Caring for Grandma / hallucinations

Welcome to the message board.

Goodness, that sounds exhausting for sure. I will say as far as doctor offices are concerned - become a squeaky wheel. Meaning use the patient portal in both the primary and neurologist office and voice your concerns. When that isn't responded to, send another note via the portal the next day. But also call for an appointment. Even though you don't want an appointment you get a person on the phone and ask why no one is responding to the patient portal. That usually works. If not ask to speak with a nurse - either office and tell them your concerns. You are not being a pest asking the doctors office to do their jobs.

Is she sleeping through the night? Could she possibly have a UTI? That changes behavior. Your ultimate goal is to keep both of you safe. What would happen if you - for example - said let's go for a car ride during this? Would it stop? Would the car ride redirect her? It might be worth a try. Redirection of any kind is a good tool to use.

Let us know how you both are getting along.

eagle

Hi Raffaella:

My mother began having hallucinations in her 70's. They were people who would come visit her and sit with her on the couch, they were harmless. She believed they were spirit guides. As time went on, she had frequent nightmares that were very real to her. She would scream out at night. Her health care provider ordered some tests, and she was diagnosed with Lewy Body Dementia. She became an angry person. I cared for her in my home for 6 months prior to her death.

I hope you can find some testing for her.