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Early onset of Alzheimer’s and the cost of long term care
Hello All, My mother was diagnosed with early onset of Alzheimer’s in 2015 at the age of 51. She just turned 59, and the disease has progressed significantly. My father had to move her into a memory care unit housed in a nursing facility. She has been unable to take care of herself for years and needs additional one on one…
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Transitioning from Home to a Care Facility
My mother still lives with her partner and always been adamant that she won't live anywhere else. But due to her partner's health problems and her own cognitive decline, that may not be feasible for much longer. I'm looking for some guidance on how to have a kind but effective conversation about the need for her to have…
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Getting overnight caregiver
We've been trying to take shifts watching mom overnight to make sure she doesn't slide out of bed or get stuck in the railings on the hospital bed. Thankfully she hasn't had any issue since being in the new bed and with us watching. We're still not getting enough sleep ourselves and it's starting to impact our job…
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New to everything
Hello, My mom been slowly losing her memory, for the last few year, This last year it has been getting worse and I am not sure where to turn. My mom is 75, some of her memory problems started 13 years ago when my older sister lost her battle to breast cancer, in the beginning I thought was her way of coping with the grief.…
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Don't Know what to do
My mom has had Dementia for a few years now and it is overwhelming at times especially when she says things like I (her daughter) or my aunt (her sister) are trying to harm her when that is not true. She doesn't even remember my name or that I am her daughter but I know it is just the disease but it still affects me at…
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Agression & Frustration
Hello, I would like to receive information on what to do in cases when my uncle who has Alzheimer's becomes aggressive or frustrated with her. My Aunt does not have the financial resources to place my Uncle in senior care. Some places here in Houston have wanted to charge her around $7,000 a month for his placement and…
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Need help: Does DH need placement for his own safety?
It's been a rough 10 days. Last weekend, about an hour and 15 minutes after I left the house to perform with my singing group, I get a call from DS. DH had called him and they were on the way to the ER. Seems DH had suffered an episode of intense chest pain that then subsided. Because he's got a longstanding history of…
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Care.com
I searched the archives and didn't see a discussion about this. Has anyone hired a caregiver through Care.com? What was your experience? Did you pay for their service to handle the payroll taxes?
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Early onset Alzheimer's
Hello everyone. This is my first post and I am lost. My DW who is 53 y/o and has a masters degree lost 4 jobs in 3 years and now has issues remembering normal things. Her mother had early onset at 53 and past by 59. We had cognitive testing that showed a decline in memory and processing but don't see the neurologist till…
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So many questions! Ups and downs, rapid decline, toileting issues, when to move....
Hi all, My 82 yo mother was diagnosed with Alzheimers just a few months ago. We moved her into assisted living a year and a half ago with "mild cognitive impairment." In the last month, we have seen a significant decline. She was prescribed Aricept about 6 weeks ago by her neurologist and the rapid decline started shortly…
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Geriatric Physician Recommendations in Florissant or West County St. Louis
My mom and dad have had the same doctor for 20 years. My mom is having trouble caring for my dad who is showing signs of dementia. Their doctor yeais dismissive of my mom's concerns, and even suggested we just drop my dad off at the ER if he becomes too much for her to handle. Is there a doctor that anyone in this group…
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New to Forum: Introduction 👋🏻
Hi all, My partner was about 26-27 when she started to realize her mother was having difficulties recalling basic things. We are 31 now. Her mother lives independently (alone) and does not know what is happening. My partner is more or less her mother's only family. My partner's sister, her mother's other daughter, lives on…
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Nursing Support for Hospital Visits
Hi All! I'm new to this group. My sister has dementia we believe due to vascular system issues. She lives in a Memory Care facility. Recently, she's had some health issues with declined responsiveness. The facility sends her to the ER via ambulance. The issue is I'm in FL and she is in MO. It frightens me that she is going…
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Moving my folks into my house
My dear mom (DM) has Alzheimer's. My dear dad (DD) is her primary caregiver. They are both in their mid-eighties. We live in the same town, as does my sister and my brother. I assist my DD care for DM, plus a caregiver comes in 3 days a week. Additionally, DM attends a day program 2 days a week. Three years ago, I had my…
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What to do after the diagnosis
My dad was recently diagnosed with Alzheimer’s. However, his neurologist said he’s been on the cognitive decline for about 3 years already. Unfortunately, I only started noticing changes in his personality and memory at the beginning of this year. The things that were most noticeable were problems with his short term…
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How to Start Part Time Help
Hello, My mother has (undiagnosed) Alzheimers and lives at home with my father. I live about 4 hours away and visit once a month, but my father has been dealing with the day today and it's beginning to be too much for one person. We think it's time to hire a part time companion/health aid. The problem is how to present…
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Caregiver Burden and Lack of Support with Loved One with Dementia (Behavioral)
Hi All, My grandma was diagnosed with bipolar in her 40s, and since her 70s has further been diagnosed with dementia. She is an Italian immigrant with little education, but has lived in the US since the 1960s. Her spouse passed years ago, so her support system includes my mom, and only a few of her siblings (my mom is my…
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time for a hospital bed?
My dear husband is incontinent, and it is no longer reasonable to share a king size bed. He is I would say later stage 6, fully ambulatory, but has aphasia and really can do no activities of daily living by himself. Since I'm getting him a twin bed anyway, is it time to go ahead and get a hospital bed for him? I do not…
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When is the right time for AL?
Hello. This is my first post. My 87 year old MIL was diagnosed with dementia (Alzheimer’s +) in March of this year. This brought clarity to the cognitive and personality changes we had been noticing over the past couple of years. Memory changes are really the least of her symptoms. She does have trouble with memory recall…
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Pull-up with more coverage in back?
My husband does not have dementia but I have not been able to find help on this issues anywhere else. I’m hoping someone can help me. He has started having occasional bowel leakage and “accidents”. I purchased him some Real Fit Depends for the flair ups and he loves how they look (refuses to wear regular depends because of…
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Memory Care Discussion - Financial Exploitation
Looking for suggestions on how to encourage a family member to go into a memory care facility. Although she is very good with her activities of daily living, she has been exploited financially by someone posing as her best friend. I think we now have that situation under control, however, we feel she can no longer live…
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Questions for Assisted Living
Our father was recently diagnosed with LBD. Right now, he is living independently with home healthcare and family support. The family would like to start looking for possible assisted living facilities. What are some important questions we should be asking when touring these places? We've found checklists online, but I…
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dementia engagement services
As a caregiver of a parent with vascular dementia, I'm looking to offer engaging outings for families of people with dementia. This could be morning coffee or lunch with some kind of light physical activity or stimulating interaction. My hope is to provide individuals with dementia a routine that inspires, promotes…
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Resources for scheduling respite
Hello! I am new to this group but look forward to getting to know you all! I personally feel that one of the hardest parts of caregiving is making/finding time for respite. Does anyone have any suggestions for resources they like to use to schedule respite?
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Help finding a doctor for my mother
Hello. This is my first time on this forum. I am a daughter starting to support my mother who is showing signs of cognitive loss. I live out of state from her and need advice on how to find a good medical provider for her to see to get a diagnosis and start treatments.
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how to proceed with parent's care, disagreements within the family
Hello all, I'm new here and am in need of advice/support from others who understand what it’s like to care for a parent. My mother (60y/o) has been dealing with memory loss since 2019, she was diagnosed with mild cognitive decline at the time and has advanced significantly since. We are working with doctors to get an…
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When is it time for assisted living ?
I a new here-My mom over the past few years has had short term memory issues (ie. forgetting keys, etc..) but more recently has declined and has trouble keeping track of what day it is, keeping up with current events and her calendar, forgot how to start her car (so we took away the keys). She currently lives…
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Need simple companion for someone in nursing home
I need some advice on finding the right companion situation. I can usually find answers to my questions by searching the other posts, but I couldn't find exactly what I needed this time. My mom has late-stage Alzheimer's & went into a nursing home about a year ago. It's a lovely facility with wonderful staff, especially in…
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Getting mom with dementia to a doctor; what other options might we have?
My 69-year old mom has been increasingly showing signs of dementia for the last decade. She never saw a doctor for this (did not even discuss it with her PCP), until the situation exploded: about 18 months ago, she was basically having psychotic episodes in the middle of the night. It got so bad, she ended up in the…
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Looking for Oregon (Bend/Redmond) Resources
Hi there! First time poster, although I have lurked and found this community very helpful. I live in Arizona but am trying to help my FIL with resource help (more personal experiences then a list) and thought I'd see if there happened to be anyone local to him on here. My MIL is still at home but we have started the…