Whom do I believe? My Mom or the caretaker?


Hi Everyone! I'm new to this community. This is my first post. My Dad passed away last fall and I had to take over as my Mom's caretaker. She has dementia and I am her POA and only living relative who is able and willing to take care of her.
I have been very overwhelmed taking care of my Mom since my Dad died, especially since I had to pick her up from her home at the end of 2024 because it was no longer safe for her to live alone. She also had a bad fall on Christmas Eve and she has been in five different places in the past two months. She is in her second AL place now, and hopefully, this will be her permanent home. It's been so crazy the past two months.
My Mom is normally a very sweet person. But it's like she has two personalities now. I'm starting to think she has Sundowner's Syndrome. She gets very agitated in the late afternoon and evening, and especially when she is tired or hungry. I am taking care of her full-time, yet when she's agitated, she accuses me of never doing anything for her. It's very upsetting when I try so hard to take good care of her, yet nothing I do is ever enough.
She has not been happy with any place I have put her in. First was the rehab hospital, then the first AL place (which was a nightmare), then skilled nursing (for more rehab) and now her second AL place. I worked really hard to get her into these places, but she has not liked any of them. I understand that the first AL place was horrible, but the other places have been pretty good.
Now that she’s in her new AL place, it seems like she’s having hallucinations in the evening. It seems like she’s hearing and seeing things that are not there. In the most recent incident, she called me in the evening, telling me that a caretaker had demonic eyes and was awful to her. It’s hard to know if this really happened or if she was being paranoid and seeing and hearing things.
I want to believe my Mom when she tells me these things, because she is a sweet and honest person and she would never make up stories of abuse when she’s in her right mind. But I’m starting to wonder if I can believe everything my Mom tells me. I brought the situation to the director of the facility, and now I’m wondering if I blew everything out of proportion and got the caretaker in trouble for nothing.
I appreciate any thoughts or advice you all have for me. I am new to understanding how dementia works and I’m still learning how to be a caretaker of someone with dementia. Thank you all sincerely!
Comments
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Hello electrolite. My situation is very similar to yours. My LO suffered a fall the week before Christmas and required surgery. She was living with my older sibling who was not properly taking care of her. I decided after her surgery and rehab to bring her to my home to live so I could take better care of her. She began showing signs of Dementia while in the hospital and her doctor suspected VD due to her past history of brain cancer. The diagnosis was confirmed this past week and she has mixed dementia (Alzheimer's & Vascualr dementia). Although I removed her from my siblings home where she was being neglected and not looked after, she constantly tells me she wants to go back "home". This is very heartbreaking for me because I'm the one that's trying to take care of her and do what's best for her and her health. She complains to everyone she meets and even fabricates lies. It's very stressful and heartbreaking. When I spoke to her physician, the advise that was given to me was, "Don't take it personally. That's NOT your mother but the disease". I try to remember this every time but it's difficult. Especially when it's your parent, whom you love. So I feel your pain. I'm sending you a virtual hug and positive vibes your way. I hope we both adapt and learn to not take it personally but to remember that our loved ones are still in there somewhere. Please take care. Sincerely, Dee2
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Thank you so much for sharing your experience and your advice, Dee. I am sorry that you are in the same situation, but it is helpful to hear that I'm not alone in this struggle - that others like you can relate to what I'm going through. Love and hugs! ~electrolite
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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