Angry
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NMF
I am private but on this site I have opened up more than I have anywhere else (I still don't post often). I think because everyone here is dealing with related issues and also because I don't see the people here on a day to day basis, so if I say something wrong or odd I won't have to see and deal with them tomorrow (although I would like to meet some of these people and have coffee or whatever and just sit and talk, they are in a strange way some of the best friends I have). All of our journeys are different but yet the same, so exact staging is difficult. My wife is I think late stage 6 touching into 7, but yesterday she was early 6 (some days they surprise you with a good day). I guess what I what to say is keep coming back and say or ask anything you want. I don't think any of us are professionals, but the people have what an education can't give you, experience.
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my DH does't feel so dear to me. He was in a Donanemab trial for 18 mos. just seemed to delay the inevitable. He is mid-stage, not driving and lately has been watching TV non-stop and napping. I think he is depressed and could benefit from behavioral health evaluation but he denies. This weekend we went out for breakfast. Even though calm and delicious he just wanted to go home. Then I thought a movie, too loud and he came home 6p and went to the basement for a nap. I am trying to hang on to my life. He expects me to do everything. He felt I interrupted his tv show when I gave him a heads up we were leaving for the movie. His Dx was going on 3 yrs. He doesn't wander, does ride his e-bike, 1x every 2 weeks. He is simmering and I am so sad. He seems to smile for strangers not me. I miss what we had, we've been together 48 yr.s married 44, he's 74 I'm 71.
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I don't participate in the usual social media because I'm relatively private, too. However, I feel completely comfortable posting here. The members have established an environment that is safe, where you can say what you might not say to anyone else, and there's no judgment, no criticism, only empathy and support.
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We need to remember that the saying is truly - God will not give us more than we can handle with His help. Be sure to talk with him daily for strength, patience and peace.1 -
This is my first post. I find myself angry often. My husband has both alz and copd. He doesn't accept that any thing is wrong, that he is ill. I identify with those who say it's like having a four year old in an adult body. From someone who rarely had anything to say to talking all the time. He curses about everything thing and goes around muttering damn damn…l am finding your comments helpful.
Does anyone have any experience with respite care?
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In my case with my DW if I say anything I wished I hadn't she usually forgets right away and sometimes within seconds - I guess if there is a "good" part of this disease this might be an example.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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