too early?
Is it ever too early for placement? I feel like we could go another year caregiving at home but what is the point? My oldest son (35) has lived with us for 4 years to help practically and financially. My DH is 83 stage 6 & I am 54—-bankrupt & unemployed after 4 years of full time caregiving (and a lifetime before that of carrying the bulk of responsibilities i.e. finances and parenting).
Son prefers not to place his dad but says he can't care for him alone so I am the bad guy left holding the bag. Just began to build my life back up and for that I need time and freedom. There is no extra help or respite—just the two of us. Have two other children but their help is impractical and infrequent as they live 3 hours away and work a lot. My kids resent me now because I am building a new life, have a bf, and have been taking time for myself so the burden is on them when I go away for a few days. I know life is short and I want to live mine.
Comments
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I'm sorry, but if the kids don't want to step up and help, then I would say they have no say in the matter. And if the stage has reached beyond what your oldest can even handle, then I would think that by stage 6, you've carried enough. Placement is NOT abandonment, either, as may be the reason they may seem adverse to you re-building a life?
Barry Peterson (the news correspondent) wrote about this regarding his wife. 'Jan's Story' . maybe check it out? He loved Jan, would never abandon her, but he, too, had to get on with living.
Would some adult daycare help in the meantime?
I'm sorry you are dealing with 'this'.
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Thanks. It's really time. Not easy.
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It's not easy, I agree. I'm with @SusanB-dil - this is not abandonment. I placed my sister in memory care when she was in late stage 5-early stage 6, and spoke with her every day (except one day a week when I gave my self a break), and visited often. My days were still dementia filled.
Placing her was the right thing to do. She was ready, and there was no way one person could look after her effectively.
I think there's a lot of apprehension and outdated information out there about memory care facilities. My sister was originally fretting that my brother and I were going to "put her in a home", and that it would be like a prison. Nope, not true. A good memory care facility will have engaged staff who will do activities and exercises with residents, go on short drives (for those who are able), etc. There was a lot of socialization for the residents, each to their ability.
If you can swing it, I'd say start looking now. There may be a waiting list.
I do think that once your son gets clued in about memory care some of his objections will fall by the wayside.
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You may want to tell your kids that the caregiving does not stop with placement. The everyday issues may subside and make life easier for you and your son, but the concern will continue and attention to the care your DH receives will still need to be paid.
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If you feel that both of you will be better off after placement, then it is time. Your children, including the one living with you (I have one, too) have no idea what you are going through. They are in no position to make that decision or to not accept it when you do. You do have to make a new life for yourself and if that includes a boyfriend, that's alright. You have to live for you, so live it.
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When you ask yourself is it time, it's time or past time. I thought I could hold off until Jan, after the holidays. My DW is late stage 5, she struggles and tries so hard, she fighting it, but we all know "it" wins. I'm sole caregiver, no kids, and nearest family is 1200 miles away. No matter how you try to educate family they retain little or nothing, and like everything else they make it about themselves. Please take a hard look around and execute that hard decision because you already made the decision. God bless and best3
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@AlzWife2023
I am so sorry you find yourself in this space.
IMO, stage 6 is not "too early" for your DH to be in a MCF; once a PWD can no longer be safe at home, MC is a excellent option. At a certain point, a PWD's care requires a team effort as a spouse can't do it without lowering standards and at a tremendous personal cost. Circumstances are such that you can't financially afford to assemble a team at home. At 35, your DS should be focused on building his own life— finding a partner, nurturing friendships, building a career and perhaps a family.
As an adult child, perhaps I am projecting. But here goes. Your sons are entitled to their feelings— especially the one who has been contributing to the household financially and otherwise. I suspect it might be the boyfriend that is upsetting to them. Have you been able to discuss this with them? Younger people who have their whole lives ahead of them may not realize what it feels like to be in your shoes, trapped in 24/7 caregiving, with the clock running down and no end on the foreseeable horizon. It takes a certain amount of maturity to understand that you can care for and honor a spouse while living the only life you've been granted.
There was a man at the local support group I attended who was sweet on my mom. The feeling was mutual. They never saw each other outside of the meeting, but it was pretty obvious to all in the room. I, personally, did not have an issue with mom finding a friend who she could have dinner with or whatever 80-somethings do for fun, but his son was horrified by one of their dad's and mom's extended hugs (he hugged those who were OK with it on parting). They literally "c*ck blocked" him— sitting between them at the meeting, insisting on driving dad to the meetings, and scheduling appointments for right after so they could hustle him out before his famous good-bye hugs. The son was a medical professional who would close his practice early and drive over an hour each way to maintain his dad's chastity. SMH. Maybe it's a boy-thing.
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No advice other than I agree that life is short and we only get one go around on this earth. Please don't feel guilty for wanting companionship and a full life. You may also need to focus on building income/retirement savings while you still can, and perhaps you want to travel or partake in hobbies while your health is good. It's all fair and what anyone deserves. Family dynamics are hard. Hugs.
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Is it too early for placement not if opening that door improves one's health -physical and mental. Wait too long and it is also harder for the PWD to get accepted at AL OR MC , and their adjustment can be harder also. Staff would get to know more of them if they move earlier and have more personality left.
@harshedbuzz "Maybe it's a boy-thing. " hmmm…could be …or a protect the estate thing. Late late in life repartnering /remarriages can leave the adult kids blocked from financial inheritance and family mementos. I "lost" everything to step-families— they even "lost" the urn with my parent in it-because it didn't matter to them at all . All the monetary valueless but priceless , to me, family mementos tossed by them.5 -
amazing reply! Thank you!
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Thank you!
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Thank you.
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I’m going to speculate that the son doesn’t feel that it should be his responsibility to care for your husband while you date. I think it’s time that you place your spouse where there’s a staff that is there 24/7, because stage 6 needs 24/7 supervision. Which is something one person cannot do on their own even if they are the best caregiver on earth. Let your son get back to building a life in his 30s.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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