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A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
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Sleeping 12 hours a night
DH was diagnosed two years ago, but has likely been impacted for 6 years. He was quite accomplished, so he was able to “cover” for many of symptoms as he declined. While ALZ runs in his family (grandfather, father, aunt, uncle, but not his brothers - yet) DH was able to make it to age 60+ without symptoms. For most of our…
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Having a hard time about my dads diagnosis.
Preface: (DAD WAS VERY RECENTLY DIAGNOSED & PUT IN A HOME ABRUPTLY SO IM STILL IN SHOCK) Hey! My name is Blair and I’m 28, I have 4 beautiful boys, ages 1,3,5&7. My dad can’t remember their names or how many I have. I’m having a hard time. He was just out into a home in September. He hates it but it’s for his safety. We…
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Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
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Good day has me questioning my sanity
I’m at my mom’s and she has been so normal and seemingly fine all day, I’m starting to question my sanity. She cleaned her house before I came, she cleaned out all the expired food from her fridge, she did all the laundry…. Hard to believe this is the same woman who one week ago forgot how her son was related to her……
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My father is convinced my mom is cheating (?)
Hello I am new to the group, and an unsure how to handle this issue. My father was diagnosed over a year ago, and IDK how to label his current progression. He is isolating, and unsteady of feet, has some issues with incontinence. Has difficulty following a movie or tv program. But he is still aware of who family are. He…
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Juggling changes (driving, moving) with grief
My 84-year-old Mom lost her husband of 60 years — my dad — just 2.5 months ago. She is really grieving hard. So we are hesitant to add more unwanted changes to her life just yet. The problem is, we believe she is around Stage 3 or 4…. (Doctor just did MMES and she scored 24 out of 30, which was just below normal but we…
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Help me, I really messed up
Ever since my mother's stupid eye doctor told her she was okay to drive, she has been RELENTLESS. She won't drive unless I give her my blessing (thankfully), but it is so bad. In our daily phone call today, she yelled and swore at me the whole time, wanted to know why I insisted on treating her like a baby, why I don't…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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The driving discussion
I know you are not supposed to rationalize and explain with someone who has anosognosia, but what kinds of things can I say to appease my mom, who has become OBSESSED with driving again, especially when she asks why her 3 friends who invite her to lunch can drive themselves but she can’t? Her eye doctor told her earlier…
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Please help me keep my sanity
I wrote some of this in a reply to a comment, but thought I need some more support. I’ve been with my mom for the past week and she has done nothing but yell at me for the last 3 days. For context, I came to her house last week to take her to a doctor appointment, where she finally was given a memory test and did better on…
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Ready to give up
Anyone who has been following my saga knows I’ve been staying with my recently widowed mom for over a week because I became alarmed about her confusion during my last visit. At the beginning of this week, I was determined to get her into AL right away. Now after seeing 2 doctors who both basically told her she is fine and…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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When to know
I currently live with my mom and she was diagnosed with vascular dementia and Alzheimers six months ago or so. She is definitely starting to change but its hard for me to tell because I am around her all the time. She still drives, etc., and I am not sure when I will know i should take her keys away, etc.
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How do you deal with the trauma of witnessing this disease take over your LO?
It has been 10 years since I knew in my heart that mom had this disease, and that hoping her behaviors were brought about by something else no longer made sense. Before any doctor weighed in, I just "knew". Until two years ago, I watched my dad care for her at home. He carried the weight of the world on his shoulders. My…
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Help With Checking for Dementia
Needing help with the beginning process of figuring out how to check for dementia. My mil just had a CT scan and is going to have an apt to check the results tomorrow. She has a lot of signs already, but more recently it's been forgetfulness more so plus incontinence (she doesn't try to go to the toilet anymore) and won't…
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My Grandma has been diagnose but family won't accept it!
Hey there... long story short, my Grandma was diagnosed with dementia back in 2023 and my mom and aunts and uncles didn't share this information with anyone! Fast forward to today, my Grandma was in the hospital due to an UTI infection, and while I was there, the doctor mentioned her vascular dementia diagnosis and said he…
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Is there any benefit of getting mom to a specialist for her COPD at this point?
Mom is 87 and in MC for over one year. She has dementia, COPD and newly diagnosed early-stage heart failure. She also recently is on oxygen for her COPD. In addition to all of that, she has limited mobility from a recent fall in memory care where she broke a hip and is now getting around in a wheelchair and shuffling her…
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Over medicating ? chemical restraint ?
I need some advice .. My step father who is only 61 years old has been battling frontal lobe dementia for 2 years now but recently his behaviors have increased to being up at night wandering from room to room , pacing and moderate confusing and anger, with possible treats of wanting to end his life , but he was not…
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Dealing with uncontrollable anger
My mother is 82 and was previously diagnosed with early onset dementia. I didn't think the condition had progressed much, as I was not noticing any severe symptoms, but in the past year she has had more and more outbursts of uncontrollable anger. I didn't know this was a symptom of dementia until I looked it up after a…
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Dementia needs
My DH was diagnosed 9 yrs ago with early onset dementia and just recently with Parkinson. I've made the following purchases which have made both our lives better. A small,lightweight wheelchair from Amazon, adult bibs, washable mattress pads, a bedrail, satin sheets and silk pajamas to help him slide in and out of bed. I…
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Peeing all over himself
My DH with mixed dementia has started having accidents in the bathroom. Some of the urine goes into the toilet the rest ends up on the toilet, floor. He wets his pats and urine runs down his leg into his shoes. His shoes are washable but they need hours to dry. I bought him sone washable slippers so that I can get through…
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Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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Forgetting a loved one has passed
What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?
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Suspect nobody is following up on discharge instructions for mom in MC, what to do?
My 87-year-old mother is in Memory Care. She was diagnosed with COPD 15 years ago and she controlled it well with an inhaler and occasional use of a nebulizer at home before moving into the ALF. Other than COPD and dementia, she is in relatively decent health. Her facility left me a message three days ago saying "your…
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How to handle my frustrations
My husband has lost his short term memory. I get frustrated with being asked the same questions and topics. Need advice or tips. Thank you
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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.