Mom Refusing Care - Advice?
She is sleeping a lot more as well and it’s been really tough to figure out what to do.
Any suggestions for me and my sister are very welcomed.
Comments
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Hi Kehlstrom11! Can you place her in a sub-acute rehab?
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An individual with a recent stroke and dementia diagnosis who refuses care, likely has impaired judgement. There is likely no convincing her to allow care folks to enter her home. It is likely that she would need to be re-situated in a situation where she is safe—safe from falls, lack of food, expired food, intruders, those who could scam, medication errors, and further medical urgent needs.
When my mom lived alone, with dementia, she was sleeping at very odd hours. Doing so meant her medication schedule was all over the place. After she was moved to memory care, I found notes she wrote where she missed this dose, and that dose, etc. I don't know about your mom but my mom's medication was important clinically.
Ideally, your mom should be situated close to a family member that is responsible such as power of attorney. Memory care does not necessarily mean 24/7 care such that you are not involved. I needed to visit 2-3x/week. Due to urinary tract infections and other, extreme behavior required me to drop what I was doing and run over.
If you can't decide what direction to go, I would suggest making a list of all the decisions that seemed out of the ordinary. For example, mom's blood pressure cuff broke but for $20, she refused to get a new one; mom refused to go to Target—it HAD to be Walmart; mom walked with a 45 degree slant so big balance issue, pill boxes appeared all messed up, mom refused to let Betty the care nurse in the house, etc. Once you read through the list you wrote, you will feel more comfortable with your answer. We feel like we are violating our mom's independence. We are just trying to keep them safe.
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It sounds like it’s time for 24/7 in home care or a facility. There can be a waiting list to get in. I’m actually very surprised the hospital allowed her to go home to live alone without care. Is there a family member with a DPOA? This is very important! If so that person needs to act to keep her safe now. If there is no DPOA and you think she could still sign (the bar is pretty low), suggest that since she is getting older this is something that should be done. Don’t delay in getting to a lawyer as soon as possible. Do not bring up dementia, her lack of good judgment or the need for additional care. Poor judgment is a common symptom with dementia and is difficult to distinguish as a symptom vs just normal bad judgment. No one wants to take away our loved one’s independence, but we must to keep them safe. Many with dementia have anosognosia. This is the inability to recognize their symptoms or limitations. Since she probably believes there is nothing wrong with her, trying to convince her she needs in home care is not going to work. We have a saying here, you can’t reason with a person with dementia. If you try it will lead to an argument and you will always lose the argument. Do what needs to be done (as much as you are legally allowed) without consulting her or getting her approval. I will add a few resources that might help.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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