Have any questions about how to use the community? Check out the Help Discussion.

Never know when something will trigger profound grief...

Band-Aid's.jpg

I went to get a band-aid for my finger and found this. As my husband's dementia progressed, he couldn't remember the word for Band-Aids. So he took them out of the box and put them in this zip-lock bag and wrote BAND-AIDs on it…. I found myself with tears coming down my cheeks. Such a small thing but such a sadness… I know you all understand. We never know when something will remind us of them. Hugs to you all. 💜

Comments

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    I have found and keep finding things that trigger my breakdown response. It can be the least thing and the breakdown comes unexpectedly. It causes me to manage my activities with others or outside the home carefully, for fear of it happening and frightening others. We kept stumbling upon things that almost seemed to have been put there or we were guided to them by my wife which we began to call "coincidences". In time they became too numerous and frequent to call coincidences any longer. I find things for which we made a change or adjustment to help my wife or protect her or guide her. The tears just start. There is so much we did over the course of her disease to try to keep the home functional for us all that I am surprised by just how much. While each new "find" triggers the tears, it also brings me closer to her once again. Often I just sit with the item or situation and stare at it or touch it and think about her.

  • troubledone
    troubledone Member Posts: 58
    25 Care Reactions 10 Comments 5 Likes
    Member

    Thanks for sharing.

  • Eloise0304
    Eloise0304 Member Posts: 122
    100 Care Reactions 10 Comments 5 Likes
    Member

    This week marks 6 weeks since he passed, and I was looking at a note pad and saw that he was trying to remember the t v station's I won't be tossing this note pad…I can relate

  • howhale
    howhale Member Posts: 159
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    The image you shared reminded me of pieces of paper I put away during my wife's struggle. There is a paper napkin on which she wrote my name when a caregiver was engaging with her. Written as if by a child but the last time she ever wrote my actual name herself. By that time she often could not recall my name or that I was her husband but she just knew I still belonged. yes, those seemingly insignificant things at the time become precious later. For all who are still walking the path with their loved one, save everything, no matter how small or seemingly insignificant. In time it may be all you have left to touch and hold.

  • midge333
    midge333 Member Posts: 623
    250 Care Reactions 500 Comments 250 Likes 100 Insightfuls Reactions
    Member

    I have several scraps of paper from my wife's stay in MC in which she tried to write out my name, presumably to keep from forgetting it. So sad…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more