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Caring for mom at home
I’ve been caring for my mom pretty much full time since 2020 but my Dad helped until he passed in early 2024. She already had mobility issues from a stroke and a fall, but since he died she’s gone downhill with her dementia. She’s maybe a mid-stage 5 but it’s hard to assess since I’ve been helping her do her ADLS for years…
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Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…
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Kisunla vs Liqembi
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
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Forgetting a loved one has passed
What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?
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Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…
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Early stages of the disease
Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…
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Suggestions on making the move to MC
My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.
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How to handle my frustrations
My husband has lost his short term memory. I get frustrated with being asked the same questions and topics. Need advice or tips. Thank you
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Losing Weight, Looking for Advice
Hi there - New Here This is my first post so forgive me if there are any formatting errors and length. I am one of the caregivers for my great aunt, late 70s, who I believe has end middle to late stage. We placed her in MC back in August because she lived alone and it was just becoming too much for her. Since entering the…
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Advice on Transition to MC
Hi. With reluctance and fear, we are going to move my Dad from independent living with my Mom into MC. I know this is a painful process for all families, My Mom and Dad have been together for 65+ years. My family is scared that my Dad will become very angry at us, especially my Mom (the dutiful wife). We don't know what…
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NEWLY DIAGNOSED VASCULAR DEMENTIA
Hi! I'm Matt, 21, 4th yr CpE student. My mother was diagnosed with Vascular Dementia literally a few minutes ago. During the doctor's assessment, I can see the massive decline in her cognitive function, which saddens me extremely. It breaks my heart to see my mother suffer from this. She is a pre-school teacher and she…
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Mom refusing to go to Dr appointments
New here. Mom has ALZ/Dementia and COPD. She is dependent on oxygen concentrator. For years now, Mom has been canceling dr's appointments on the day. Dad, who was her primary caregiver, died in May '25 and my brother and I are trying to care for her in her home. She recently fell and had a gash on her scalp, leading to…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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What Should I Say?
I am visiting with my parents for a few days and my Mom is very confused. She has Alzheimer’s . She often does not recognize my Dad and thinks he’s an imposter. She is scared of him. He will tell her it’s him. My brother lives with her and he says “that’s Dad.” My Mom is very confused. She says the only two people she…
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I am still waiting for the actual diagnosis
I have a neurocognitive disorder and I'm waiting for my neuropsych testing so I can be diagnosed. This is very challenging and I was seeing if there is anyone out there who has or is going through this. Any advice or stories would be great.
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Lost My Father Tragically - Learning How to Move Forward
Hi everyone, My father died as a result of dementia. During the night, he became confused and unsafe, something dementia had been causing more and more often. He left the house, and by the time my mother found him in the morning, it was too late. Writing that still feels unreal. What I am struggling with most now is guilt.…
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Capgras Syndrome
I believe my mother has Alzheimers. She is 78 years old. My father is her primary caregiver. The challenge is she often seems to have Capgras Syndrome. She will go through periods where she does not recognise him and thinks he is an imposter. My brother lives with them and tells her this is Dad. My Dad tells her it's him,…
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Refusing to shower
I have tried everything under the sun to try and help my mother (70) to shower. I have read articles, books, these discussions, you name it. I've tried things like a shower chair, washing her hair in the sink, washing her face in the sink, baby wipes. NOTHING helps when it comes to showering. Every time we approach the…
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Our 1st day
My wife (65) had lab work done recently and today the results were posted to her account that the lab work indicated that she has Alzheimer’s and we received a referral for a PET scan that is needed by insurance to ok the IV treatment. My wife is devastated and I have no idea how to begin to comfort her.
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Where do I start?
My 72yo Mom was just diagnosed with dementia. She lives alone. I have no clue what I’m doing. I have an appointment with senior services to do an assessment (not even sure what they do?) and an appointment with neurologist (not until end of next month). Is there a checklist somewhere? ugh, I don’t know where to start. I…
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Mom is about to be homeless, how do we decide what to do?
Hi, my mom was diagnosed with ALZ just about a year ago, but we had been noticing decline for about a year before that. She has progressed significantly and now I believe is in early Stage 5, but with some characteristics from the later stages. She has been living with her partner (long term relationship, not married, they…
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Libre3 insulin system
Greetings - My husband is 81 and was diagnosed with Alzheimer's as well as vascular dementia about 5 years ago. He has very brittle diabetes and has just been upgraded from the Libre2 to the Libre3, which is different in many ways. The sensors look like little buttons and have a small part that goes under his skin. He's…