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desperately seeking advice for unique situation
Hello everyone, I’m new to this board and am hoping some of you can offer me some advice because I have no idea where to turn. This is all really a lot so I appreciate all of you who take the time to read it. My aunt and uncle both started showing signs of memory decline approximately 10 years ago. No matter how hard my…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Caregiving for Parent when you have a full time job and a teenager
Good morning. I am new to this forum and located in Wichita, KS. My mother has some memory issues resulting from an unknown stroke about a year go but discovered after she had a fender bender last March. I am 55, work a full time job, have a 16yo at home and two dog :smile: . She has always lived independently (my dad…
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Special needs trust
We’re meeting with a lawyer to go over our wills. There’s going to be a discussion about “self settled special needs trust” vs “third party trust”. My wife is turning 65 on October 12. She was just diagnosed this year. I’m thinking a third party trust would be fine. Does that make sense?
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Need help for my mom
My step father is caring for my mom who is quite advanced, she doesn’t really get any interaction with anyone, they live in a small town in Nevada so not many resources there. My step dad is slowly losing it with my mom, short fuse and all, he wants to put her in a State home but mom still recognizes everyone , just has a…
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Feeling defeated
I am new to this forum and after reading through other's posts, I finally feel validated and not alone. I am the caregiver for my Mom who was diagnosed with dementia 2 years ago. She has been living with me for approximately a year after needing more care than could be provided at the ALF she was living in. She has become…
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Meal Ideas
Hi everyone! My mom previously was an adventurous eater. Lately, she has trouble with finding foods she likes to eat. Her tastes have changed and she tends to just eat "junk" (chocolate, pretzels, peanut butter crackers, ice cream). Even things she liked a week ago, she says she does not like them anymore. We're trying to…
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Power of Attorney
My wife has early-mid stage Alzheimer’s and anosognosia. I’ve been told I need power of attorney, but I have questions about that. Do I really need this, given that all our assets are held jointly? Is there a way to set up power of attorney without confronting her with her condition? She gets upset when that happens and…
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Help With Care for My Mom & Myself
My mother was recently diagnosed with Dementia. Currently, I have in-home help which I plan to continue as much as we can. I am wondering if anyone knows of support groups (the ones I've found in my area are already full). This is completely new to me and I want to ensure I am doing the best I can for my mother. Any help…
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Challenges over Loss of Control
Good afternoon! I'm a brand-new poster and am an only child to my 79-year-old mom with VD. She's in memory care and has been in decline for years, with bigger deficits after stroke-type symptoms and multiple falls. Over the past year, she's become more paranoid and accusatory about my not visiting enough, the management of…
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Support for the spouses or partners of dementia caregivers!
:/ Is there any information on support groups for the spouses or partners or the caregivers or info on what it can do to a relationship or marriage? Any information is greatly appreciated!
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post placement
Over the past 7 years I've been caring for my DH I've benefited so much from the advice and knowledge of these discussions. We celebrated our 60th wedding anniversary this year and next week I will be placing him in memory care. I am devastated and and would really appreciate hearing from those who have been through it…
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First-Time Poster Requesting Support
Hello to you all. This is my first time to post in the forum. I have been reading a few posts that may help me with my father. At his most-recent visit with his neurologist, we were told he was at stage 6B of Alzheimer's. We have been living with what we were told was dementia for several years, and the Alzheimer's…
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Emotional Abuse
Hi there, This is my first post and, I'm really desperate for help or advice. I am moving cross country to care for and support my mother who was just diagnosed with Alzheimer's (though, I think this has been progressing over the last several years). I am doing everything I can to help her and it never seems like enough or…
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Help Needed: POA Grey Area Pre-Hospice
Looking for any help out there I can get. My dad has ALZ/VD stage 5, 80yo, is in AL/Enhanced Care. I am the activated POA and my dad has requested no ER, no hospital, no ambulance. He is still being seen by PCP and cardiologist. Dad has many medical issues in addition to moderately severe dementia; heart failure, diabetes,…
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My DH was just diagnosed with Alz
My Dh was just diagnosed with early stages of Alzheimer’s. He’s doing well now but we are both overwhelmed with making decision s for the future. Do we stay in our home of 45 years or downsize to an adult community? If we stay put, how to prepare to make home safe? How and where do I get help when I need it? What legal…
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resources for re-homing a rescue dog in Middle Tennessee
Hi folks, Thanks for all your support and wisdom. I've been lurking for months, reading and gaining support, but this is my first post. My sis and I are remotely supporting a father with ES dementia and a mother who is highly functional but recovering from a serious TBI herself, requiring massive caregiver support for…
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Repetition is "expressing concern, ask for help or coping"
An Alz.org page states "People with dementia who ask questions repeatedly may be trying to express a specific concern, ask for help, or cope with frustration, anxiety or insecurity" Does that apply to your PWD? I'm not sure what "help" one is asking for, unless it is a question about something specific, like a CD account…
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New to this forum. Diagnosed over 4 years ago
Not sure if this is the place to introduce myself; but I had Encephalitis twice - from West Nile Virus and Powassan Virus AND Lyme Disease 7 times. Dr. told me the viruses started this ball rolling. I was doing well, dealing with changes in my life, except not driving. I haven't accepted that well. I've been going between…
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I'm on the autism spectrum and Mom has dementia
So, hello, I'm new here. I've been feeling very isolated, alone, confused, frustrated. My mom is a drinker. She got a dwi in January. She's almost 75. She's almost died. She was almost 3 times the legal limit after being found in a field face down next to a church near her home in 2023. She laid there all night in the…
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Advice Needed, Please
Hello. Does anyone have advice on what to do when the staff and administration of a nursing home are unhelpful? My mother has Alzheimer's, and yesterday, I called to ask if the doctor could please call me after he saw my mom. ( The Dr.s office is independent of the nursing home, and because the nursing home would not…
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New behaviors from mom
Hi all I am new here. I live 5 hours away from my mom. She recently threw away her wedding rings including her beautiful 50 year wedding anniversary diamond rings my dad gave her. He passed away 12 years ago. She said since he won't come home and doesn't care about her she doesn't care either....the entire family is…
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Dad's anger and my mental well-being
Hello, I am beginning to wonder if my visits with dad do more harm than good. He really wants to go home. The demands increase and intensify. I end up just having to figure out ways to excuse myself so he doesn't escalate more. Agitation and pacing have already been concerns for the nurse practitioner at his memory care…
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Doctor appointments
Hi all, My mom (69) was recently diagnosed with Alzheimer's and I (28) am her caregiver. It's difficult being so young and trying to figure some things out on my own. I don't have any experience and no one in my family does either. I am learning as I go. Since my mom has started her diagnosis journey, she finds every…
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How to become a provider for my Dad
This is a long story short. New to this. Dad has Dementia pretty bad and wife kicked him out 2 weeks ago. Us kids have been trying to care but super hard with this new lifestyle for him. The other day he fell at my sister's and we were in the ER for 2 days. He was transferred to a rehabilitation facility. He hates it. I…
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How to Parent a Parent: When They Need Help But Think They Are Fine
Hi, all, My mother has always been a huge extravert. But as her Alzheimer's progresses, she's starting to become more socially isolated and doesn't like meeting new people. She's also kind of "moody" at times and sometimes doesn't even want to talk with her friends. We're no longer comfortable with her being home by…
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Baby Doll or Fidget Blanket
My Sweet mom is in a nursing home and is beginning to fidget with her hands. She likes to try to fold her clothing protector, and my one sister wants to get her a baby doll. My other sister suggests a lap blanket with things on it for her to play with. Does anyone have any thoughts on which is better? Thank you!
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Father in law early stages , and visiting him soon
Hi everyone! So glad I found this website right now. What a relief wow. Story goes , my husband went to visit his parents in a different state last week. When he arrived, his brother pulled him aside and told him there father is starting to forget things, ask where he is, fighting with his wife and more. Side note : My…
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Researching FACILITIES: Care Managers? Who to trust? What questions to ask? Where to begin?
My husband is only 56 and probably in stage 4. I understand that it's important that I research options for memory care now (or soon), because things can decline abruptly with early-onset AD. I got a list of "care managers" from the Alzheimer's Association hotline folks but they were careful to tell me that they "don't…