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POA
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55-year-old Early Onset: advice about WHEN he should leave work??
Hello, We are wading through so many stressful planning sessions these days. Currently our BIGGEST confusion is when/under what circumstances should my husband leave his job? He's only 55 and in the early stages of the disease. We have three kids living at home (21, 18, and 11) He's a candidate for Leqembi, which—if our…
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From The NYT: The Ethicist- Spouse with Dementia
I have so many thoughts on this starting with "has this columnist ever lived with a PWD?" https://www.nytimes.com/2024/06/14/magazine/husband-dementia-divorce-ethics.html?unlocked_article_code=1.z00.2GoA.8KLGpmxh2ufJ&smid=url-share
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Anyone have experience with BOTH parents at once?
My folks are 83 and 80, living together in their home. Dad was formally dx'd in 2022, after periodic hallucinations that there were 3 versions of my mother; he also had some aphasia but was sharp in other ways. Neurologist prescribed Aricept and it has helped a little. Mom has had mild cognitive decline for years, but it…
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Literally the Last Thing I Needed
Hi everybody, hope you’re all doing well. Bit of backstory to this predicament; my mom (60 diagnosed with ALZ) was a single parent to me (25) and my younger sibling (20). My sibling and I have separate fathers, mine passed when I was 7 and theirs is alive but not active in our lives. He was an abusive man to us and my…
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Coping with a father with dementia in my 20s
At the behest of my therapist, I am looking for the support of others going through similar circumstances as I am. I feel incredibly alone in my slow grieving process for my father, who is 68, and has been dealing with EO dementia for the last two years. I feel completely out of my depth as a 28 year old person without the…
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How to have DH let family and friends know of his diagnosis
Hi, I"m new here (although did use this site often when helping with my Mom who passed from Alz). THis time my DH has been diagnosed with demientia - though we haven't narrowed it down to a specific type yet. SO still early on. MY DH is still in denial or hoping something will "fix" the mild(his perception) issues he's…
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Young caregiver
Hi, I am a 25 year old young caregiver. For almost 4 years now, I have been the sole caregiver of my 58-year-old mother suffering from early Alzheimer's, since my father passed away in 2020 due to the pandemic. I am Italian, but given my mother's condition we moved to China, her homeland, to take better care of her. I…
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Feeling guilty about selling her things, her house. I know I'm not the only one.
Hi everyone, I'm sure there are many of you who have gone through/are going through this and would love to hear from you. My mom was diagnosed with dementia (we don't know what type) about 4 months ago. We had to move her into a memory care facility. I am now at the point where I need to sell her house, and probably have…
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55-year-old Early Onset: HOW do people pay for memory care?!?!
Hello, I am looking ahead to the impossible-to-predict future and feeling miserable. I'm so confused about some BIG questions. I understand that, as my husband's dementia progresses, we will make adjustments, try to keep him and other family members safe, and keep him at home as long as possible. I understand that SSDI…
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Help! To move or not to move a parent diagnosed with dememtia
Mom was diagnosed in January 2024. She mechanically very functionally. Sister and I can’t agree about moving her from where she has lived for 24 years to where sister and I live. Mom started showing signs of memory lose two years prior to diagnosis. How does one determine if moving is right or not as I have heard horror…
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Neuropsych testing
When your LO has received neuropsych testing, were you given a copy of the results? I was not told anything other than DH has mild cognitive impairment and this was reported to us by his primary care doctor. I somehow feel we are missing indepth information.
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Resisting Move to Assisted Living
Dad has Alzheimers and Mom is wheelchair bound. They currently have 8x5 home care. It's becoming harder Dad to care for Mom when home care is not there. However, Dad doesn't realize this and thinks he's doing a "good job" taking care of her. Gets very defensive. Took them on tours of AL yesterday. Mom is willing to move,…
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Early Stages: assessment, support, education
Hello, I am in the early stages of needing to get my LO a neurological assessment and get educated as their child on the best ways to support them moving forward. It's hard to know if they are in early stages or if aging and isolation and depression are the culprits. (want to acknowledge that i know they will exacerbate…
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Online counseling for caregiver support and those dealing with a hoarder?
Hi all, new to the forum and appreciate that its here. Does anyone know of an online counselor for caregiver of family support - especially those dealing with lifelong hoarders? I prefer online/virtual sessions and timezone is not a concern. My Mom (72) has Alzheimers and I am her POA, Guardian and Trustee. She is highly…
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the first steps in the journey
Hi there, I'm caring for my MIL and while our family is aware and in agreement about our concerns with her possible diagnosis, I'm feeling stuck with how to put in place the necessary things like POA and medical POA. Mom has started becoming aggressive and is absolutely in denial about our concerns. I don't know how to get…
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Early onset
Hello, this is my second post. My DW has been dx with alzheimer's at the age of 53. Her mom died of this at 59. She is a candidate for Leqembi and we are waiting on insurance approval. I have DPA and going to have her make a Will and I will be getting healthcare PA soon. Does anyone have advice on what we can do with her…
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Fearing the future
My 83 yo Dad was diagnosed in November 2023. I’m guessing he’s in late 2 or early 3 stage. Still lives alone and drives. We visited 3 IL places. He doesn’t want to move from his 3K sq. ft. house into 900 sf. What have been your experiences moving your parent to AL or MC at later stages? I’m also his caregiver paying bills,…
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Skilled Nursing Facilities
Many of us could write a book! I have been a caregiver for my brother for the past year when he 'crashed' with Dementia. He's been diagnosed with Frontotemporal Dementia. He was repeating himself for years but 1500 miles between us made me quite in denial I guess of how he was progressing. In september '22 I flew to him…
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Obtaining POA in NYS
Hello everybody! I am stuck on how to obtain POA over my mother in NYS. There is so much info on all the different types of POA's my head is spinning. I know the easiest way would be to hire a lawyer, but I don't think I have the money for that. There are tons of "free" templates online, but they're never actually free.…
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Transitioning from Home to a Care Facility
My mother still lives with her partner and always been adamant that she won't live anywhere else. But due to her partner's health problems and her own cognitive decline, that may not be feasible for much longer. I'm looking for some guidance on how to have a kind but effective conversation about the need for her to have…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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Younger onset, or forthcoming Alzheimer's at later date?
Symptoms with start dates. Some dates are guesses because I only began paying attention to symptoms this year (2023): 2023: Difficulty judging distances. Think I stopped the PWD from jumping in front of cars coming from two directions recently. The look on the PWD's face indicated they were going to try to cross a street…
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New to mothers ALZ
Hello - I'm Erik and I have been holding so much emotion inside since my mom's formal diagnosis of ALZ. My family lived a very tumultuous life as a child leading to my parents always living a part. My mom went onto 3 ex-husbands in search of love, while raising 3 boys on her own. She found her prince of 20 years who is a…
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What to do after the diagnosis
My dad was recently diagnosed with Alzheimer’s. However, his neurologist said he’s been on the cognitive decline for about 3 years already. Unfortunately, I only started noticing changes in his personality and memory at the beginning of this year. The things that were most noticeable were problems with his short term…
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Recos for Certified Elder Care Attorney (CELA) in New York State?
We'd like to find a good CELA in New York State. Some questions: Do you know one you can recommend, or a good resource for finding one? What should we do to prep for our appointment once we find someone? Thanks in advance for any advice you can offer.
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time for a hospital bed?
My dear husband is incontinent, and it is no longer reasonable to share a king size bed. He is I would say later stage 6, fully ambulatory, but has aphasia and really can do no activities of daily living by himself. Since I'm getting him a twin bed anyway, is it time to go ahead and get a hospital bed for him? I do not…
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Trying to help from out of state and feel like I'm drowning.
First of all, I'm very relieved to have found this resource. I have so many questions and worries, and many sleepless nights over the last couple weeks. I have a stepmother who was diagnosed with early stage Alzheimer's awhile back, so I think it's likely progressed since then (probably stage 4 now if I had to guess). I…