Have any questions about how to use the community? Check out the Help Discussion.

Resources and Representation in Research for LGBTQ+ Caregivers

RainbowsofAging
RainbowsofAging Member Posts: 2 Member
The RISE (Research Inclusion Supports Equity) registry is seeking LGBTQIA+ participants who are interested in connecting to Alzheimer’s resources and research opportunities. The registry is part of a research study being conducted by Emory University; the University of Nevada, Las Vegas; and the University of Tennessee, Knoxville.


RISE registry connects LGBTQIA+ people to Alzheimer’s research opportunities

The RISE (Research Inclusion Supports Equity) registry is seeking LGBTQIA+ participants who are interested in connecting to Alzheimer’s resources and research opportunities. The registry is part of a research study being conducted by Emory University; the University of Nevada, Las Vegas; and the University of Tennessee, Knoxville.

Signing up for the registry allows researchers to reach out to LGBTQIA+ members to participate in clinical trials or research studies focused on the experiences of people with Alzheimer’s and/or their caregivers. Without participation of sexual and gender minorities, research trials and findings lack the necessary diversity to address all communities' needs.


The registry is for LGBTQIA+ people 18 and older who:
Have memory concerns or a memory loss diagnosis such as Alzheimer's disease or a related dementia
Are helping care for someone with memory loss or a memory loss diagnosis


By registering, you’ll receive:
Notice of research opportunities related to aging or caregiving
Opportunities to participate in educational and advocacy events
Invitations to participate in additional questionnaires, interviews, or focus groups related to aging and the LGBTQIA+ population
LGBTQIA+ friendly resources for adults with memory concerns and LGBTQIA+ caregivers
To learn more or sign up for the registry, visit theriseregistry.org.

To learn more or sign up for the registry, visit theriseregistry.org

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more