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Local support group

My husband has been diagnosed with early Alzheimer's. I am looking for a support group to discuss stages of this disease/actions that I can apply to my own situation
Thank you

Comments

  • mpowrie
    mpowrie Member Posts: 5
    First Comment
    Member

    Hello. I was just diagnosed with early onset at the age of 54. I am also looking for a support group that specifically relates to early onset.

  • Timmyd
    Timmyd Member Posts: 425
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    Member

    I have not contacted this group myself, but I have read about others who have had positive experiences.

    https://www.lorenzoshouse.org/

  • Maru
    Maru Member Posts: 544
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    Member

    Check with the AlZ Association. They sponsor support groups across the country (USA) and will know if there is group in your area. I started attending such a group early in my DH's diagnosis. It was a relief to be able to tell others about your fears and so on, knowing that they all have walked in your shoes. Plus, you will have people who can give you tips for care along the way. I hope that you find a group.

  • AlekoW
    AlekoW Member Posts: 68
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    Member

    I signed up for the husbands of DW LOs (I think it's YOA, but my brain's RAM is off at the moment). The moderator/facilitator Joe is really cool. Looking forward to this group.

  • AlekoW
    AlekoW Member Posts: 68
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    Member

    The Alz Assoc got us set up with a YOA caregiver & a LO/patient group via the SoCal localcall the main helpline number and ask for a YOA group close to you. Be sure you emphasize YOA because those groups are, so far, a rare breed—I've heard they're trying to add more YOA groups.

    Also Lorenzo's house has a variety of groups (someone linked it in this thread).

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more