After 10 long years mom has died, now what?
It was 10 years ago that I realized my mother's forgetfulness was more than just normal aging. The reality hit me like a ton of bricks, and nobody else in the immediate family wanted to face it or do any future planning.
I had a general dread of what the future could hold but maintained hope that we could still find a way to direct the ship to a better place than what I feared. It never happened though.
Mom spent eight years of the last decade at home with her husband of 65 years as her primary caregiver. I was on the sidelines waiting for the eventual other shoe to drop. I did what I could and what my parents would accept. The wonderful people on this forum helped me probably more than anything or anyone else, so thank you all for being here.
The other shoe dropped two years ago when dad became ill himself with COPD and CHF and could no longer care for mom at home because both he and mom become incontinent and struggled with daily ADLs. They moved to an ALF and mom eventually in MC when dad died.
All the cracks in the family foundation broke open. Dysfunction was intolerable. I have read where events like this either act as "glue or scissors" in families. For me, it was scissors. Very little remains of what I knew was my family growing up.
What a journey this has been. Through the mighty impact this disease has on loved ones, I think I evolved in ways I could not have imagined. When I was younger, the thought of anyone with "dementia" was nothing I wanted to even open a door to.
I had no idea of the thought energy that consumed so much of my time until I no longer had to worry about how my mother was being cared for. It sort of slowly became part of my identity and I did not realize it until it was gone. it is an abrupt end at a long road.
So, I guess now I refocus on a life for me and my darling husband (right?). It will include building the next chapter and evolution when I am no longer a caregiver or advocate. It sounds so simple, but I know it isn't.
For everyone else in Stage 8, blessings to you.
Comments
-
I am sorry for the loss of your dear mother.
I wish you peace as you find your feet in this next chapter.3 -
Oh, TrumpetSwan... so sorry for your loss. Agree, this is not a journey anyone would want. You gave remarkable care and love.
Yes, may the next chapter of your life be amazing!
Peace to you and ((hugs))
3 -
I am so sorry for your loss. I felt the same way after caring for my mil for 20 years. Plan a great vacation with your husband. Start living the life you put on hold for years. You earned this and so much more. Your mother would be proud of you and the care you gave her.
3 -
@TrumpetSwan I'm so sorry for the loss of your mom, your dad too.
So many parallels with you and me, events, family issues, as well as how I felt about it all, and how I evolved. I see you.
As someone who's been in stage 8 now for about two years, I can tell you, there will be some bumps, but you'll build your next chapter in whatever way you and your DH want. I wish you all the best as you move forward.
For now, get some rest, and make a plan for a vacation.
2 -
So very sorry; This has been a difficult road for you and I appreciate you sharing your mom’s journey with us. We all learn from each other. Definitely time to refocus on your life and finding daily joy. Peace to you and your family.
1 -
so sorry for your loss. Wishing you peace and comfort in the days ahead. Your parents were blessed to have you for a daughter. 💜🙏
1 -
I am sorry for your loss and that you find peace.
1 -
Thank you, everyone for your replies. Your comments help me feel I have been seen and appreciated.
0 -
I'm very sorry for your loss. What a long road this has been and so much in the last few years. It will take time to come down from all that and readjust to a new life. Best wishes for the next chapter.
1 -
Thanks, Chickadee and JPJ.
I thought I might not visit this forum after my mom died, but I still find it very supportive. Thank you for your comments.
Feeling the loss of an identity is one thing I had not anticipated. I saw myself as a caregiver, a solution provider for my mom, an advocate for my mom, and a daughter but now I am none of those things.
I also realized that I felt a sense of community with the residents at my mother's facility and with other family members. I miss it. My mom developed friendships with two women in particular, and I miss seeing them. I used to stop by for lunches and have a meal with them all.
I guess it involved such an intense level of attention and emotion that now just going through routine schedules feels too quiet. Someone told me that "quietness" is my future calling and I think he is right. I am slowly adjusting and am not going to rush myself, but I know it is time to focus ahead. Thanks.
2 -
Since you enjoyed eating with your mom’s friends, ask the facility if you can continue to do so. Or if you can volunteer there once a month or something. Maybe figure out done other place you can volunteer at. Or start your bucket list- doesn’t have to be epic or expensive. A visit to a nearly place you’ve never been for example.1 -
Was thinking the same as QBC - I don't see why you couldn't stop in and see your two friends.
It makes sense that you'd feel the shake-up of your world. All of a sudden, you are in a different role, now. Agree, take your time and do what feels right to you. and be good to you, now!
1 -
Quilting and Susan - thanks for the ideas. It did actually cross my mind to volunteer. I saw several areas in which such a role could be a benefit.
0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 699 Living With Alzheimer's or Dementia
- 403 I Am Living With Alzheimer's or Other Dementia
- 296 I Am Living With Younger Onset Alzheimer's
- 19K Supporting Someone Living with Dementia
- 5.9K I Am a Caregiver (General Topics)
- 9.3K Caring For a Spouse or Partner
- 3.4K Caring for a Parent
- 248 Caring Long Distance
- 207 Supporting Those Who Have Lost Someone
- 13 Discusiones en Español
- 1 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- Vivo con Alzheimer de Inicio Más Joven
- 12 Prestación de Cuidado
- 3 Soy Cuidador (Temas Generales)
- 8 Cuidar de un Padre
- 23 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 8 Account Assistance
- 15 Help



