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Beginning to Resent My Mom

Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I don't like when my mom hugs me or touches me, because my psyche is turning all of my frustration with life on her. I need her disability money to keep a roof over our heads so social programs or MC is not an option, as I do not trust any of the state-insurance covered places I've spoken to thus far. I take care of my mom because I adore her and need her disability to take care of herself and myself as I can't work due to being in school, to try and get a career where I can make enough money to afford life enrichment programs for my mom that I feel safe putting her in. I can't get a break because I don't have money and if I can't make more money I'll never get a break. The anger is starting to pour out into wincing when my mom wants a hug, getting frustrated at my friends and spouse that they have "more freedoms," fury against my mother's family for not doing s**t. I feel like I'm trapped, and I'll never have true freedom unless I either make a bunch of money or, when she passes. I'm so scared and frustrated and most of all want to stop feeling uncomfortable around my mama.

Comments

  • Jeff H
    Jeff H Member Posts: 222
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    Member

    Love your mother above all else! It's not her fault she has this terrible disease. If your mom is still trying to hug you, you need to embrace that. That will be a fleeting moment with this disease. You could ask your spouse for more support. Your friends should understand the hardships you are going through. She's your mother, above all else!

  • SDianeL
    SDianeL Member Posts: 3,417
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    Member

    Caring for a loved one with dementia is overwhelming even in the best of circumstances. We understand how you feel. You aren't frustrated with your Mom, you are angry at the disease. You are angry that it has robbed you of so much. That's normal. Try to separate your anger at dementia from your Mom. It's not her fault. She needs your love now more than ever. Although PWD may not remember who you are or your name, I believe they remember you are someone they love and that they love you. Don't take out your frustrations on her. Get you a punching bag and write dementia on it and punch away. In reality, due to the progression of the disease, your Mom may not live long enough for you to finish school & get a good job. Try to focus on what you can do now. Work part time, school part time, look into day care for elderly in your area, and start looking into memory care facilities. Most people can't care for someone with dementia 24/7 without help. Sorry, but you may have no choice but to place her. We're here for you whenever you need to vent. Hugs. 💜

  • H1235
    H1235 Member Posts: 2,326
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    Member

    I think the assumption that living with and being cared for by family will always be the best option, is not true. You are taking on too much. You’re being run ragged. A facility will have professional caregivers (that are not over stressed and at wits end), activities and other people your moms age for her to talk to. I don’t mean to be insulting, i know it’s hard. Try to recognize your limits vs fighting a loosing battle. Unfortunately in most states Medicaid will only cover a nursing home. A nursing home has been good for my mom. You may need to consider Medicaid for yourself as well if you are dependent on her income. I have attached a link that may be helpful.


    https://www.medicaidplanningassistance.org/medicaid-eligibility-income-chart/

  • Michele P
    Michele P Member Posts: 548
    500 Comments 250 Likes 250 Insightfuls Reactions 25 Care Reactions
    Member

    I understand your frustration. Call your local Council for the Aging and find out what services are available. I can tell you from experience- losing my mother at age 18- it is a loss that stays with you forever. I would have given anything to have my mother alive to care for in her old age. The mother you love is still here. Just keep loving her. I respect and applaud you for stepping up and doing what others have walked away from. Ask for help from those who are in a position to help you.

  • JPJardinel
    JPJardinel Member Posts: 69
    10 Comments 5 Insightfuls Reactions 5 Likes
    Member

    What you are feeling makes complete sense, and the fact that you are naming it this honestly, including the part about wincing when she reaches for a hug, tells me you have more self-awareness than most people twice your age. At 26, carrying five years of this without a real break, without financial options, and without family stepping in the way they should, the resentment is not a character flaw. It is what happens when a person has been running on empty for so long that even love starts to feel like another demand. The fact that you still adore her and the fact that you are furious at your situation can both be true at the same time, and neither one cancels the other out. The anger at her extended family is also completely valid, because the people who could be sharing this load and are choosing not to are making your situation harder every single day they stay absent. What concerns me most reading this is the part about feeling like the only exit from this is her death, not because I think you mean it literally, but because that kind of thinking is a signal that you are in a level of burnout that deserves real support, not just coping strategies. Please consider reaching out to a therapist, even through a sliding scale or free community mental health clinic, because what you are carrying right now is genuinely too much for one person to hold alone, and you deserve someone in your corner who is just for you.

    I hope these references can help you:

    https://hopebridge.care/caregiver-resentment-and-burnout-when-love-feels-hard/

    https://en.wikipedia.org/wiki/Caregiver_burden

    https://www.psychologytoday.com/us/blog/caregiver-intel/202508/preventing-caregiver-burnout

  • nanc
    nanc Member Posts: 10
    25 Care Reactions 5 Likes First Comment
    Member

    I understand completely. My situation is a bit different because it’s my husband, but the way this disease robs us of emotions is the cruelest of jokes. I think we become resistant to touch mainly because even tho everyone says that they are the same person and we should love them the same, they are not. And we know they are not. True, it is not their fault—but neither is it ours to feel like our lives are stuck in impossible situations with a person we basically don’t know, and in my case would never have married. So every day I get up almost expecting to laugh with and love him like I used to, and instead find myself trying to figure out impossible situations and trying not to say the “wrong thing” that will set him off and turn into a fight. When you live with someone whose “reasoner is broken,” as I’ve heard here, you just plain lose a part of yourself trying to live in their world. And it’s often not a sweet, “they just don’t remember” world. It’s often an angry, anxiety, soul-sucking world with someone who can no longer show anything but resentment toward you, no matter how much you do. I know that sounds really negative and sad, but sometimes we just need someone to say I see you and recognize what you’re going through too, and that it’s not just their disease. It’s yours too. And it sucks. But you’re not alone, rosecoloredglasses, this is a place where we can at least hear from others in similar situations, commiserate, and maybe take a bit of solace from that. Hang in there, just your name here says you’re a special person who has hope for a brighter day!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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