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Anosognosia, suggestions?

lilacgirl
lilacgirl Member Posts: 39
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My mom moved into AL yesterday and is slowly realizing that most people around her have some kind of ailment. She is so annoyed by all the attention from the nursing staff and is saying things like “They’re acting like I am here for a medical reason” and “What have you got me into?”

I know you can’t rationalize with someone who has a broken brain, but what CAN I say that might help?

Comments

  • pamu
    pamu Member Posts: 80
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    edited April 16

    It's so hard. Maybe tell her that is the initial protocol for all residents and they just need to make sure they have all the info they need to assist her, especially in an emergency. There are some people that need more help than she does and that they need more attention, even though she may not right now. It's not a nursing home but they need to monitor her health, wellness and safety. My mom's old apartment had people living there with all different challenges (some/most should not have been living independently) so when my mom says something about being with "old" people I gently remind her that all of the other residents used to have lots of health issues and how lucky she is to have help at her disposal now. I'm sure you are but try to focus on the positives… organizing her room the way she likes it, go over the meals offered and activities/goings on that she may enjoy.

  • H1235
    H1235 Member Posts: 1,775
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    I wish I has some great advice, but sadly I’m dealing with a similar situation. Mom accepts her diagnosis of dementia (kind of) but believes she is in the very very early stages. She gets annoyed at her lack of independence, privacy and just being around people that need much more care. She feels she doesn’t belong there. In the beginning I tried to tell her the doctor said it was not safe for her to live alone, but that didn’t go well. Now I just listen and if needed sympathize with her. Is there some kind of fib you could tell her that might work. Maybe just reassure her that while some people are there for health reasons not all are. Stress how much easier it will be for her now that she doesn’t have to deal with meals, laundry, housework etc. At his point she feels I am treating her unfairly (because I have put her in a facility), but seems to recognize she has no ability to do anything about it. Early on she talked about calling a lawyer to end my DPOA, but she would not be able to find a phone number for one and has no way to get to an appointment. I was always a bit worried she would just try to walk out the door at Al. I would really pay attention to any chance that she might try to leave. Maybe she need medication to help her with the agitation? The right medication made a big difference for mom, but she still has her moments.

  • lilacgirl
    lilacgirl Member Posts: 39
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    Blah, she is really having a bad time with it today. It seems like every resident has a walker except for her.

    "I didn't know this was going to be like a hospital…. I don't belong here…. Everyone is sickly/feeble…. It's depressing…. I just don't think I can live here."

    I truly don't know what to do to help this situation. She likes the surroundings, she likes her room, but she doesn't feel like she belongs there, and I get it.

  • April23
    April23 Member Posts: 91
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    edited April 16

    Your mom just got there and is going to need time to adjust. Even if things were perfect, I doubt she would be welcoming everything with open arms on day one. I think Pamu's advice is spot on.

    My dad took to his place in stride but he would still complain every once in a while even though he was one of the ones with higher needs. I would just remind him that others might have worse situations or need more help and he seemed to understand and sympathize. I would tell him that the nurses were required to treat everyone the same, do the same vitals, etc. even though he might not need it.

    Remember that your mom will never see her condition as it really is. I understand that right now you feel she is on a different level, but the reality is that that could all change tomorrow. When you have doubts, remind yourself why you felt it was the right time.

    Once she gets to know her caregivers, things will get better. I would ask if in a few weeks she could be given a "job." Tasks that she could help with to make her feel like she is contributing/helping—maybe setting the communal dinner table with placemats and napkins, etc. My dad is a retired police officer and his job is to "patrol" and keep an eye on things, which is something he can still do even in a wheelchair and which he relishes.

    I know it all feels wrong, but don't panic just yet. It's going to take time.

  • jhrmmbrb
    jhrmmbrb Member Posts: 1
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    I’m new to all this, my In-Laws are still in moderate stage & doing relatively well given they can afford 24-hour caregivers (though we have to constantly remind them of why the cargivers have to be there for 24 hours/7 days a week & I don’t blame them for worrying because it costs $450k per year!)

    I just want to share my reaction, hoping it may help spark ideas in some small way.

    That situation DOES sound depressing given the vast majority of residents sound far worse than she, & frankly they probably don’t belong in AL but can’t afford an adequate care home.

    You will probably hate this suggestion, as I know it would necessitate a lot of factors, but could you possibly find an AL where more of the residents are somewhat active and able to interact socially? I can understand why she would want to live with peers who are in similar condition, regardless of her diagnosis.

    I realize her condition can change rapidly but from her perspective, I would be very depressed by all that as well.

    Is she on a medication to help with her depression or agitation or any of the things that go with her diagnosis? She may need to try other medication to see if it can be more effective.

    Legal avenues may make the most sense but can be time consuming, expensive, & difficult finding the right attorney. We used Yelp & it really helped because of the Reviews.

    Can her doctor provide any support? Social Workers? It sounds like other family members should be encouraged to get involved (but not guilted), although I understand that the most you can do is ask, maybe for specific tasks as needed, whatever compliance from other family members is possible. If you ask for help in ways that they feel are do-able & not too demanding, they are more likely to help, eapecially if you present it as helping you (not the loved ones in need of the actual help.)

    People seem to shy away from getting involved bc they’re afraid of getting dragged into an on-goong, overwhelming situation, but might be willing to participate in small ways.

    I wish you luck and we are also frustrated with the difficulties of trying to care for loved ones who are unable to behave logically.

    I think you need support from the community but I’m new to this myself ao I don’t really know of the best resources.

    Support Groups in person if possible can be very informative. Sime even meet in the evening, since you work full time. But they are usually “drop in” whenever you can make it, & I found that I formed relationships with others (regarding an entirely different issue) & it helped me in ways I could never have imagined. I got through it in much better shape because of my support groups (one especially, in particular.)

  • SDianeL
    SDianeL Member Posts: 3,222
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    maybe tell her that her doctor just wants to make sure she’s OK?

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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