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Vascular Dementia

julesgbw
julesgbw Member Posts: 4
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Member

I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has mobility issues, walks around with one or two walking sticks—even in the house. I would love to communicate with others. I am new to this group and don't know if we can share e-mail addresses to message privately. Blessings to all of you.

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  • easy23
    easy23 Member Posts: 398
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    My husband has vascular dementia and is on hospice in stage 7, He was diagnosed in 2018. He lost the ability to walk about 6 months ago. He is very delusional and is always disoriented. Due to his health issues and wandering, I had to place him in a nursing home. He is doing well there with 24 hour care.

  • SDianeL
    SDianeL Member Posts: 3,336
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    welcome. This forum is for all types of dementia. You can search for old posts about Vascular or VD. The search feature is at the top of the page. I am including some helpful info: Dementia is an umbrella term for a loss of cognitive functioning—thinking, remembering, and reasoning—that interferes with daily life. The specific type of dementia depends on the underlying brain changes. [123]

    The most common types include:1. Alzheimer's Disease

    • Overview: The most common type, accounting for 60-80% of all cases.
    • Cause: Abnormal buildup of proteins in the brain, forming amyloid plaques and tau tangles.
    • Key Symptoms: Difficulty remembering recent conversations or events, wandering, confusion, and progressive memory decline. [12345]

    2. Vascular Dementia

    • Overview: The second most common type.
    • Cause: Conditions that damage or block blood vessels in the brain, preventing adequate blood and oxygen supply.
    • Key Symptoms: Problems with planning, organizing, making decisions, and concentrating. Symptoms often present in sudden "steps" or drops in ability rather than a slow, steady decline. [1234]

    3. Lewy Body Dementia (LBD)

    • Overview: Includes both Dementia with Lewy Bodies and Parkinson's disease dementia.
    • Cause: Abnormal protein deposits called Lewy bodies accumulate in the brain.
    • Key Symptoms: Visual hallucinations, significant day-to-day fluctuations in alertness, sleep disturbances (acting out dreams), and motor control issues like stiffness or tremors. [1234]

    4. Frontotemporal Dementia (FTD)

    • Overview: Tends to affect younger people, frequently diagnosed between ages 40 and 65.
    • Cause: Progressive damage and nerve cell loss in the frontal and temporal lobes of the brain.
    • Key Symptoms: Drastic changes in personality, behavior, loss of inhibition, and language/speaking difficulties. [12345]

    There Are other types I didn’t list. You can private message people on this forum. Just be sure it’s someone who has posted recently. Get your legal affairs in order now. DPOA, Medical POA etc. Read the book “The 36 Hour Day” which is very helpful. Ask any questions you have here. Many will answer. 💜

  • RetiredTeacher
    RetiredTeacher Member Posts: 367
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    My husband has VD from previous strokes. His Mother and older brother both died from Alz and he has an uncle with Parkinsons disease. My husband doesn't have much problem with memory, yet. He has struggled with executive function defecits for 8 years. He processes slowly, reacts slowly, has difficulty with multiple step directions, problem solving, unexpected situations and since his last stroke 2 yrs ago, mobility issues. He still walks but his legs tire easily. He has difficulty standing for more than a very few minutes and uses a rollator when we go out. He does well with mobility scooters at the grocery store. I'm thankful he is still continent, verbal and ambulatory. He is emotionally needy and wants me close by him all the time. This has been quite the journey for us and I feel fortunate I still have as much of my husband as I do now. I realize this will change but I do enjoy connecting with others on their own journeys. Please continue to connect, it is helpful knowing we are not alone.

  • H1235
    H1235 Member Posts: 1,980
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    edited June 1

    Welcome. My mom has vascular dementia. The biggest difference I have found compared with Alzheimer’s (my mil had Alzheimer’s) is that mom really doesn’t have as much of an issue with memory. She is not able to recognize her own symptoms or limitations (anosognosia) and this has been very difficult. She has problems with , poor judgment, priorities, no worry about being on time, doing complicated tasks, learning new things, executive functioning, anxiety, math, following the plot on a movie, lack of social filter on occasion, depression and anger (because she believes there is nothing wrong with her and I stuck her in a home for no good reason). She has also become a very picky eater and is very demanding. She is unsteady on her feet but I can only get her to use a cane if I take her out of the building and even then she rolls he eyes and gives a big huff. It’s not uncommon for those caring for someone with Alzheimer’s to suggest a fib that will put something off til a later time (as a way to avoid a request or demand), knowing that by the next day (or sooner) their lo will have forgotten all about it. This would never work with my mom. Sadly, I sometimes think a poor memory would be less difficult for her and me. I will attach a few resources that might be helpful. I wish there were more specifically for vascular dementia, but I guess there really is no way of knowing what is next regardless of the type of dementia.

    https://iona.org/therapeutic-fibs-ok/

  • julesgbw
    julesgbw Member Posts: 4
    First Comment
    Member

    Hi thank you so much. I guess this is where I reply. I can't tell if this is a private message, as you suggest. I am newly feeling my way around the site. Thanks for mentioning the search option—! And I just reserved that book at my library. Blessings~julie

  • julesgbw
    julesgbw Member Posts: 4
    First Comment
    Member

    Thank you so much for posting. It is helpful to hear others' experiences

  • julesgbw
    julesgbw Member Posts: 4
    First Comment
    Member

    Interesting. I was trying to reply to H1235. I guess I. haven't learned the ropes yet! 😂

  • Chance Rider
    Chance Rider Member Posts: 314
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    Member

    Welcome! What matters most is that we found this community and have figured out how to post! I’ve been here for close to a year and still haven’t mastered the art of attaching links to articles!


    To reply to a specific post tap “reply” right under the post. Another handy trick is to type the @ symbol immediately before someone’s name, @julesgbw

    My husband is stage 5 ALZ. About 4 months ago he began using a cane or walking sticks, even in our home as he’s very unsteady.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more