A New Level of Loneliness

Andi C · April 18

https://alzconnected.org/discussion/comment/270628#Comment_270628

My son actually asks me about my DH, but I stop and think about 3 of his grandparents who also had dementia and he rarely visited them even though they were local to him. His reason is that he had a hard time seeing them in that condition. Don't we all. Maybe that's why he reacted the way he did, out of guilt, I don't know but I'm just going to cool down from the conversation last night and hope he comes to his senses. I don't need this extra burden in my life and I refuse to give into his guilt trip.

BPS · April 19

I have become very cynical. My wife was diagnosed 10 years ago and the whole family knew it, so when someone calls me now my first thought is why now. We have kids that live close but haven't stayed in contact and our relationship is forever changed. I still would do whatever I could for them, but I now understand that it is a one way relationship and I don't think it will ever be what I once thought it was.

Andi C · April 19

Amen!

Maru · April 19

https://alzconnected.org/discussion/comment/270606#Comment_270606

Family jealousy is tough to handle in the best of circumstances, but being a caretaker also, really makes it hard to bear or know what to do. A few years ago, I might have attempted to smooth over ruffled feathers, but these days I just have to swallow the hurt as best I can. I just don't have the energy to do everything I need to do as a caretaker and fix the family as well. I am not suggesting that this is the best way to handle your situation, I am just saying that that is how I get through the day.

Andi C · April 19

https://alzconnected.org/discussion/comment/270706#Comment_270706

I'm totally with you and after a day and a half of fussing about his phone call, I have decided the same thing, I don't have the time or energy to solve everyone else's issues. I've shed the tears, wiped them dry and moving forward with doing what I need to do to keep my DH safe, happy and taken care of.

bwanasil · 1:15AM

https://alzconnected.org/discussion/75623/a-new-level-of-loneliness

My daughter has not talked to me in more than 5 years. She blames me for her mom getting dimentia. It’s been very difficult for me, but my dear wife is more important to me. I have gotten used to the fact that I do not get any support from my 3 kids.

A New Level of Loneliness

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