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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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Cochlear Implant
My DH who is 77 has mid stage Alzheimers , tinnitus and severe hearing loss. He qualifies for a cochlear Implant. I was hoping someone has gone through the experience of their loved one getting one. I am concerned about how my DH will handle getting used to it and ability to do so. Any help much appreciated.
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Vascular Dementia
I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…
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Crying often, delusional
Hi, my 85 yo dad was diagnosed 2.5 years ago. Overnight, it seemed, his behaviors worsened. He cries a lot, says he wants to go home and asks where all the other people are. It’s heartbreaking to see this. I am his primary CG. My brother is flying in soon to take over for a few days. My world has shrunk so much. I want to…
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Sharing your LO's background with various providers
My mom has been in the hospital a few times (including the ER, behavioral health, ICU, regular hospital) and also has home care aides and home health nurses come by. Every time we interact with a new provider we need to repeat the same information over and over again, adding in anything new. I started collecting some of…
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Dad's Almost Totally Impossible to Communicate With - Help Needed
[I've been a lurker for a few months, but I'm hoping to get some advice. Thanks, in advance.] My Dad (82) was diagnosed with early-stage Alzheimer's just under a year ago. Yes, I was floored. But it made sense, too. We'd been fighting for a few years regarding how he's [not] been communicating me in a reliable manner. For…
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Cell Phone
My father is starting to experience issues with the phone and keeps calling 911, as he thinks he needs to turn his phone off after every use. I really don't want to get rid of it as we're just 2 months past taking away his car which has been a hard adjustment. Any advice?
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Newly diagnosed father with Alzheimer's
Hi all - so glad I found this site. My dad is 66 years old, and I am 27. He is still living on his own. We only recently got the diagnosis (within the past two weeks), and he is in the mild/moderate range of dementia. I live two states away, but my brother is within an hour. I am having a hard time figuring out what to do,…
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Medicaid Pending AL monthly payments
**update: I ended up paying. Director refused to put in writing that they will honor the overpay in credits. Said it would make him look "disingenuous". That he has to honor the credits or it would be Medicaid fraud. It was taking too much of a toll on my mental health to have this battle as my attorney's quit responding…
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Control of financial power DH has Alz
hello caregivers has anyone had to control/limit their spouses powers, regarding finances, investments in particular? My DH is fine with money at home, and does not go out without me. A problem arises on rare occasions when he considers our investments. We are seeing his neurologist in three days. Do I need to get the Dr…
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Mother very angry - need help
My mother was diagnosed about 2 years ago, and she's steadily declining. She has haunting memories come every week or so of when my father had an affair over 20 years ago. They got back together and had a whole life after the affair, but she is reliving the experience of when she first found out about it all those years…
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Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
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Delivering Bad News
Looking for some advice on how to have difficult conversations with someone with dementia. My mom was diagnosed with frontotemporal dementia in January. We recently moved her into an assisted living facility as she is not able to live alone safely anymore. She is relatively young, 63, and while she definitely has some…
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Need resources & ideas
Hi, My dad was diagnosed with Dementia in October of 2025 but it has progressed rapidly and he is living in an unsafe situation at home. He falls frequently at night, has hallucinations and can be very agitated and aggressive. My mom is is caretaker and is with him 24/7. I’m extremely worried about her health and well…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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Hospital stay for medication adjustment?
Hello, all. My DW has been in skilled nursing care for several months. She has later-stage Alzheimers but also physical limitations — needs help with eating, toileting, walking on 24/7 basis. She became more agitated and combative in recent weeks so SNC staff said she needed to go to hospital psych unit for medication…
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Mom doesnt listen
My mom is early onset Alzheimers and is experiencing some cognitive decline but not to the extent that I can contact the agency on aging for a caregiver. She can still bathe herself, etc. However, she does not listen to or obey what I tell her no matter what the reasoning. Right now, I am the only one available to take…
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Bathroom accidents
Hi everyone. My mother is the primary caregiver for my father, who has Alzheimer’s that has been progressing quickly. We need some advice. Over the past few months, he has started having significant difficulties with toileting hygiene. He’ll use the bathroom but is no longer able to complete the wiping process — usually…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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My mom has EOAD… need advice/support
Hi People, I have never had the courage to ask this question of the health professionals, I feel disloyal even asking it, and every time I have to verbalise my family’s situation, I burst into tears, but here goes. My mom was diagnosed almost 4 years ago at 46 years old during my freshman year of college, she still lives…
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
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Mom Might Get Evicted from Memory Care
This may sound harsh, but it's our reality right now. We moved our 84-y.o. mother with dementia into a lovely memory care facility last week. The dementia symptoms advanced quickly - she was driving and socializing mid-February, and a month later she's getting lost in her own neighborhood, forgetting where she is, and…
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Need Advice
Hello, My dad is being discharged from a hospital soon after treatment for a blood clot and heart failure. We aren't sure what is primary right now, the heart disease or the memory loss, but he's very immobile so we're afraid he'll get a clot again. He lives with my mother and my disabled sister (my mom has her hands very…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
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Nursing facility. Does anyone have advice on mom’s boyfriend who constantly stirs the pot.
I am my mom’s HPOA/DPOA. She has a boyfriend she lived with for 28 years. Since she was placed in a nursing facility 6 months ago after a fall he is constantly stirring the pot. Today she told me she’s getting a petition signed to say she doesn’t have dementia and “it’s a secret”. She has Parkinson’s and related dementia.…
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Concerned newcomer
Hi, I just created an account for this group,hoping to find support and helpful information. I am a loving partner to a 76-year-old woman who has been exhibiting memory lapses, delusions, and paranoia. I care deeply for her and am trying to figure out how best to help her, beginning with that first awkward, sensitive…
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Leqembi
Hi, Dad went for his first MRI after 1 month of being on Leqembi. The doctor's found internal bleeding and brain swelling. Dad will stop taking infusions. In June the doctors will give him another cat scan to check his brain. If he improves, they will put him back on leqembi. Honestly, I am against him doing this infusion…
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Watching Alzheimer’s Take My Grandmother Changed Me! Now I Want to Build Something That Helps
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…