Trying to help primary caregiver

AviezerS
AviezerS Member Posts: 4
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Personal status: secondary caregiver; grandson

(Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes)

What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from their house to the hospital. Grandma's staying at the hospital with him, sometimes overnight.

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  • Palmetto Peg
    Palmetto Peg Member Posts: 328
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    Does your Grampa have dementia? Why is he intubated? His age and other conditions would help us give you some suggestions. Hugs - this is so hard!

  • AviezerS
    AviezerS Member Posts: 4
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    edited November 2025

    edited: sorry, right- uh… Alzheimers, congestive heart Failure, Afib, Angina, pneumonia… he's not getting out of the hospital anytime soon basically

  • AviezerS
    AviezerS Member Posts: 4
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    -

    hmmm…. I can clean up the various rooms, but she is very insistent on being the one to cook. Even if I ordered food she'd insist on paying me back. Unsure how she'd feel about me doing the laundry.

    I'm kinda limited because she doesn't like accepting charity and views me as her little grandson (I'm 22)

  • SDianeL
    SDianeL Member Posts: 3,421
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    they are lucky to have you for a grandson. I would ask your Grandma what you can do to help her. Let her know you will do anything she needs. Meet her at the hospital if you can and take her to lunch or coffee to get away and just talk. She may have to make the heartbreaking decision to remove the intubation and will need someone to talk to. Is hospice on board? If not she could request it. Hospice has counselors and clergy for the family. So sorry you are going through this.

  • Maru
    Maru Member Posts: 567
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    She sounds just like me…and, I know that I have said the same things to my LO. If she won't let you do anything for her, just be there with her.

  • H1235
    H1235 Member Posts: 2,399
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    Maybe if you tell her you feel helpless and you really need to do something. Tell her it would make you feel better. Then give her a list of some things you were thinking might help and ask if she would be comfortable with you taking on any of these tasks. I assume she is older and our generation tends to have more gender defined household chores. She might be more willing to have you do things your grandpa would have normally done ( mow the lawn, clean out the gutters, …)and maybe hasn’t done in a while. I wouldn’t totally give up offering. She may eventually decide she needs help and she should know the offer still stands. As others suggested, taking her out to eat or bring her a bag of snacks might also be good. You are a good grandson!

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  • AviezerS
    AviezerS Member Posts: 4
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    They live in an apartment so it's more indoor chores- and my grandpa didn't really do any of them. At least not in recent memory. I'll ask her what she's comfortable with me doing

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more