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Help With Checking for Dementia
Needing help with the beginning process of figuring out how to check for dementia. My mil just had a CT scan and is going to have an apt to check the results tomorrow. She has a lot of signs already, but more recently it's been forgetfulness more so plus incontinence (she doesn't try to go to the toilet anymore) and won't…
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New To The Group
Hello All - I am taking care of my 80 year old mother who was officially diagnosed with Alzheimer's last year. She has lived with my wife and I since 2024. She has had noticeable behaviors since 2022 when our dad passed away. Mom has progressed to the point where it is not safe to leave her home alone for extended periods…
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Bringing Dad home?
In the mild-moderate-severe way of describing stages of Alzheimer's, my dad has one foot in "severe". He is in MC and the care there is pretty good. But he is so sad not to be with family. My mom is living with my husband and me. We tried to care for both of them, but my dad is very independent and would not let me or my…
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Memory care / Medicaid / quality of care in New Jersey VS New York
Hello everyone, I’m in the process of attempting to move my dad who is in the early to mid stages of Alzheimer’s from a retirement community in Arizona to the east coast where i am. There’s no other family around and we both want to be closer to each other. This process is beyond overwhelming. I began my search a few…
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
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Dad newly diagnosed, lives alone 3 hours away & I don't know where to start
My 75yo father has been experiencing memory issues for years. We just received the alz diagnosis with a blood test confirmation. Living alone, no family other than me, driving, medications, food, safety, poa - all of it is a lot, but we are navigating. My biggest question and concern is where and how to navigate his…
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Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.
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A discreet wandering safety idea: AirTag insoles (easy to check location if someone gets lost)
Hi everyone, I’m in this community as a fellow caregiver / supporter, and I wanted to share something I recently came across that could help with wandering risk. The Alzheimer’s Association notes that 6 in 10 people living with dementia will wander at least once (often more than once). I have attached the link to the…
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Where do I start?
My 72yo Mom was just diagnosed with dementia. She lives alone. I have no clue what I’m doing. I have an appointment with senior services to do an assessment (not even sure what they do?) and an appointment with neurologist (not until end of next month). Is there a checklist somewhere? ugh, I don’t know where to start. I…
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Mom is about to be homeless, how do we decide what to do?
Hi, my mom was diagnosed with ALZ just about a year ago, but we had been noticing decline for about a year before that. She has progressed significantly and now I believe is in early Stage 5, but with some characteristics from the later stages. She has been living with her partner (long term relationship, not married, they…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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From NPR: Dementia Care without Locked Wards
https://www.npr.org/sections/shots-health-news/2025/11/17/nx-s1-5600877/dementia-alzheimers-care-housing-senior-living-inclusion-segregation
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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Husband has dementia plus OCD
I hardly know where to start! My husband has a physical disability and has had symptoms of OCD (never officially diagnosed) for many years. The first signs of dementia started about ten years ago. I don't think it is Alzheimer's but three different providers have called it dementia (frontal-temporal or even Lewy body are…
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Mom in Indep. Living but not sure that's the right place...
WOW so much going on I'll try to keep this concise. First of all, I'm grateful to have a community like this and I'm really hoping I can get some ideas. My mom (82) was diagnosed with minor neuro decline two years ago and her annual followups went minor to medium to major this summer. It's now "suspected Alzheimer disease"…
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Maybe I’m overreacting?
My husband is my concern. I’ve tried to talk to him about my concerns. Memory, irrational behavior, inappropriate decisions, he will not discuss or answer questions. His mom past of ALZ in 2022. He refused to help in any way with her care. His sister and I were there. HOw can I get him to see a doctor. I bring it up he…
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Interview a doctor?
Hello, Nice to meet you all- I'm looking to pick a new primary or geriatric spanish speaking doc for my Mom (75) with early alzheimers when open enrollment happens for Medicare. But, I wish there was a way to interview them first before making them her doctor. Is that a thing? Is it weird to do that? Do people do that?…
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CCRC forcing LO move from independent to MC
My LO with VD lives in a CCRC in an independent home with 24 hour care. On waitlist for MC. My sister and I took her for “lunch” when opening came up. We decided not to place her in MC and continue with 24 hr care. CCRC has called us in for meeting saying they are concerned with LO’s safety. CCRC says she has to move to MC…
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Positive experience with Palliative Care
First I would like to thank all of the wonderful knowledgeable people on this platform that have helped me over the last couple months since I started visiting and learning from everyone. My husband was diagnosed 6 years ago with Mild Cognitive Impairment. Eighteen months later, during Covid, he was diagnosed with Multiple…
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Looking for input on situation with my mom
Hi! My mom is 77 and has mid-stage Alzheimer's. She and I have always been super close. I wanted to share a bit about my situation to get some opinions on it. I live about 3 hours away from her, but since I work remotely, I go live with her every few weeks, for about a week or so. She is currently living alone in her…
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I don’t know what to do!!
My mother will be 70 years old and my sister and I started seeing changes happening with my mom. We thought it was because my our brother passed away at age 38 and threw my mom in a depression. But it’s been four years and my mother‘s behavior is scaring us. She started hearing things seeing things tasting things smelling…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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From the NYT: What to Do When a Loved One was Diagnosed with Dementia
https://www.nytimes.com/2025/06/25/well/family/dementia-diagnosis-advice.html?unlocked_article_code=1.Rk8.WazS.hyIqt9FeloJq&smid=url-share This talks about next steps and how to prepare for them. It's pretty basic, but might be good for someone new to the disease. HB
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Sudden mental changes
My spouse (70) was recently retested using the MMSE test, her score went from 19 a year ago to 11. Over the past 6 weeks we have experienced significant shifts in personality and overall happiness. Before very generous, she has become very me/mine focused. She does recognize that we are married (48 years), last night…
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In Home care recommendations
Mom is diagnosed with dementia. We need some in home help and want to go with an agency but it's hard to know where to start. Looking for any recommendations you all have for in home agencies. We don't need a lot yet but will need more soon I think. Companionship, light meals and respite for her partner- the full time…
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When do you decide to place your spouse in a Facility
My husband is only 61. The confusion started 3 years ago. In the last 7 weeks he has decided fast - no longer uses the restroom, does not eat, have to force him. Can stay up for 2 to 3 days with our much sleep (cat naps - 15 to 30 minutes), constantly pacing, has left the house in the middle of the night with no shoes,…
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In home help
Tomorrow I will be talking with an agency that will provide in home help for my DH so I can do so many needed things that I have been putting on hold since his diagnosis in January. I have been utilizing family and friends to spend time with him when i have appts or do something socially, but some of his needs are more…
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Caregiver Respite
My mom has alzheimers and my dad is her primary caregiver, I am with her every saturday. It is to the point that my mom cannot be left alone and I am worried about my dad. I am looking for adult day services or in home companion care in my area to give my Dad a break- Beaverton, Hillsboro, Aloha, OR, I am completely…
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Dementia Toolkit
although the following link is specific to SC - it contains a lot of useful info that would apply to all https://aging.sc.gov/sites/default/files/documents/DementiaCareSpecialist/Dementia%20Toolkit%202025.pdf
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Falling and New Facility Decision
Hello, My sister has been in a MCF for over a year. We know she won't be able to afford to stay there forever so we put her on the waiting list at the State Run Vet's Home. They informed me this week they have an available bed for her. They've assessed her and believe they can take care of her. I have one issue of concern…