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DW Doesn’t recognize me
My DW (65) has been battling Alzheimer’s for the past 8 years and is now in early Stage 7. I have been her primary caregiver throughout this journey, although earlier this year I hired a caregiver who comes four days a week during the daytime to help. Over the past several months, my wife has continued to decline. Most…
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To sell or not to sell…
We moved my mom out of her house and into AL near me back in April. She was not emotionally ready to let the house go, so we have not tried to sell it yet. She occasionally talks about moving back there someday, but of course that is never going to happen. However, I think it makes it easier to accept her current…
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Stress, guilt, confusion
My oldest sister told me she was diagnosed with Alzheimer's a month ago. I know she's had mild memory loss for years, but she hid it well. It still seems mild to me, but I've never known anyone with this disease. She calls me to tell me that I never call her, although we speak frequently. When the conversation starts, she…
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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New to this site & in distress
My DW of 55 years was diagnosed with AZ, VD, LB in December of 2025. She has a wide range of health issues, which I have helped her handle for our entire marriage, The latest issue that I have struggled to deal with is her diabetic control. She has been a diabetic since she was 12YO. She has had an insulin pump for nearly…
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Dad's Almost Totally Impossible to Communicate With - Help Needed
[I've been a lurker for a few months, but I'm hoping to get some advice. Thanks, in advance.] My Dad (82) was diagnosed with early-stage Alzheimer's just under a year ago. Yes, I was floored. But it made sense, too. We'd been fighting for a few years regarding how he's [not] been communicating me in a reliable manner. For…
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Family member's death
My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.
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Help for calming
In addition to the donezpril and memantine, has anyone added any cbd products for sleep and or calming? I would also like to recommend the digital publication " What About Me" that I found on womanandwell.com for wives dealing with husbands with dementia, but would also pertain to husbands with wives living with dementia.
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Scary and depressing delusions - how to respond?
My mother is in stage 4 of dementia. She's been anxious for over a year. Since she hates meds, I haven't felt it's severe enough to push for anxiety medication. I've been increasingly aware she is having delusions that cause more anxiety. I know the general advice is to accept their reality and not argue with how they are…
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Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
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Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
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Hospital stay for medication adjustment?
Hello, all. My DW has been in skilled nursing care for several months. She has later-stage Alzheimers but also physical limitations — needs help with eating, toileting, walking on 24/7 basis. She became more agitated and combative in recent weeks so SNC staff said she needed to go to hospital psych unit for medication…
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Mom doesnt listen
My mom is early onset Alzheimers and is experiencing some cognitive decline but not to the extent that I can contact the agency on aging for a caregiver. She can still bathe herself, etc. However, she does not listen to or obey what I tell her no matter what the reasoning. Right now, I am the only one available to take…
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My mom has EOAD… need advice/support
Hi People, I have never had the courage to ask this question of the health professionals, I feel disloyal even asking it, and every time I have to verbalise my family’s situation, I burst into tears, but here goes. My mom was diagnosed almost 4 years ago at 46 years old during my freshman year of college, she still lives…
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How to keep their mood from ruining yours?
When my mother with early-to-moderate dementia has a bad day--ie., crying, anxious, or angry--I find it greatly affects my own mood. I am having a hard time separating my own feelings from hers, I guess. I have recently been prescribed Lexapro and it is helping to some degree, but I am wondering how other people manage to…
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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On the verge of a nervous breakdown
Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the…
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Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
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Fear and refusal of standing/transfers?
Prefacing with my mom seems to be in the later stages. She recently does not want to get up or stand up. In the morning, she will not want to sit up in bed. Once we get her in a sitting position, she is refusing to stand up. She would rather just sit there. When we get her up with a gait belt, she gets very angry and…
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"Survivor's" Guilt
I find that in addition to feeling guilty for the pain I am causing my mom by taking away her independence, I feel a form of "survivor's" guilt, in that it is very hard for me to allow myself to enjoy basically ANYTHING. I feel guilty feeling happy when I know she is struggling with so much (grief at the loss of her…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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I’m worried
Hello, I’m here because my dad recently got diagnosed with early onset Alzheimer’s. Everyone says “at least it’s early and there’s awhile”.. but we never really know how quickly this disease can progress. I’m worried, I’m going to lose my dad at some point. And I feel guilty too for feeling like my life is going to be…
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Any advice on severe emotional hysteria?
My mom was diagnosed with early onset Posterior Cortical Atrophy (a form of Alzheimer's) around 2 years ago. She is only 59. She has been going through a pretty rapid decline and we ended up moving her into assisted living last year. Obviously this has been tough on her and it's been an emotional roller coaster, but she…
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Ready to give up
Anyone who has been following my saga knows I’ve been staying with my recently widowed mom for over a week because I became alarmed about her confusion during my last visit. At the beginning of this week, I was determined to get her into AL right away. Now after seeing 2 doctors who both basically told her she is fine and…
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Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
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When to know
I currently live with my mom and she was diagnosed with vascular dementia and Alzheimers six months ago or so. She is definitely starting to change but its hard for me to tell because I am around her all the time. She still drives, etc., and I am not sure when I will know i should take her keys away, etc.
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…