Alone with no visitors
My DH is transitioning between stage 7 and stage 8. He has mixed dementia and is receiving hospice care. He is now in a memory care facility. There are at least two other people in his section who are also dying.
I have been with my DH for 6 to 8 hours each day for a week now. So far I haven't seen anyone in his section get a visitor. I know his neighbors well and it makes me sad that no one comes to see them other than the hospice staff and the staff at the MC facility.
Memory care facilities are not the easiest places to visit but you get used to it. There are worse places to visit.
I can tell by the way staff treats me that having someone sit with their loved on for hours is rare. They are not sure what to say to me or how to treat me. They mostly keep their distance.
I ended up bringing my DH some food. Even though we pay $1400 a month for his food they can't seem to find anything that an old man can eat when he doesn't have his dentures in. One aid offered a stale piece of cake that sat in the refrigerator uncovered for a few days. I said no thanks and she offered it again the next day so I headed to the grocery store and bought some food.
The nursing staff is totally indifferent. Most of the aids that provide his daily care keep their distance. I feel fortunate that I have family that stop by to check on us almost every day.
If you have a loved one in a memory care facility visit them often. People who have visitors are happier and they get better care.
Comments
-
I only live 3 miles away, so I visit my wife, mid stage 7, 6 days a week. I do see family members of some of the other residents and have gotten to know a few of them.
2 -
Yes, and visit all different and ever changing times. If you loved one gets agitated when you visit, observe them from afar and find someone else to visit. Get to know the caregivers. Say thank you. People post here about when their loved ones say such terrible things to them (my mom said very unkind words to me). I try to show empathy for the staff as I know residents are saying mean things to them too. Yes, they are professionals but it does get to you after while.
2 -
When my spouse was dying in memory care I was very aware that other families and possibly staff were judging me for not being there more. I was (and am) still working full-time and doing the best I could. We see the residents at one moment in the decades-long relationships they had over lifetimes, and we cannot know what is going on in those relationships or in their family members' lives.
Now my dad is developing dementia and his caregivers have their own judgements. He never had time or attention for me until I was 60. Now all of a sudden he has always loved me and I should give up my 60s to care for him. I am supportive, but I only want to deal with his issues on the time that is budgeted for him. Not 24/7 whenever someone else is having an issue.
1 -
Yes. I know that I am fortunate. I will likely go back to work but for now I can visit often. I am sure there are reasons why so many people end up in MC facilities with no visitors.
0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 698 Living With Alzheimer's or Dementia
- 402 I Am Living With Alzheimer's or Other Dementia
- 296 I Am Living With Younger Onset Alzheimer's
- 19K Supporting Someone Living with Dementia
- 5.9K I Am a Caregiver (General Topics)
- 9.3K Caring For a Spouse or Partner
- 3.4K Caring for a Parent
- 247 Caring Long Distance
- 206 Supporting Those Who Have Lost Someone
- 13 Discusiones en Español
- 1 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- Vivo con Alzheimer de Inicio Más Joven
- 12 Prestación de Cuidado
- 3 Soy Cuidador (Temas Generales)
- 8 Cuidar de un Padre
- 23 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 8 Account Assistance
- 15 Help
