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To those with LO in memory care

BPS
BPS Member Posts: 435
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Member

My wife has been in memory care for about 9 months. She had a stroke 10 months ago. Our marriage has not been close for a long time, but she doesn't remember what our problems were. I would like to know how others are dealing with their spouses being in memory care. I feel kind of trapped. I can never go back and don't know that I would want to, but I can't go forward either. I am not caring for her 24/7 anymore but I go see her every day. She is about stage 6. She knows me but don't know that I was there yesterday, or what she ate 15 minutes ago and she has delusions. I spend a lot of time home alone not really doing much, reading or turning wood on my lathe but nothing that matters. I would like to find a woman that I can have a meaningful relationship with, but I can't. Is this an experience that is common or are other able to transition to a meaningful life while their spouses are in memory care.

Thanks for any input.

Comments

  • Bailey's Mom
    Bailey's Mom Member Posts: 206
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    BPS, I can understand how you feel. I have been married for many years, but they haven't been good ones for a long, long time. Now caring for HWD takes every ounce of energy that I have and I feel like there is no way out…what little life I have left is slipping away day by day and there is no joy left. My HWD is still at home, but if I were in your situation and I wanted a companion (which I don't think I would…I just want some peace), I would consider going for it…you only have one life to live and it will be over soon enough. Many people here are caring for the love of their life, but it doesn't sound like you are, so your experience is different. Good luck to you.

  • AlzWife2023
    AlzWife2023 Member Posts: 417
    250 Care Reactions Third Anniversary 100 Likes 100 Comments
    Member

    I have just begun to really see my DH as gone. He’s stage 6. I’m not holding on to a relationship. We had our 30+ years & our three kids & now he’s not anywhere near capable of having a relationship. I am not looking or rushing into anything, but I would welcome a date if one were offered by a man who held my interest. My DH is home & I have no immediate plans for placement but I sleep in a different room now & consider myself single. I’m not suffering the loneliness some others do b/c one son lives with us & the other two visit often. I don’t work other than caregiving which is a mixed blessing. I do miss the social interaction I used to seek at work but I’ve slowly learned to find new & much better ways to socialize: I attend church & the gym.

    It’s been a long and painful process, to separate but it’s inevitable.

  • TooYoungForThis64
    TooYoungForThis64 Member Posts: 3
    5 Care Reactions First Comment
    Member
    BPS, I'll admit I'm new to this community, but I'm not new to this experience. My DH has been in a facility for just over a month. He is still cognizant, knows who I am, etc., but his delusions are exhausting for me. He's convinced they're "downsizing" the facility, I'm packing up the house and moving away (I'm not), and other bizarre things ("The floors here move up and down, and I don't like it."). I justify not going by saying to myself, "He's always got something going on - they're keeping him busy." But then the guilty wife kicks in. I hear that voice in my head saying, "He knows you. He misses you. He wants to come home." I argue with myself and the decision to move him out there. Did I do it for him, or for me? Did I just want him to be someone else's problem? Then I just end up sitting in my chair miserable, trying to get motivated to do the things I need to get done, and failing at that, too. I'm no longer "homebound" like I was when I was caring for him at home, but I feel like I am, because if I go out, I really need to go see him. I took a week recently and went to visit my family for the first time in over 2 yrs. (blessed they would come to me during that time).

    Although I'm a new member here, I can already tell we are all on the same stinkin' roller coaster, and everyone of us wants off. Blessings and prayers for you.
  • sandwichone123
    sandwichone123 Member Posts: 1,187
    Fifth Anniversary 1000 Comments 250 Insightfuls Reactions 250 Likes
    Member

    @TooYoungForThis64 This is reminding me so much of when my dh was newly in the facility. He always had some complaints. Once he complained that he'd heard it cost $1,000/month for this place! (I assured him it didn't.) Guilty wife is a frequent flyer, but as you continue to remind the guilt of the facts of the case it does get better over time. The reasons you moved him there are still the case, you just have to remind yourself over and over.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more