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LGBTQ Eldery Father community

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newalsh452
newalsh452 Member Posts: 2
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Hello my father was just recently diagnosed with Alzheimer’s via MRI Amyloid scan. Its still early stages but as we know the eventual progression as he decided, which my sisters are aligned on, to not test the brain infusion treatments which only recently have been approved, we want to try as best we can to speak now about options for the future so we are all better informed and my dad can be a part of this conversation.

We live in NYC area and he’s a gay man. I am curious about any memory care facilities that are safe and inclusive environments for elderly gay community.

Also, as expected my dad is very defensive about the diagnosis. Any advice on how have hard conversations about safety in home and next steps.

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  • H1235
    H1235 Member Posts: 1,005
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    Welcome! Most people with dementia also have anosognosia. This is an inability to recognize their symptoms or limitations. Even it he agrees he has dementia, he may not see the symptoms he is having. This makes everything so difficult! Has he seen an elder law attorney yet. He should have a will, definitely need a durable power of attorney, medical poa, and a living will is also a good idea. I would not wait on these, it’s urgent. If my mom would accept her diagnosis and understand her limitations she could probably still live alone. But she wants to mow her own lawn, power washer the swing, the list goes on. If left alone she would put herself in danger. She is in Al. So if you try to talk about safety with your dad and he starts to get defensive I would drop it. If the person with dementia is resistant it’s best to just do what needs to be done without discussion. Many here have tried cameras with some luck for awhile anyway. Leaving the stove on and starting a fire is often a big concern. Some have had success with disabling it. I can’t help with a good Al in your area, but I can say it’s good you are looking into it now. Some places can have a waiting list. If that is the direction you think you will go, it’s best to get on the list and just turn down the openings until you are ready for him to go. Very few people with dementia will say they need assisted living, so you can’t wait for him. This will need to be your decision to keep him safe. I have attempted a couple of resources you may find helpful. The more you learn about dementia the better. You tube Teepa Snow is a great resource. This site is also a great resource.

    This is a staging tool

    This is a great article.

  • newalsh452
    newalsh452 Member Posts: 2
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    thank you so much for your advice. And the links for resources

  • sandwichone123
    sandwichone123 Member Posts: 1,022
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    I share some of your concerns. My dad is showing signs of memory loss and wants (as so many do) to stay in his home. He's gay and has been like a young person who just got away from his parents ever since my mother died. I am very concerned about finding him a place if needed, as I'm in a part of the country with fewer options overall, and I am aware that much long-term care is provided by individuals from more socially conservative cultures.

  • harshedbuzz
    harshedbuzz Member Posts: 5,406
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    @newalsh452

    Hi and welcome. I am sorry for your reason to be here, but pleased you found this place.

    Even though your dad is presumably earlier in the disease progression than he will be later, there are certain core deficits associated with Alzheimer's that you may already be seeing. These are really subtle losses that can sometimes look more like "personality" than symptomology. I'm even talking about things like empathy (understanding your need to have the conversation), the ability to reason and executive function (cause and effect basically). Additionally, most PWD have a condition called anosognosia which prevents them from being able to appreciate the degree to which they are impaired. They might recognize some memory loss or admit to their diagnosis but not realize the degree to which they need help or supervision.

    Because of this, the chance to have had this kind of conversation may have slipped by already leaving you to make plans based on what you know of the man. Unless he has a husband or long-term committed partner who wishes to be his caregiver/decision-maker, one of you needs to get the legal stuff sorted out asap.

    SAGE likely has resources that are specific to your situation. I would expect they have a big presence in NYC.

    Good luck.
    HB

  • SDianeL
    SDianeL Member Posts: 1,803
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    Welcome. So sorry about your Dad. Most facilities have Social Workers that you can speak with about your Dad before placement. The caregivers I met touring 3 facilities in my area were all caring and professional. Don’t delay getting with an attorney.Tell your Dad that you are getting your legal affairs in order and he should too. I’m glad I went to an attorney immediately because within 6 months my DH could no longer read and understand documents or sign his name. You can also call the Alzheimer’s Org. toll free number for resources.

  • harshedbuzz
    harshedbuzz Member Posts: 5,406
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    @newalsh452

    IME, only the larger CCRC and the veterans home had an on-site MSW there. They were primarily charged with finding resources for their clients— sources of funding, Medicaid transition and occasionally a geri psych bed. A social worker affiliated with a geri psych unit, memory clinic or local charity might be a somewhat unbiased source of information.

    In touring, the person who is the face of the facility will be a salesperson regardless of the title on their business card. There can be a tendency to tell potential families whatever they need to hear in order to sign a contract.

    HB

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more