Books, and thermostats



Two questions today…
Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting" or "this is stupid." I would love to find something she would sort of enjoy… criteria: large enough print, not the tiny print used in older paperbacks; fairly simple language and plot but not childish; no violent mysteries or sappy romances; doesn't get fantasy or scifi. I've tried Rita Mae Brown's cat mysteries, various classic horse stories, James Herriot, dog mysteries — these were somewhat successful. Short stories would be a logical fit, magazines would seem to be a fit but she doesn't like them, says newspapers are too negative. Any suggestions? Authors, genres, anything?! We spend a ridiculous amount of time finding a book, rejecting that book, finding a different book, rejecting that book, getting more books, returning unread books to the library, etc.
Next question: household thermostat technology. Without going full-on app-controlled, is there anything I can do to keep her from turning the heat on in June? I was outside doing yard work yesterday and she turned on the heat in the middle of the day with all the doors and windows open; thank goodness it probably never actually kicked on. Is there a childproof thermostat available?
thanks!
Comments
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I'm sorry I have no book recommendations but regarding the heat. Could you just shut off the breaker without her knowing? She will have the satisfaction of turning up the thermostat but the heat won't come on.
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@HollyBerry
We dealt with both these issues.
For the thermostat, we went to a smart thermostat that he couldn't understand when the new HVAC was installed. Before that, he'd set the heat to "Emergency/85F" in July. It was hell. Other suggestions we were given was the old-fashioned Plexiglas lock-box and moving the thermostat to a different location and leaving the current one in place but disconnected.
We never did find a good solution to books. Dad loved to read pre-dementia and retained the ability to decode English well into the late stages of the disease. That said, he had no real comprehension as his short-term memory couldn't hold a thought from paragraph to paragraph. This resulted in much complaining that DH and I purposely sent him boring books as an insult. When he read new books by favorite authors he complained they'd "lost their touch". If he reread something he enjoyed previously, he'd complain it wasn't "as good as I remember". The only book I recall him enjoying was a copy of Roz Chast's Can't We Talk About Something More Pleasant? a friend had given me. The memoir is about having elderly parents and is told in a series cartoons. Dad identified with the author and didn't recognize himself as the challenging older parent. Oh the irony.
He continued to "read' even after he went into memory care a couple months before he died. I feel like the act was habit and a way of reminding himself of who he was. We found The Week something he could enjoy and he liked have mail addressed to him. He also would look at those locally published books with photos and histories of small towns and neighborhoods. With my aunt who lost reading fairly early on, we found coffee table (pictures of places she'd been) books a hit and also adult coloring books about topics that appealed to her— fashion and travel.
HB1 -
When my dh was at that stage, he loved the books he had loved as a teen, so you might look around for stuff that was popular when he was in high school. He could follow the plots better if the book was familiar, although he didn't actually remember the plot. He also bought a set of Hardy Boys mysteries around that time. He carried a book around for a year or more after he could no longer read, and even yesterday we spent a pleasant half-hour looking at magazines. I was surprised that he could still make out parts of some of the words.
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Mimi S, an emeritus member, had recommended Young Adult books. The print is larger and not many pages. Seek out appropriate topics.
Iris
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I would also recommend checking into young adult books. I am going to show my nerdness here, but you might want to check into Graphic Novels - they are like comic books, but longer and with more involved stories - there are some graphic novels of classic literature too.
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My wife is in Stage 5 and has not been able to read a book or follow a movie plot for a couple of years now. Surprisingly, she is able to solve wordsearch book puzzles. Occasionally she needs help but she spends several hours every day working on these puzzles. She is not very good at it and can spend an hour or more on a simple puzzle, but it holds her interest. Give it a try.
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My DW had not been able to do word searches or read any books for quite a while but she enjoys carrying them around with her so that works for her. One suggestion for books is to look up readers digest books, they have hard copy books of best stories all together. Hope you can find a solution. 👍
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I think you can install a NEST thermostat and control it from your smartphone. About reading, DW can't anymore, but she loves doing adult coloring books with animal or mandala themes, and I keep hundreds of colored pencils sharpened for her.
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My DH loved to read technical books and books with yacht fittings and true stories. He can no longer read but we go to second hand book shops and find classic books with great pictures, he loves them.
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you might try books by Robert Fulghum. short sweet observations & stories, large print books and always positive. Author of, Everything I ever needed to know I learned in kindergarten.
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Hi HollyBerry- two thoughts: if she likes poetry she might like to carry around and peruse any of the many Mary Oliver books. If she’s an animal lover she might like Dog Songs- it has a great cover! On the thermostat front- if you have a digital thermostat you can go through a couple of simple steps to turn it off completely. That may prevent her from successfully turning the heat up but she may complain that it’s broken. I know you said you didn’t want to use an app, but I have one now and it really does help me intervene in my wife’s wonky HVAC settings, and she never knows I’ve done anything so no complaints.
Let us know how the book thing goes!Karen
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I’m a librarian. The library where I work has dementia books and activities kits. Check with your local library and see if they have books or activity kits for people with dementia. Talk to the reference dept. not people at the front desk. The reference dept. is there to help find what you’re looking for. My library will also deliver the items to your home if you live in their boundaries and have someone who is home bound. Also try looking for large print books with less than 100 pages. Also try non-fiction children’s books. I would start with nature or pets. Look for books that have a photo on each page with a description under the photo.
Also ask the library if they have an employee who’s primary job is to work with home bound people. That person will be your best bet for finding books for your partner.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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