Living with Alzheimer's

Linda Scarantino · May 15

I was diagnosed with Alzheimer's two years ago. To others living with it - keep busy! I have joined a book club at the local library (which also offers activities), walk at the local park daily, church actiivities, senior citizen club, etc. Keep engaged! The Neurologist who diagnosed my illness was cold and offered no suggestions on going forward. My suggestion keep positive and don't let this defeat you!

GEH · May 15

Good suggestions. I was diagnosed about four years ago. I am an introvert, having to stop workin (which was my built in source of meeting people and making friends) and that on top of having Alzheimer's and memory sucks and I sometimes forget what I was saying in the middle of a sentence and I am embarrassed I find it difficult to go out and meet new peeps. But I am trying. Went to a Senior Center for the first time and met a couple of peeps. Went back a few days later and none of them were there and didn't stay long. I am working on it tho. Telling me to "just do it", which I have been told lot, doesn't work. I am going to join a group that meets to do Tai Chi next week. Keeping my fingers crossed.

lfaust58 · May 15

I was diagnosed about 1.5 yrs ago. I am fortunate to have been able to move in with family. I do have some opportunities for socialization beyond that.

I have been involved in Scouting as an adult and a youth for about 60 yrs, and I'm helping two local troops as a Committee Member. I have 4 college friends who've rallied around me and we have a 2-4 hour Zoom call every week.I also have 2 lawyer-friends who I've known from a law firm I worked for ages ago-- they call to check in every so often

So far, things are good. Sometimes, I'll mix up words or use the wrong ones. No other serious symptoms- I thank my lequmbi infusions for that. It's so important to have social support- sometimes you have to go find it. Another important thing is to keep a positive but realistic attitude. Be grateful for what you have. Try not to obsess about AD

Larry

Dorse · May 15

https://alzconnected.org/discussion/76043/living-with-alzheimers

I agree with you. I am 80 yrs. old, diagnosed with Alzheimer's one year ago. Your neurologist sound like mine. I could not feel comfortable with him, and he certainly didn't give any advice on moving forward except the infusions. Long story short: I chose not to get any infusion. I try to stay active, etc., and so far so good. I am doing ok. The best to you. I like to hear from upbeat people who are not giving up with this devastating diagnosis. You can email me if you would like to stay personally connected: [email protected] My name is Dorsey ( I am a lady )

MPY808 · May 26

https://alzconnected.org/discussion/comment/272484#Comment_272484

https://alzconnected.org/discussion/76043/living-with-alzheimers

Thank You for your post. You inspire me!

gary105 · May 26

https://alzconnected.org/discussion/76043/living-with-alzheimers

Are you taking any meds or otc remedies? if so which ones are effective?

Dorse · May 26

https://alzconnected.org/discussion/comment/273239#Comment_273239

Sounds like the same neurologist I went to who diagnosed Alzheimer's 1 yr. ago. He seemed uninterested in discussing anything except the diagnosis. I have an appt. with new neurologist in Sept.

GEH · June 1

https://alzconnected.org/discussion/comment/273275#Comment_273275

Ok

GEH · June 1

Hi gary105,

I am taking meds. Memantine, Galantamine, Doneprezil for symptoms etc and Leqembi infusions that are supposed to help remove the plaque from the brain. Have taken 16 infusions. It appears to be helping little.

GE

Living with Alzheimer's

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