New to Alzheimer's

Hi I'm Ann I was diagnosed in late November as having early onset Alzheimer's. I just turned 59.

I have no idea what to expect.

🙏🙏🙏

Did you get the PET scan results yet?

I'm 59 and just got diagnosis. Really want to talk to us "younger ones" to see if what I'm thinking, feeling, experiencing is normal.

First let me welcome everyone. Next let me say that whatever you are feeling is fine. Upon receiving any kind of diagnosis it really takes quite awhile to totally wrap your head around it. It's your diagnosis and you can only handle it that best way you know how.

What I would encourage each one of you to do is to research and read. Try to become somewhat familiar with what you are going through. Sometimes people don't like to do that - but knowledge is powerful. It can help you understand what your going through. Possibly help you to not be so afraid.

Ask questions and share here, this is what we are here for.

eagle

Hello Everyone,

This diagnosis has many emotions that only we know what that feels like. As so me have said digest it.

I was diagnosed 4 years ago at the age of 55. I was misdiagnosed with functional neurological disorder. I knew this and my family knew this diagnosis wasn’t true. my husband did believe this since he didn’t want this real diagnosis to be.

I may sound morbid or “why would you want to be diagnosed with Alzheimer’s.” I am grateful to be diagnosed with this disease. It did take a year and a half for me to get the true diagnosis.

I did go through all the testing, lumbar punctures to finally get another opinion. Although I do get some doctor's still diagnosis as the latter (FND).

I am the youngest in my family gene to have been diagnosed with this”monster” of a disease. I find it easier to fight it head on. Don’t give up! There are many people here to listen to you all.

What I do now is keep active. I am learning new things and when i can’t remember I laugh and repeat again.

I definitely have my bad days. I sing a silly song. “If I only had a heart.. do do do. If I only had a brain do do do.” This is something from Wizard of Oz. I have to find my silly humor if not you go down a rabbit hole.

I’m enjoying life. It’s definitely not an eay life I live. Lots of new and steady health issues where I can’t take the new drugs/medications.

Digest. Nothing has to be rushed.

I was diagnosed last year with early onset ALZ. It has made a huge impact being able to communicate with others that understand what I am going through. I'm grateful for my family and they have been wonderful, but it's nice to talk with others like me.

Hi Bobby, I totally Understand that! As of late I find myself being ridiculously indecisive about everything. I hate being like that! But I can't help it. It's such a weird feeling. Reach out anytime.

Yes, that was my first symptom as well. ugh!!! It's so frustrating!

The memory issues are scary! I started infusion treatment (leqembi) in January. So far so good. Just hoping it'll slow the progression.

The dialogue here is great - supporting one another.

Keep physically and mentally active, eat balanced meals, and sleep is vital. Know that some days won't be as good as other days - and that's fine. Enjoy life, have fun - don't wait for something to happen.

eagle

Get on Aricept as soon as you can, your dr will prescribe. I started with 5 mg then went to 10 mg. I had no issues with taking this med, however I dis some slight side effects for the first week.

However, some people are not able to tolerate this medication. Keep your Dr informed of any sideffects.

Highly suggest genetic testing prior to accepting any infusions or experimental medication. Ask about the genetic interactions with any medication you're taking.