Focus on the Now, the Positive, the Moments

Keep going!

Hello Vickie,

It's been a month since your post and hope you receive my comment. My DW was diagnosed 2 years ago with symptoms dating back to 2021. Today, she is 60 and living (as of 3 weeks ago) in an assisted living facility. I too maintain a highly active and healthy lifestyle which has been part of my daily routine for many years. I would agree this to be a major part in my personal well being.

"Fighting for my life each and every day" is also part of my day to day journey. Moving out of my role as full time care-giver has had it's own set of challenges. Nevertheless, like you, I choose life and am learning to manage those challenges accordingly.

hello,

When I was diagnosed in 2021 I didn’t cry tears I was happy to be diagnosed with Alzheimer’s. Sounds morbid I know,but I had doctors tell me that I was faking it. I live life too. I don’t dwell on it. I’m grateful for everything. I’m having fun. I lost my license when I was 55 in 2021. So I sing the song by Sammy Hagar “I can’t drive 55.” I have always been positive and and very active. I changed my eating habits years ago. Things could be worse but like you say don’t dwell on it

Please find a way to impress upon your family that you need to talk about this. I hid my MCI for most of the 5 years I lived with it before my new AD diagnosis and it tore me up. When I did share it with friends, family, bosses, and coworkers, they were wonderfully supportive. Each time I thought to myself, "why didn't I open up sooner?!" Don't live in that box alone my friend.

There is a lot of wisdom and strength in this thread. My DH was diagnosed at 54 & just turned 68. We allowed ourselves several days of "why me / us" time & realized that's not how we'd ever lived our lives. We were going to fight this ugly disease together and better yet we were going to enjoy being together. I realize that doesn't work for everyone, but at 14 yrs into this DH is doing great. Does he forget things, of course. is his attention span short, yes it is. And on and on. So we adjust our world around him.

Attitude, I believe it everything.

eagle

Im so sorry it hear that your family dont want anyone knowing, its your life, your story you should be able to share it how you want. I am 46 and also have EOA its scary and hard its not something you can deal with alone trust me. Just know you are not alone!

Hi Vickie! You are not alone. I appreciate you sharing your story, including the ups and downs. I am so sorry that you have been affected so early in your life. It is not easy; however, there is hope every day. Keep pushing forward, and I am counting on the fact that there will be a cure one day. Thanks for your positivity and honesty, and for sharing your story. It brought me positivity and hope as I fight to thrive and live with it, too.

I think after a diagnosis of course you are going to be down and fearful for the future, after all you are human. What you have to do is to make certain that you don't stay in that dark place. Yes, its difficult, and yes more than likely there will be tears and some anger. Don't hold that back, let it go and then be done with it. Move on - to the here and now. Meaning what can you do to help yourself be your best self.

We all know that diet and sleep are important. Personally I believe communication and being with others is equally as important - its just not talked about as much. Exercise is important, but to moderation. Keeping your mind engaged is vital. It might be with word games on the computer, crossword puzzles, puzzles, doing crafts or models, etc. Try a new hobby - knitting maybe or gardening, use you imagination and find something fun you want to do. Woodcraft possibly?

You can take a deep breath and realize that you certainly aren't alone.

eagle

First off IngridS you are not an idiot. Let me repeat, you are not an idiot. Now, you repeat that to yourself until you believe it. Because its true. Your brain isn't functioning properly, its not functioning how you want it to function. You are frustrated and upset, of course and rightly so.

Disrupted sleep makes for a long next day. Put your CPAP on during the day and take a nap - get a good rest in with it on. Of course your worried about your husband and his radiation therapy - that's putting stress on yourself. Time for a step back and several big deep breaths.

Let take this one or two steps then when your comfortable, we'll add more. You said losing your wallet. Do you carry a purse? Even if you don't - when you walk into the house, immediately put your wallet/purse where it belongs. (On a hook, hanging on a chair, in the bedroom - wherever makes sense to you.) That's it. Now the wallet has a home. Could you possibly add an AirTag to help track it if it gets misplaced? (I know several women who have them in their purses and men have them in their wallets.) Its just a thought.

Just take care of that and that's a huge burden lifted off your shoulders. Its scary I know. We are here to help you.

eagle