Have any questions about how to use the community? Check out the Help Discussion.

To those with LO in memory care

BPS
BPS Member Posts: 514
500 Care Reactions 250 Insightfuls Reactions 250 Likes 100 Comments
Member

My wife has been in memory care for about 9 months. She had a stroke 10 months ago. Our marriage has not been close for a long time, but she doesn't remember what our problems were. I would like to know how others are dealing with their spouses being in memory care. I feel kind of trapped. I can never go back and don't know that I would want to, but I can't go forward either. I am not caring for her 24/7 anymore but I go see her every day. She is about stage 6. She knows me but don't know that I was there yesterday, or what she ate 15 minutes ago and she has delusions. I spend a lot of time home alone not really doing much, reading or turning wood on my lathe but nothing that matters. I would like to find a woman that I can have a meaningful relationship with, but I can't. Is this an experience that is common or are other able to transition to a meaningful life while their spouses are in memory care.

Thanks for any input.

Comments

  • TooYoungForThis64
    TooYoungForThis64 Member Posts: 7
    5 Likes 5 Insightfuls Reactions 5 Care Reactions First Comment
    Member
    BPS, I'll admit I'm new to this community, but I'm not new to this experience. My DH has been in a facility for just over a month. He is still cognizant, knows who I am, etc., but his delusions are exhausting for me. He's convinced they're "downsizing" the facility, I'm packing up the house and moving away (I'm not), and other bizarre things ("The floors here move up and down, and I don't like it."). I justify not going by saying to myself, "He's always got something going on - they're keeping him busy." But then the guilty wife kicks in. I hear that voice in my head saying, "He knows you. He misses you. He wants to come home." I argue with myself and the decision to move him out there. Did I do it for him, or for me? Did I just want him to be someone else's problem? Then I just end up sitting in my chair miserable, trying to get motivated to do the things I need to get done, and failing at that, too. I'm no longer "homebound" like I was when I was caring for him at home, but I feel like I am, because if I go out, I really need to go see him. I took a week recently and went to visit my family for the first time in over 2 yrs. (blessed they would come to me during that time).

    Although I'm a new member here, I can already tell we are all on the same stinkin' roller coaster, and everyone of us wants off. Blessings and prayers for you.
  • sandwichone123
    sandwichone123 Member Posts: 1,284
    500 Likes Fifth Anniversary 1000 Comments 250 Care Reactions
    Member

    @TooYoungForThis64 This is reminding me so much of when my dh was newly in the facility. He always had some complaints. Once he complained that he'd heard it cost $1,000/month for this place! (I assured him it didn't.) Guilty wife is a frequent flyer, but as you continue to remind the guilt of the facts of the case it does get better over time. The reasons you moved him there are still the case, you just have to remind yourself over and over.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more