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End-of-Life care and Hospice

Jayladreaunna
Jayladreaunna Member Posts: 1
5 Care Reactions
Member
in I Am a Caregiver (General Topics)

Hi everyone, I’m Jayla 🤍
I’m a mama to 5—2 of my own and 3 bonus babies—and I’m new here.
I’ve worked in home health and end-of-life care for the last 12 years, and I’m currently pursuing nursing school. Even with all that experience, nothing fully prepares you for doing this for someone you love.
I don’t share my story for sympathy.
I share it because this season has changed me.
I’m caregiving through Alzheimer’s, dementia, and now end-of-life care. And there is nothing easy about it. It’s exhausting in ways sleep doesn’t fix. It’s watching someone you love slowly fade while still needing you completely. It’s holding grief and responsibility at the same time—and still showing up.
Some days are heavy. Some days are sacred.
Most days are both.
This is the hardest thing I’ve ever done…
and the most love I’ve ever given.
If you’re walking a similar road—quietly, faithfully, and tired to your bones—you’re not weak. You’re brave. And you’re not alone. 🤍

Comments

  • Colacho10
    Colacho10 Member Posts: 57
    25 Insightfuls Reactions 10 Comments 5 Care Reactions 5 Likes
    Member

    Thank you for sharing, it is clear how much love and hard work you put into taking care of your family.

  • ARIL
    ARIL Member Posts: 342
    100 Insightfuls Reactions 100 Likes 100 Comments 25 Care Reactions
    Member

    ”If you’re walking a similar road—quietly, faithfully, and tired to your bones—you’re not weak. You’re brave. And you’re not alone.”

    Thank you. I needed to hear this today. Brought tears to my eyes.

  • Bowerbird
    Bowerbird Member Posts: 36
    10 Comments 25 Care Reactions 5 Insightfuls Reactions 5 Likes
    Member

    Yes, I needed to as well.

  • persevere
    persevere Member Posts: 209
    100 Insightfuls Reactions 100 Likes 100 Comments 100 Care Reactions
    Member

    Good post!

  • Jeff H
    Jeff H Member Posts: 148
    250 Care Reactions 100 Likes 100 Comments 25 Insightfuls Reactions
    Member

    "It’s watching someone you love slowly fade while still needing you completely." That is such a true statement. Thank you for posting.

  • Russinator
    Russinator Member Posts: 305
    Third Anniversary 100 Care Reactions 100 Likes 100 Comments
    Member

    Excellent post and very true

  • Chance Rider
    Chance Rider Member Posts: 277
    250 Care Reactions 250 Likes 100 Comments 25 Insightfuls Reactions
    Member

    Thank you for sharing your thoughts. We’re newcomers to this nightmare of a journey and I needed to read this.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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