Recently diagnosed

Welcome "decato", to the Club no one wants to belong to...yet here we all are :)

We all have had those "millions of questions". Please feel free to ask all of them…. Jump in anytime. You will find that the people here are so very willing to share so much of their knowledge and experiences so open and freely. And we have some serious brainiacs here too that help explain alot of things on a quite large variety of topics. So i am sure no question will be too tough for them to answer. Everyone made me feel so welcome and not so alone in the new chapter of my lifes journey with Alzheimer's. Looking forward to hearing from you soon.

GEH

Hello. I have MCI/Alz diagnosed in Dec 2025. I am on a similar path as you and considering what I can do to secure my future care. I humbly suggest you reach out to your local Alzheimer’s group for support in decision making or consult a professional. It’s clear that chronic stress is not healthy.

Wishing you all the best.🤗

Sorry you have reasons to join this great group. I was diagnosed with mild alzheimers July 14, 2025. I have not experienced many changes until now. I have started seeing the following changes: Word finding ( cannot come up with simple words), Apathy ( loss of interest, can just sit in the recliner all day without much motivation or interest, but try not to do this, losing train of thought at times, etc. I wish you the best on this journey. My plan is to "try" to live in the present, "try" to get some exercise on most days, eat healthy on most days, continue to encourage myself to stay busy. The TRY part is getting to be somewhat more of a challenge, but I'm not giving in to this. My next neurology appt. is in Sept. I declined the infusions after a lot of stress with the entire infusion program. I tred aricept, but didn't see improvement, only some side affects. Take care of yourself, and my prayers for all of us dealing with this diagnosis.

Hi!! Mr. Newhouse,

Welcome to the club no one wants to belong to. 😊 Have you started any kind of treatments yet? There are a couple of different options and there are a few of serious brainiacs here that will be able to answer any and all technical/scientific questions you may have. Please feel free to jump in anytime. I know I had 8000+ questions when I started this journey and the gang here are very kind with sharing their experiences and knowledge.

GEH

Medicare does not cover Leqembi but I think I am going for my maybe 19th infusion and i have not paid a dime. I don't remember now how mine it is being covered but please see below.

• How to reach them: Call 1-833-453-7362 (1-833-4-LEQEMBI) to ask about your specific coverage.

2. Government Insurance

• Medicare Part B: If you are on Medicare, Original Medicare pays for the drug and the infusion, as long as your doctor signs you up for a special registry to track your treatment.

I have standard Medicare and a supplemental policy with Blue Cross / Blue Shield. Between the two, I have a zero-copay for my Leqembi infusions. This past Wednesday I had my 47th infusion. If you are not so familiar with Leqembi infusion numbering, my first 40 infusions were bi-weekly. Now I am on "maintenance" dosing, which is one infusion every four weeks. So this was my 7th maintenance dose of Leqembi. The day after my infusion, I ran 6 miles on a treadmill and then swam laps in our condo pool. So as you can see, the infusions don't have any significant impact on my lifestyle.

I was diagnosed Dec. 10, 2025 and had my first Kisunla infusion January 2026. After that, the insurance I’ve had went out of network with my provider. I was forced to change to Medicare A and B, also chose to get a Medicare Supplemental, I’ve had five infusions since and haven’t had to pay anything. Hopes this helps, I keep telling myself “ God’s got this “.

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