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Song Lyrics

JulietteBee
JulietteBee Member Posts: 622
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edited July 24 in I Am a Caregiver (General Topics)

I stumbled upon this song just now as my body once again refuses to sleep. It expresses my heart. I am sure I am not alone when I say, "I Am Not Okay." I hate this disease! I hate what it is doing to my darling mommy, diminishing her bit by bit by bit. I hate also that it leaves me begging/praying/wishing for some family member to notice my struggles and ask me if I am okay, and offer me a shoulder to cry on, or some respite.

https://open.spotify.com/track/73h3HCEO0Pz0oHNvx0jf5z?si=7uF3u6vUSHWC43w2i3x7Mg&utm_source=copy-link

Comments

  • jen ht
    jen ht Member Posts: 235
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    💜🙏

  • ARIL
    ARIL Member Posts: 560
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    We are with you. We know the rage and the pain—and we can confidently say that you exemplify love. 💜

  • jen ht
    jen ht Member Posts: 235
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    Someone sent me a similar song.

    https://youtu.be/Qop5XLgwkNc?is=6GALZkPSSh2QA-RG

    Sending love and prayers @JulietteBee and @ARIL 💜

  • JulietteBee
    JulietteBee Member Posts: 622
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    @jen ht, I love the song you shared. I've never heard that one either, but wow, the similarities. Thank you!

    Thank you @ARIL, I wish none of us had to be on this journey, but it does help knowing that I am not alone. 🫂

  • Russinator
    Russinator Member Posts: 381
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    Lyrics of I Am Not Okay by Jelly Roll

    verse

    I am not okayI′m barely getting byI'm losing track of daysAnd losing sleep at nightI am not okayI′m hanging on the railsSo if I say I'm fineJust know I learned to hide it well

    chorus

    I know I can't be the only oneWho′s holding on for dear lifeBut God knows, I knowWhen it′s all said and doneI'm not okayBut it′s all gonna be alrightIt's not okayBut we′re all gonna be alright

    verse

    I woke up todayI almost stayed in bedHad the devil on my backAnd voices in my headSome days, it ain't all badSome days, it all gets worseSome days, I swear I′m better offLayin' in that dirt

    chorus

    I know I can't be the only oneWho′s holding on for dear lifeBut God knows, I knowWhen it′s all said and doneI'm not okayBut it′s all gonna be alrightIt's not okayBut we′re all gonna be alright

    hook

    Gonna be alrightGonna be alright

    bridge

    I know one dayWe'll see the other sideThe pain′ll wash awayIn a holy water tideAnd we all gonna be alright

    chorus

    I know I can't be the only oneWho's holding on for dear lifeBut God knows, I knowWhen it′s all said and doneI′m not okayBut it's all gonna be alrightIt′s not okayBut we're all gonna be alrightI′m not okayBut it's all gonna be alright

  • JulietteBee
    JulietteBee Member Posts: 622
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    Thank you for the lyrics, @Russinator!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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