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Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
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Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
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Hospital stay for medication adjustment?
Hello, all. My DW has been in skilled nursing care for several months. She has later-stage Alzheimers but also physical limitations — needs help with eating, toileting, walking on 24/7 basis. She became more agitated and combative in recent weeks so SNC staff said she needed to go to hospital psych unit for medication…
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Mom doesnt listen
My mom is early onset Alzheimers and is experiencing some cognitive decline but not to the extent that I can contact the agency on aging for a caregiver. She can still bathe herself, etc. However, she does not listen to or obey what I tell her no matter what the reasoning. Right now, I am the only one available to take…
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Scary and depressing delusions - how to respond?
My mother is in stage 4 of dementia. She's been anxious for over a year. Since she hates meds, I haven't felt it's severe enough to push for anxiety medication. I've been increasingly aware she is having delusions that cause more anxiety. I know the general advice is to accept their reality and not argue with how they are…
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My mom has EOAD… need advice/support
Hi People, I have never had the courage to ask this question of the health professionals, I feel disloyal even asking it, and every time I have to verbalise my family’s situation, I burst into tears, but here goes. My mom was diagnosed almost 4 years ago at 46 years old during my freshman year of college, she still lives…
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How to keep their mood from ruining yours?
When my mother with early-to-moderate dementia has a bad day--ie., crying, anxious, or angry--I find it greatly affects my own mood. I am having a hard time separating my own feelings from hers, I guess. I have recently been prescribed Lexapro and it is helping to some degree, but I am wondering how other people manage to…
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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On the verge of a nervous breakdown
Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the…
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Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
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Fear and refusal of standing/transfers?
Prefacing with my mom seems to be in the later stages. She recently does not want to get up or stand up. In the morning, she will not want to sit up in bed. Once we get her in a sitting position, she is refusing to stand up. She would rather just sit there. When we get her up with a gait belt, she gets very angry and…
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"Survivor's" Guilt
I find that in addition to feeling guilty for the pain I am causing my mom by taking away her independence, I feel a form of "survivor's" guilt, in that it is very hard for me to allow myself to enjoy basically ANYTHING. I feel guilty feeling happy when I know she is struggling with so much (grief at the loss of her…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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I’m worried
Hello, I’m here because my dad recently got diagnosed with early onset Alzheimer’s. Everyone says “at least it’s early and there’s awhile”.. but we never really know how quickly this disease can progress. I’m worried, I’m going to lose my dad at some point. And I feel guilty too for feeling like my life is going to be…
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Any advice on severe emotional hysteria?
My mom was diagnosed with early onset Posterior Cortical Atrophy (a form of Alzheimer's) around 2 years ago. She is only 59. She has been going through a pretty rapid decline and we ended up moving her into assisted living last year. Obviously this has been tough on her and it's been an emotional roller coaster, but she…
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Ready to give up
Anyone who has been following my saga knows I’ve been staying with my recently widowed mom for over a week because I became alarmed about her confusion during my last visit. At the beginning of this week, I was determined to get her into AL right away. Now after seeing 2 doctors who both basically told her she is fine and…
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Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
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When to know
I currently live with my mom and she was diagnosed with vascular dementia and Alzheimers six months ago or so. She is definitely starting to change but its hard for me to tell because I am around her all the time. She still drives, etc., and I am not sure when I will know i should take her keys away, etc.
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
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being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…
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Mom refusing to go to Dr appointments
New here. Mom has ALZ/Dementia and COPD. She is dependent on oxygen concentrator. For years now, Mom has been canceling dr's appointments on the day. Dad, who was her primary caregiver, died in May '25 and my brother and I are trying to care for her in her home. She recently fell and had a gash on her scalp, leading to…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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First time caller
My wife (60) has been struggling remembering things that happened yesterday or even an hour ago. I thought it was stress related because we had major events in our lives: retirement, moving across country, empty nest, new grandchildren. But that was just the start. We tried playing games like pickleball, cards, dice - most…
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It’s finally real
I’ve known my mom has dementia for at least a few years but we finally got the official Alzheimer’s diagnosis a couple months ago. I moved her into an assisted living community a little over a year ago because it wasn’t safe at home but we were dancing around the dementia issue and focusing on getting her heathy otherwise.…
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Lost My Father Tragically - Learning How to Move Forward
Hi everyone, My father died as a result of dementia. During the night, he became confused and unsafe, something dementia had been causing more and more often. He left the house, and by the time my mother found him in the morning, it was too late. Writing that still feels unreal. What I am struggling with most now is guilt.…
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rough day w dad in MC "Get me out of here!"
Hi community, Dad was pretty agitated today during our visit. Redirecting was not working, so I had to cut my visit short. I'm wondering what I am missing or if you all have more ideas for me to consider. Here's some context plus what I'm seeing lately. He tells me that he just has to get out of there. Over and over. I…
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Missing my mom
My mom has dementia and she fell a couple of months ago fractured her pelvis and was in the nursing home for a couple of months for rehab. She did come home but we felt she needed more care than what I could give her. It’s just been me and my mom since my dad passed away in 2002. I’m so full of guilt for putting her in a…