Acts like a bratty child
My DH with EOA now for 4 years acts like such a big baby. He sulks around, slams draws and stomps around when the day doesn't go his way. I went to visit my grandkid and told him I would be gone until 2pm. When I left, he was fine with that. When I walked into the house at 2pm he was MAD. He seems to not want me to have a life without him; but he's uninterested in spending time with family. In a nutshell… he is happy when it's just he and I at home doing NOTHING!! Does anyone else have this issue and if so, what do you do? My DH is able to be left alone at this point of the disease, and I know there is coming a time when that won't be the case.
Comments
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It’s not that he doesn’t want you to have a life. It’s that the disease causes him to loose empathy. He can no longer put himself in your shoes or think about what you might need. My DH went through this stage. He would be ok and then angry when I returned. It is hard to not be upset by this but I learned to try to redirect or change the subject. I also stopped asking if he wanted to come with me because the answer was always no. So now I don’t ask. I just say we are going to see …. and he just comes along. Or I say I am going to….. and you can come or not. He usually decides to come. When I go to the gym or somewhere he can’t go I try to not be gone more than 2 hours. The anger seems to have disappeared. Maybe due to progression or just me staying calm.
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I can relate, Lisamarie62. My DH is stage 5 and he will act like a baby if there are people visiting because he wants all of my attention all of the time. If I talk on the phone for what he considers is too long, he gets mad, or if someone is visiting, he will keep asking me to sit with him or keep asking me to find something he thinks he needs, or ask me to get him something to eat, or ask me to look at his appointment book in case he has an appointment at the exact time someone is visiting.
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My DH(stage 5-6) is doing the same things. When it is just the two of us in the house he is fine. But if I am talking on the phone he starts needing help with things or can’t find something or starts making noise (sometimes he starts vacuuming right next to me). When my grandchildren, who live next door and across the street, come over he starts being irritated and constantly looks for attention. He will need help with his phone, wants lunch, can’t find something, starts doing things he can’t do, and even argues with the kids. They understand his condition and do their best to help get his mind on something else. When it is just the two of us he will sometimes follow me around the house. I have actually tripped over him a couple of times because he follows so close. He will keep asking what I am doing or keep making me go to the window so he can show me something outside. I giving him my time throughout the day but some days he just isn’t satisfied and acts like a big kid.
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If you look at the dbat you will notice it gives a rough age equivalence for each stage. At stage 4 I noticed signs of teenage attitude. When try to protects moms money from her bad decisions she said, “Its my money and I can do whatever I want with it and you can’t stop me”. Dementia is about so much more than memory loss. Try to remember that this childish behavior is dementia not him being difficult. I think that change in mindset allowed me to feel sympathy rather than frustration.
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Dear @Lisamarie62
Here is a copy of the Dementia Behavioral Assessment Tool (DBAT) that @H1235 mentioned
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I can relate to so many of these comments when my DH was in those earlier stages. I remember some rare times, before I ever had thought about testing for dementia, where he would throw a fit, almost a temper tantrum followed by pouting for a while. It was so unlike him and I never knew when it would happen. A couple of years later when he was diagnosed, I now could attribute that to the beginning stages of Alzheimer’s. He did get more childlike in the later stages with following me around, not letting me have a phone conversation, wanting to be the center of attention when out with friends, but that eventually passed. The only way to deal with it is to not get upset or defensive, and remember that it’s not personal, it’s their messed up brain. Staying calm helps to calm them. Distraction, redirection, anything to get them away from whatever is upsetting them. It’s very hard to keep your cool but you will get better with practice and understanding what’s really going on.
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same same same. 4 years into EOA and mine acts the same way. I don’t get it. He doesn’t want to go visit anyone but if I do I come home to a moody person for 2 days usually. Today I can’t please him, my son, or my mother whom also has dementia just not real bad. Can’t wait to see what my 3 daughters through at me this evening! Life is so fun and full of cherries on top.
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If life is a bowl of cherries, what am I doing in the pits, eh Ginger?
My DW was never bratty about her demands about me being with her 24/7. She always pulled her therapist card to "have a talk" so she could explain to me why I couldn't have any friends. Haha. She literally did that several times where I'd say, "Are you telling me I can't have any friends?" and she'd say, "Yes. Exactly.", in all earnestness.
Even in my exasperation, I found that pretty darn funny. Still do, actually. But, the biggest change I made came from these conversations. I realized suddenly very clearly how she could no longer reason because of these very conversations. It made realize I needed to be incredibly strong to find respite time for myself in the face of the love of my life demanding that I not take any time for myself. Disappointing her was always the hardest thing for me to do in our relationship. I wanted nothing but to make her happy, but that demand was just a bridge too far and I honestly think fighting for respite time saved me.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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