to the article I mentioned in my initial comment, it would be deeply appreciated. TIA!
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Is this perhaps the comment you are looking for??
originally posted by @harshedbuzz
how did you get your loved one to memory care? Apparently pretty much no one wants to go.
I drove him and my mom under the fiblet that his was a second opinion to make sure he was getting the best possible care.
How did you get them in the door and what did you tell them when you dropped them off? How many people knew about the plan? I'm concerned my parent will call me everyone including people we haven't told about the placement.I had arranged arrival for "snack time" when residents would be having ice cream and then seeing a movie. The social director met dad at the front desk and whisked him away, shooing us to the business office to sign some paperwork.
I informed his brother of the pending move. He, of the every-6-weeks-30-minute-drive-by-visit, played devil's advocate with me. I shut that down. I also informed my niece who is mom's successor agent and third in line for dad after me.
People in MC don't need phones, so we didn't provide one for dad. If he needed to make a call, staff would assist.How long did it take for them to settle in? From what I have seen during memory care tours is that people look content so they must have adjusted.
I'd say about a month which surprised me given dad's paranoia and difficult personality.
Is there anything one can do to help wthem adjust?
Since our ruse for placement was that it was to be a temporary rehab hospitalization on doctor's orders, we did not go the oft suggested route of making his room as much like home as possible. TBH, we had replicated the decor of his beloved house in FL when setting up the apartment to which I moved them north and it didn't seem to make any difference in helping him feel "at home" and months later when I moved them into a home decorated in Santa Fe style he thought he was in his house in FL.
We went for a kind of Holiday Inn vibe in a bid to make it seems like a fancy rehab. Over time, we did bring in a couple family portraits; one resident routinely took the picture of mom as a young woman so I was glad that was a copy and not the original. After he died, I was relieved to only need to carry a couple boxes out to the car. On the way home I passed a family cleaning mom's room out and dealing with a queen bed, dressers, a curio cabinet and U-Haul worth of boxes.
Some facilities suggest avoiding visits for a 2-4 weeks to give your LO time to settle and bond with the new caregiving team. We ignored this advice and those first visits were brutal.What is the appropriate reaction if they are extremely mad at their loved ones? What if this persists across time?
One thing that helped when dad was so angry, was to limit visits with him to public areas of the facility. He had just enough on the ball to showtime if staff were around, so we took advantage of that. Another tactic is to bring a friend or family member she might be more inclined to behave around. One member here, M1, whose partner took longer to settle in than anyone I've ever heard of, initially sent friends to check on their LO because they seemed to be a visual trigger for upset. That was very painful for M1 but kinder for the partner.
When dad started to ramp up into agitation or aggression, I/we ghosted him. I made an excuse to use a bathroom or get something from my car and kept on walking. I found it useful to always brings something— a snack, a magazine, lunch. I avoided having mom visit alone at first because he was a little better behaved around me and because I was more adept at getting her out of the line of fire. She was so guilty feeling that I somethings think she allowed herself to be excoriated by him as some sort of
penance.
Good luck. The day ahead of the actual move were some of the most emotionally difficult of my life. It was actually easier once he was at the facility. He was much more agreeable with the staff in terms of care and after his period of adjustment our visits were something to which I could look forward.6 -
Thank you, this is very useful and I'm adding it to my stash of tips & hints; however, it's not the article I saw. The comment I saw talked about leaving a LO at MC then had a link to a longer "essay" the author had written, detailing the actions of the day. I should have bookmarked it. :-)
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Video with some great suggestions. It has been shared here before:
For me, it was a little easier to get my grandmother into MC as I had her transported to MC after a hospital stay. I told her she was going to a fancy rehab facility to work on building up her strength so that she could go home. And I said it was the doctor that prescribed it. I informed the staff(not the first time they’d heard that particular story) and they confirmed it with her.
Since it sounds as though you will be bringing him there under your own steam, if you can pack a small bag (depending on what is included with the room)to get him started, you can use the staff to distract him while you fix up his room. Because my grandmother was hospitalized, I was able to use that time to get her room ready uninterrupted. If you can enlist some help to distract him prior to the move, you can use that time to gather the initial items you’d like him to have in MC. After he’s residing there, you can still use staff to distract him while you add additional items to his room as needed.
It really is best to avoid including him in the process, which is hard for a lot of people to wrap their head around because they are used to sharing things with their spouse. With dementia, sharing hard decisions truthfully usually doesn’t go well.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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