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93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage

Mlewis1959
Mlewis1959 Member Posts: 1 Member
in I Am a Caregiver (General Topics)
I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a hand Anyone going through this

Comments

  • towhee
    towhee Member Posts: 612
    Eighth Anniversary 500 Comments 100 Likes 25 Insightfuls Reactions
    Member

    Welcome, although sorry for the reason you need to be here. Two businesses, goodness. We do have people on here who work full time and care in home but they are only able to do it with adult daycare and paid in home help and flexible hours. Clueless and unhelpful friends and relatives are the norm it seems😒. We do understand on here.

  • H1235
    H1235 Member Posts: 1,688
    500 Insightfuls Reactions 500 Likes 1000 Comments 250 Care Reactions
    Member

    Welcome, but sorry you have to be here. It sounds like you might be in an unsustainable situation. It won’t be long before she is not safe to be left home alone. Even if you have hired aides (very expensive) come in while you are gone, you will still have to deal with no shows and issues if someone is not a good fit. If you will need someone to cover evenings it’s going to be even more expensive and it might be difficult to find someone if your in a rural setting. If you are even considering assisting living, you should keep in mind there can be a waiting list. Al offered my mom a chance to visit and make friends with people her age. She enjoyed some of the activities and liked having her own little apartment. Do you have DPOA? This is very important. This is such a difficult journey it’s a shame when friends and relatives make things even worse.

  • SDianeL
    SDianeL Member Posts: 3,141
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
    Member

    welcome. Yes it’s very common. Sadly family and friends don’t help for many reasons. Develop a plan for your Mom’s long term care. Don’t delay. Here’s a post from a caregiver on this forum who summed it up:

    https://alzconnected.org/discussion/71052/the-cavalry-is-not-coming-9-year-edition

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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